Miruvor
Sign up
Long COVID Moderate → no benefitIll for 9 months

Long COVID with head pressure and dizziness, barely able to leave the house, no better

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
9 months
Last post
Nov 2022
In their words
  • Condition: Long COVIDIs that LC, or what..? In context ↗
  • At worst: ModerateCan’t even leave the house. In context ↗
  • Now: No benefitBut symptoms persists. ... I still barely leave my house for work. In context ↗
  • Began after: nothing they could nameSo all started in february after a ski trip. ... I neved had covid
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

Lagoon 24849 became ill in February 2022 after a ski trip, without any confirmed COVID infection. Head pressure, dizziness, visual disturbances, panic and breathlessness left them barely able to leave the house except for work. They were treated for vitamin D deficiency, high cortisol and insulin resistance, but symptoms persisted. Nine months on they still had head pressure, anxiety and a resting heart rate near 90.

Ask Miruvor AI

Asking aboutLagoon 24849’s story

What they tried

Also tried

treatment for vitamin D deficiency· Helped a lotphysioteraphy· No changemassage· No changetreatment for high cortisol· Not saidtreatment for insulin resistance· Not said
Their words about each treatment
  • treatment for vitamin D deficiency · Helped a lotHad found vitamin D deff, high cortisol, insulino resistance. Started treatment for all of those. In context ↗
  • physioteraphy · No changeDid physioteraphy and massage, cured vitamin D. But symptoms persists. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
February 2022head pressure and dizziness began after a ski tripSo all started in february after a ski trip. ... First I had a huge pressure inside the head, and dizziness. In context ↗Not stated
—symptoms returned stronger after a short better spellIt was better for a short time then it came back stronger. In context ↗Moderate
2022-11-23still housebound apart from work, symptoms persistingI still barely leave my house for work. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineFirst I had a huge pressure inside the head In context ↗
  • POTS & dysautonomiathe dizziness feeling, going away when laid down In context ↗
  • Anxiety & low moodanxiety real hard In context ↗
  • Vision problemsVisual disturbances, i feel like i am drunk, i see like in a dream, cant focus In context ↗
  • Light & noise sensitivityfeel like all my sensors are overloaded In context ↗
  • BreathlessnessI also noticed I have some days where i breath real hard In context ↗
  • Heart symptoms & palpitationsmy apple watch shows high BPM (even if not exercising at all - somewhere at 90 when staying) In context ↗
  • Neuropathy & tinglingsome of my left hand fingers felt numb In context ↗
  • Temperature regulationsometimes felt like i had heat waves through body In context ↗
  • Pain & fibromyalgiastarted to have a tightness in the back of the head and the neck, popping in my neck In context ↗
  • Mast cell (MCAS) & allergiesi have multiple allergies In context ↗

Ask Miruvor AI

Asking aboutLagoon 24849’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime