Long COVID
Moderate → somewhat betterIll 18 months before improving or writingNeeds ongoing treatment
Long COVID brain fog and headaches, stopped work, somewhat better with diet and rest
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 18 months
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I caught COVID end of June and I have had long covid since then.
In context ↗ - At worst: Moderate
I’m not severe but it’s bad enough that I’ve had to stop working.
In context ↗ - Now: Somewhat better
my brain fog/memory has improved from how bad it once was
In context ↗ - Began after: COVID
Got infected at the end of June 2024 and have had LC symptoms since
In context ↗
Read from 53 of their posts and comments; links to the 32 this page draws on
Summary
Dove 45419 caught COVID in June 2024 and developed long COVID with brain fog, raised heart rate, headaches and light and sound sensitivity. Mild at first, by March 2025 it was bad enough to stop work. A low-histamine, plant-based, low-glycaemic diet and rest helped most, along with DAO and antihistamines; brain fog and food reactions improved. A December 2024 reinfection, famotidine-linked SIBO and a chronic headache starting around late December 2025 complicated things.
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What they tried
What they credit
Also tried
steroid spray· Helped a lotbreathwork / meditation· Helpedvitamin D supplement· HelpedRest· HelpedChatGPT· Helpedloratadine· Helpedbiotin supplement· Helpedart, music and philosophy reading· Helpedlong covid physio· HelpedColdFX· Helpedlow FODMAP diet· Helpedextra sleep· Helpedadvil (NSAIDs)· Helpedlumbar support pillow· Helpedq-tip scratching inside the ear· Helpedcanesten pill· No changeCOVID booster· No changecough syrup· No changePepcid AC (famotidine)· WorseCBD gummy· Worsevitamin C supplements· WorseCoQ10· Not saidb12· Not saidmagnesium· Not saidomega 3· Not saidneck pillow· Not said
Their words about each treatment
- breathwork / meditation · Helped
Sometimes i can get some level of temporary relief from advil, from trying to change positions, from breathwork or other calming/meditation type things
In context ↗ - low glycemic diet · Helped
I found a decent amount of symptom relief from trying to eat a more low glycemic diet
In context ↗ - Paxlovid · Helped
I did take paxlovid though so I imagine that helped quite a bit.
In context ↗ - canesten pill · No change
I took a canesten pill and it hasn’t fixed it.
In context ↗ - low histamine diet · Helped
eating a low histamine (and plant based and low glycemic) diet has been the biggest help in all my symptoms
In context ↗ - intermittent fasting · Helped
I think intermittent fasting has had some benefit for me. I usually do 16:8.
In context ↗ - vitamin D supplement · Helped
I became quite vitamin D deficient a while after my first infection. I resolved this by supplementing.
In context ↗ - ChatGPT · Helped
ChatGPT has been helping me lately. It just helps me process.
In context ↗ - plant-based diet · Helped
a more plant-based diet seems to make me feel better
In context ↗ - COVID booster · No change
I got the booster and it had no effect either way. Just some tiredness for a day.
In context ↗ - loratadine · Helped
I take loratidine as needed. Or else it worsens the brain fog
In context ↗ - Pepcid AC (famotidine) · Worse
it did help me with symptoms but I’m pretty sure it gave me sibo
In context ↗ - biotin supplement · Helped
I take a biotin supplement, which I do think helps things from getting too out of hand.
In context ↗ - art, music and philosophy reading · Helped
Find art. Music, poetry, tv shows, stories, that resonate.
In context ↗ - long covid physio · Helped
I found long covid physio a good starting place.
In context ↗ - ColdFX · Helped
Overall it seems to make PEM more bearable
In context ↗ - cough syrup · No change
I had a cough that would not go away no matter how much cough syrup I drank.
In context ↗ - steroid spray · Helped a lot
only went away when I took a steroid spray the doctor prescribed me
In context ↗ - pacing · Helped
The truth is rest, pacing, and avoiding reinfection are the main things
In context ↗ - DAO · Helped
Definitely helps me
In context ↗ - low FODMAP diet · Helped
low histamine, and now with SIBO, low fodmap.
