Severe ME/CFS after COVID jabs, now somewhat better with pacing and strength training
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2024
In their words
- Condition: ME/CFS
My periods are always when I start to crash (I have moderate ME)
In context ↗ - At worst: Severe
im moderate (recovered from severe)
In context ↗ - Now: Somewhat better
ive been able to get back to moderate but it took a long and concerntrated effort to get there
In context ↗ - Began after: nothing they could name
I got sick before I could go university
- Says they never had: POTS & dysautonomia
I dont have POTS or ED
Read from 25 of their posts and comments; links to the 20 this page draws on
Summary
A woman in the UK who became ill with ME/CFS before university was usually moderate, able to go to work three times a week. Two Pfizer COVID jabs in 2021 caused crashes; after the second she could hardly walk downstairs, and she was wiped out for about a year before returning to baseline. By late 2023 she was working full time from home, having gone from severe to moderate, and mentioned pacing, strength training, B12 injections and diet changes as helpful.
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What they tried
What they credit
Also tried
Their words about each treatment
- different supplements · Not said
ive pretty much adapted by using different supplements etc
In context ↗ - plan b · Worse
Months where I have used plan b my period related symptoms will last 2x the amount of time
In context ↗ - co enzyme q10 · Not said
I started taking coenzyme q10 to help with the side effects (read this somewhere on this sub) not sure if it helped but after the second jab i recovered alot faster
In context ↗ - indoor bike machine · Helped
im moderate and doing 10-40 minutes with no resistance is the best for me
In context ↗ - amitriptyline · Not said
Im on amitriptyline so its probably a mix of the two which has made me this way
In context ↗ - weed · Much worse
at first it was helpful but ended up making my symptons ALOT worse
In context ↗ - diet only changes · Helped
I recently lost 3-4 stone through diet only changes and I can say that I do feel like my fatigue has become “lighter”?
In context ↗ - b12 shots · Helped
I do my own b12 shots and I do see an improvement nothing dramatic but i do have less agony when I menstruate
In context ↗ - combined pill · Worse
i tried the combined pill and was convinced 2 months in it was making me worse!
In context ↗ - progest-e · Worse
Ive tried progest-e through ray peats protocol to relieve excess estrogen, im moderate but it did cause a flare
In context ↗ - pacing · Helped
ive been pacing and doing strength training and its done me some good
In context ↗ - strength training · Helped
Im moderate (recovered from severe) and do cardio and weight lifting
In context ↗ - COVID vaccination as treatment · Worse
first dose I was sick for three months on the second month I could hardly walk near my menstration cycle
In context ↗
Approaches: Exercise and activity · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | became ill with ME/CFS before universityI got sick before I could go university so it was hard gaining experienceIn context ↗ | Not stated | |
| 2021-09-11 | crash after first Pfizer jab, period delayedMy periods are always when I start to crash (I have moderate ME)In context ↗ | Moderate | |
| 2021-11-29 | wrecked by second covid jab, hardly able to walk downstairsim usually moderate and can go to work 3 times a week but now i can hardly walk down the stairs to feed myselfIn context ↗ | Severe | |
| 2022-01-30 | back at baseline after the jabsYes i got two shots of pfizer and was terrible for 2-4 months after but im back at baseline nowIn context ↗ | Moderate | |
| 2022-10-10 | moderate-severe healing to just moderate, working full time from homeFull context im 24 moderate-severe healing to just moderateIn context ↗ | Moderate | |
| 2023-11-05 | went from severe to moderate in a senior work-from-home jobbeen able to go from severe to moderate in this positionIn context ↗ | Moderate | |
| 2024-02-13 | mainly moderate now, pacing and strength training helpingim moderate to severe but mainly more moderate these days, ive been pacing and doing strength training and its done me some good!In context ↗ | Moderate | Pacing and the energy envelope |
Adverse events
- “Months where I have used plan b my period related symptoms will last 2x the amount of time and ive pretty much realised I can no longer use this.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“first dose I was sick for three months on the second month I could hardly walk near my menstration cycle” In context ↗ Made symptoms worse
- COVID vaccination as treatment“i got my second covid jab and its wreaked havock on my body as expected and has made me very ill ... now i can hardly walk down the stairs to feed myself” In context ↗ Made symptoms worse
- COVID vaccination as treatment“the first two intial jabs wiped me out for a year + ruined my period cycle for a long time” In context ↗ Side effects
- Cannabis (THC, marijuana)“at first it was helpful but ended up making my symptons ALOT worse. One of the major things that happens is that it makes my knee weakness so much more worse to the point that i was facing severe cfs” In context ↗ Made symptoms worse
- Combined birth control (pill, patch or ring)“i tried the combined pill and was convinced 2 months in it was making me worse!” In context ↗ Made symptoms worse
- Progesterone (Prometrium, Utrogestan)“Ive tried progest-e through ray peats protocol to relieve excess estrogen, im moderate but it did cause a flare.” In context ↗ Autoimmune or inflammatory flare
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
cardio will normally always give me brain fog the next day
In context ↗ - Brain fog
Some days the brain fog is hard
In context ↗ - Muscle weakness
it makes my knee weakness so much more worse to the point that i was facing severe cfs
In context ↗ - Pain & fibromyalgia
bad joint stiffness
In context ↗ - Anxiety & low mood
I was depressed the first couple of years after disgnosis
In context ↗
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