Over 30 long COVID symptoms at worst, now nearly back to normal with AIP diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 1 year
- Last post
- Dec 2022
In their words
- Condition: Long COVID
since contracting COVID in Dec. 2021 I am light years from where I was
In context ↗ - At worst: Moderate
Long hauled pretty bad for 5-6 months.
In context ↗ - Now: Near normal
Most days 90-95%. I still have flares of palpitations. Still dealing with days of upset GI. Still get floaters, but all in all I am doing much better.
In context ↗ - Began after: COVID
I think I had delta in dec 2021 as well.
Read from 46 of their posts and comments; links to the 21 this page draws on
Summary
After a December 2021 infection they thought was Delta, this Reddit user had over 30 symptoms at their worst, including GI bleeding, 30 lb weight loss, brain fog and palpitations. They credit an AIP diet, Berberine, Visbiome, BPC-157, GlyNAC with melatonin, resveratrol, nattokinase and psychological support. A year in, most days were 90-95%, with POTS-like symptoms, palpitations, floaters and GI flares left; an August 2022 reinfection left them feeling better overall, though they later had a temporary relapse.
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What they tried
What they credit
Also tried
Their words about each treatment
- AIP diet · Helped a lot
AIP diet. Biggest game changer.
In context ↗ - Digestive enzymes · Helped a lot
Only after taking digestive enzymes with every meal did it go away.
In context ↗ - antibiotics · Helped
I ended up on antibiotics for something else, got a little better.
In context ↗ - glutathione IV · Helped
I did. Made my brain fog go away. Coincidentally other issues popped up right after.
In context ↗ - Buspirone · Worse
Was on it for 5 weeks. Just made me hella dizzy.
In context ↗ - blood donation · Helped
I did. Felt like crap the day after. Felt minor improvement the next week.
In context ↗ - Visbiome · Helped a lot
Visbiome has been great
In context ↗ - Bentonite clay · Helped
I am a big fan of Bentonite clay daily for a while to assist with that.
In context ↗ - Berberine · Helped a lot
Berberine has been a life saver
In context ↗ - Resveratrol · Helped
Been taking both with Berberine for a month. Great improvements.
In context ↗ - Nattokinase · Helped
That mixed with 1000mg of NAC and 2000 FU of Nattokinase made a huge difference.
In context ↗ - IVM · Helped a lot
Took IVM and HCQ and was over it in a day.
In context ↗ - HCQ · Helped a lot
My second bout of COVID I went to the FLCC site and got IVM and HCQ. Helped a TON.
In context ↗ - beta blockers · Not said
Still taking beta blockers and my vitamin stack.
In context ↗ - BPC-157 · Helped
BPC-157 helped me a lot.
In context ↗ - glutamate · Helped
BPC-157 (dna health), Visbiome, glutamate, clean diet. Took a year.
In context ↗ - Melatonin · Helped
Melatonin is incredible after the fact.
In context ↗ - NAC and Glycine (GlyNAC) · Helped
NAC+Glycine+10mg melatonin every night…it’s helped.
In context ↗ - Vitamin C · Helped
GlyNAC nightly with 20mg of Melatonin and 1g Vitamin C
In context ↗ - Niacin · Helped
Niacin (100mg once/twice a week)
In context ↗ - Quercetin · Not said
I also took Quercitin and Zinc.
In context ↗ - Vitamin K · Not said
Berberine, Vit D and K, Natto during the day.
In context ↗ - cannabis and CBD · Not said
Been doing it daily for a while now. That and CBD.
In context ↗ - psychologist · Helped
I went to a psychologist for the better part of the year to help with my health anxiety.
In context ↗
Approaches: CBT & mindset · Amino acids and carnitine · Anticoagulants · Diet · Other drugs and medicines · Peptides · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2021 | COVID (probably Delta), start of long COVIDsince contracting COVID in Dec. 2021 I am light years from where I wasIn context ↗ | Moderate |
| 2022 | worst period: GI bleeding, diarrhoea, 30 lb weight loss, over 30 symptomsAt the worst I had over 30.In context ↗ | Moderate |
| August 2022 | slight relapse after food poisoning3 weeks out from food poisoning. Slight relapse. But symptoms are fading quicker.In context ↗ | Mild |
| September 2022 | back to 90-95% baseline after reinfectionOnce the inflammation went down it’s back to my 90-95% baseline.In context ↗ | Near normal |
| 2022-12-31 | most days 90-95%, palpitations and GI flares remainMost days 90-95%. I still have flares of palpitations.In context ↗ | Near normal |
Adverse events
- Buspirone (Buspar)“Just made me hella dizzy.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
Made my brain fog go away.
In context ↗ - Gut problems
Still dealing with days of upset GI.
In context ↗ - POTS & dysautonomia
My remaining issues are POTS like symptoms (increased heart rate upon standing and blood pooling)
In context ↗ - Heart symptoms & palpitations
I still have flares of palpitations.
In context ↗ - Neuropathy & tingling
Btw I had the same for the better part of the year. Only happens occasionally now.
In context ↗ - Anxiety & low mood
I went to a psychologist for the better part of the year to help with my health anxiety.
In context ↗
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