ME/CFS with severe weakness and nerve pain, somewhat better three months after birth
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
he's 99.9999% sure I actually have ME/CFS
In context ↗ - At worst: Severe
I could barely hold myself up to walk, I could hardly process spoken language, and I had horrendous nerve pain in my extremities
In context ↗ - Now: Somewhat better
I am still very weak and light-headed like I was before pregnancy, but the extreme nerve pain and migraines have not come back
In context ↗ - Began after: glandular fever or EBV
I got mono (and probably some other viruses on top of that
Summary
She fell ill with ME/CFS after mono in college about three years earlier, with severe weakness, migraines, nerve pain and trouble processing speech, and left graduate school. Her doctor said pregnancy might ease it; by the second trimester symptoms were almost nonexistent and she could walk, shower standing and read again. Three months after the birth she was still very weak and light-headed, though the nerve pain and migraines had not returned.
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What they tried
What they credit
Also tried
Their words about each treatment
- going vegetable mode during breaks · Helped
I managed to graduate by going into remission for short periods of time (basically just forced my body to rest by going vegetable mode during breaks)
In context ↗ - pregnancy · Helped a lot
I am currently approaching the end of my second trimester and I can confidently say that my symptoms are almost nonexistent compared to pre-pregnancy
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| About 3 years ago | got mono in college and never recoveredAbout 3 years ago, when I was in college, I got mono ... I didn't recoverIn context ↗ | Moderate |
| during grad school | relapse to near-death, dropped out of grad schoolgot super sick again to the point of near-death, and therefore dropped the programIn context ↗ | Severe |
| 2026-01-19 | symptoms almost gone in second trimester of pregnancymy symptoms are almost nonexistent compared to pre-pregnancyIn context ↗ | Mild |
| 2026-08-08 | three months postpartum, weak and light-headed again but nerve pain and migraines goneI am still very weak and light-headed like I was before pregnancy, but the extreme nerve pain and migraines have not come backIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I am still very weak and light-headed like I was before pregnancy
In context ↗ - Pain & fibromyalgia
I was so weak and in so much pain that I gen thought I was going to die
In context ↗ - Headaches & migraine
crying-screaming-on-the-floor migraines
In context ↗ - Neuropathy & tingling
some things still bother me like some nerve pain
In context ↗ - Brain fog
I could hardly process spoken language
In context ↗ - POTS & dysautonomia
shop at the grocery store without passing out
In context ↗
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