In context ↗ - extra sleep · Helped
I think it helped me with my symptoms at that time.
In context ↗ - FODzyme · Helped
I found help with supplements (DAO, FODzyme, lactaid)
In context ↗ - advil (NSAIDs) · Helped
Sometimes i can get some level of temporary relief from advil
In context ↗ - CoQ10 · Not said
I take CoQ10, b12, biotin, occasionally magnesium, occasionally omega 3.
In context ↗ - lumbar support pillow · Helped
A lumbar support pillow did help a little bit
In context ↗ - neck pillow · Not said
I’m not sure how much it’s helping.
In context ↗ - q-tip scratching inside the ear · Helped
just tried this for two seconds, and while it wasn’t a strong effect, I did get some of that relief sensation you described
In context ↗ - CBD gummy · Worse
I tried a CBD gummy hoping it would be able to bring down my nervous system. It didn’t do that
In context ↗ - vitamin C supplements · Worse
so many high vitamin C foods cause a reaction (and I find supplements do too)
In context ↗
Approaches: Antihistamines & MCAS · Antivirals · Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| June 2024 | COVID infection, long COVID beganGot infected at the end of June 2024 and have had LC symptoms sinceIn context ↗ | Mild | |
| December 2024 | COVID reinfection halted slow healingI just tested positive again.In context ↗ | Mild | |
| March 2025 | had to stop working, much of the day in bedI’m not severe but it’s bad enough that I’ve had to stop working. ... I spend so much of my day laying in bed.In context ↗ | Moderate | |
| March 2025 | diet change eased symptomseating a low histamine (and plant based and low glycemic) diet has been the biggest help in all my symptomsIn context ↗ | Moderate | Low-histamine diet |
| October 2025 | brain fog and memory better than at worstmy brain fog/memory has improved from how bad it once wasIn context ↗ | Moderate | Low-histamine diet |
| January 2026 | new chronic headache with light and sound sensitivityIn the past 2-3 weeks I’ve been dealing with a new symptom which is a chronic headache.In context ↗ | Moderate | |
| September 2026 | still ill with histamine intolerance and SIBOWith histamine intolerance and SIBO, its actually surprisingly hard to get because so many high vitamin C foods cause a reactionIn context ↗ | Moderate |
Adverse events
- Famotidine (Pepcid)“I had to stop taking pepcidAC because im pretty sure it gave me SIBO” In context ↗ Gut side effects
- CBD (cannabidiol)“after i took it I woke up in the middle of the night and it felt like there was “tv static” in my vision. nothing too serious but kind of scary and weird.” In context ↗ Side effects
- COVID vaccination as treatment“I got the booster and it had no effect either way. Just some tiredness for a day.” In context ↗ Side effects
- Vitamin C“so many high vitamin C foods cause a reaction (and I find supplements do too)” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsGut problemsHair lossHeadaches & migraineLight & noise sensitivityMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
I’ve had LC for over a year now and I do get PEM.
In context ↗ - Brain fog
my brain fog/memory has improved from how bad it once was
In context ↗ - POTS & dysautonomia
random raised heart rate
In context ↗ - Sleep problems
I can often struggle to get 8 hours of sleep. My body just wakes me up.
In context ↗ - Headaches & migraine
In the past 2-3 weeks I’ve been dealing with a new symptom which is a chronic headache.
In context ↗ - Light & noise sensitivity
sensitive to music and screens
In context ↗ - Gut problems
I’m just always bloated anyways.
In context ↗ - Mast cell (MCAS) & allergies
With histamine intolerance and SIBO, its actually surprisingly hard to get because so many high vitamin C foods cause a reaction
In context ↗ - Pain & fibromyalgia
Without it I get more pain, more brain fog, higher HR, etc.
In context ↗ - Anxiety & low mood
I feel in a dark place.
In context ↗ - Flu-like symptoms
I do get a lot of cold/flu like symptoms when I get PEM.
In context ↗ - Hair loss
I do think Covid has made my hair thin.
In context ↗
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