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Long COVID Moderate → relapsedIll 5 years before improving or writing

Long COVID with fatigue, headaches and brain fog, improved then relapsed

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
5 years
Last post
Jun 2026
In their words
  • Condition: Long COVIDI got long haul symptoms from the Pfizer vaccine. In context ↗
  • At worst: ModerateExtreme fatigue. ... Now I sleep 12 to 14 hours and I’m still constantly tired. In context ↗
  • Now: RelapsedI was doing much better after years of healing and one mistake (taking new medicine clomipramine) brought all the symptoms back In context ↗
  • Began after: a vaccinationI got long haul symptoms from the Pfizer vaccine. In context ↗
Read from 12 of their posts and comments; links to the 8 this page draws on

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Summary

A 27-year-old woman developed long COVID after her first Pfizer dose in June 2021, with extreme fatigue, daily headaches, tingling, dizziness and brain fog. Supplements helped a little and symptoms eventually cleared, but an EMG test in 2021 brought them back worse and a 2024 iron infusion caused another major relapse. After years of healing she was almost 100% for a few months, then clomipramine in 2026 brought the brain fog and nerve pain back.

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What they tried

Their words about each treatment
  • iron infusions · Much worseHe gave me 3 iron infusions to correct that. ... Relapse started after an iron infusion.
  • Quercetine · HelpedQuercetine it’s an antioxidant and helps with inflammation ... It all helps a bit In context ↗
  • b1 · HelpedAlso b1 (100 mg) ... It all helps a bit In context ↗
  • b2 · Helpedand b2 , zinc, magnesium (350 mg) ... It all helps a bit In context ↗
  • zinc · Helpedzinc, magnesium (350 mg) ... It all helps a bit In context ↗
  • magnesium · Helpedmagnesium (350 mg) ... It all helps a bit In context ↗
  • vit c · Helpedvit c, vit d ( 5000 iu) ... It all helps a bit In context ↗
  • vit d · Helpedvit d ( 5000 iu) ... It all helps a bit In context ↗
  • Pea · HelpedPea,... ... It all helps a bit In context ↗
  • clomipramine · Much worseRecently i took a new medication (clomipramine) and the long covid issues all came back. In context ↗
  • years of healing · HelpedI was almost 100% for a few months ... I took many years to get better.
  • COVID vaccination as treatment · WorseThe vaccine made everything worse again. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered12 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
30 June 2021first Pfizer dose; long haul symptoms beganI got my first dose of the Pfizer vaccine the 30th of June in the morning. In context ↗Not stated
18 October 2021extreme fatigue, daily headaches, dizziness, brain fogExtreme fatigue. Before the vaccine I slept 7 to 8 hours and was rested. Now I sleep 12 to 14 hours and I’m still constantly tired. In context ↗Moderate
early November 2021symptoms had clearedBefore I got it my symptoms where all gone. In context ↗Near normal
8 November 2021crashed after EMG / nerve conduction testAfter the tests everything is 100x than before. In context ↗Moderate
2023–early 2024almost 100% for a few months after years of healingI was almost 100% for a few months In context ↗Near normalTime and spontaneous remission
May 2024major relapse after iron infusion, new occipital nerve painRelapse started after an iron infusion. In context ↗Moderate
5 June 2026clomipramine brought all long covid symptoms back; still present after stoppingone mistake (taking new medicine clomipramine) brought all the symptoms back In context ↗Not stated

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingTingling in face, nerve pain, muscle twitches In context ↗
  • Brain fogheavy brain fog, tiredness, tintling in face, nerve pain, muscle twitching In context ↗
  • Headaches & migraineheadaches every day ( I never had headaches before the vaccin) In context ↗
  • POTS & dysautonomiadizziness/ drunk feeling/ rocking on the boat feeling In context ↗
  • Muscle weaknessextreem muscle weakness In context ↗
  • Sleep problemsNow I sleep 12 to 14 hours and I’m still constantly tired. In context ↗
  • Tinnitustinnitus in my left ear In context ↗
  • Anxiety & low moodI am beyond depressed and never was like this. In context ↗
  • Pain & fibromyalgianeck pain on the left side In context ↗

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