Long COVID
Mild → no benefitIll for 3 years
Long COVID, brain fog, migraine and pain; still ill every waking moment, tried clonidine
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- Jul 2026
In their words
- Condition: Long COVID
since I first got covid at the end of 2020 I have not been the same
In context ↗ - At worst: Mild
I have so many accommodations for college and still could not follow them because I feel ill every waking moment of my life.
In context ↗ - Now: No benefit
I have been in the ER numerous times with same issue. RHR from 90 to 160+
In context ↗ - Began after: COVID
since I first got covid at the end of 2020 I have not been the same
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Sequoia 19192, 25, fell ill with long COVID in Oregon at the end of 2020 and three years on still felt ill every waking moment, unable to follow her college accommodations. She listed migraine, brain fog, insomnia, pain, palpitations and light and noise sensitivity, and lost taste and smell for over a year. A second infection put her in hospital; ER visits for heart rates over 160 led to clonidine, which helped while she waited for answers.
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What they tried
Also tried
clonidine· Helped a lotVitamin B12· Helped a lotmetoprolol· HelpedB Complex· No changeeating healthier / anti-inflammatory foods· Not saidexercising· Not saidintermittent fasting· Not said
Their words about each treatment
- eating healthier / anti-inflammatory foods · Not said
I have been eating healthier for about three months
In context ↗ - exercising · Not said
been exercising consistently for about a month now
In context ↗ - intermittent fasting · Not said
I do intermittent fasting but not everyday
In context ↗ - metoprolol · Helped
I was given metoprolol each time in the hospital and brought it down to 90-100 RHR
In context ↗ - clonidine · Helped a lot
However clonidine has helped tremendously while I wait for answer
In context ↗ - Vitamin B12 · Helped a lot
Vitamin B12 has brought me back my life.
In context ↗ - B Complex · No change
Or! You won't feel any change at all. This happens to me all of the time.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| end of 2020 | COVID-19; never the same afterwardssince I first got covid at the end of 2020 I have not been the sameIn context ↗ |
| 2023-12-21 | chronic long COVID symptoms, graduating college with accommodations she could not followI have so many accommodations for college and still could not follow them because I feel ill every waking moment of my life.In context ↗ |
| 2024-01-05 | heart rate up to 160+, ER visits, heart monitor; clonidine lowered resting rate, still awaiting diagnosisHowever clonidine has helped tremendously while I wait for answer.In context ↗ |
Adverse events
- “just recently doing anti-inflammatory (unfortunately this has made me ocd about food)” In context ↗ Mood or psychiatric effects
- Clonidine“RHR has been low (almost too low so need to have them lower the dose) like 60-70 (has dropped to 47-59)” In context ↗ Heart rhythm problems
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityLoss of smell or tasteNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Headaches & migraine
headaches/migraines
In context ↗ - Brain fog
brain fog, minimal concentration, memory loss
In context ↗ - Sleep problems
insomnia, or hypersomnia
In context ↗ - Anxiety & low mood
severe anxiety, depression
In context ↗ - Pain & fibromyalgia
muscle pain, joint pain
In context ↗ - Heart symptoms & palpitations
tachycardia, constant heart palpitations
In context ↗ - POTS & dysautonomia
Had to call ambulance once because I almost fainted, HR was 130+ and paramedics got a BP reading of 55/47.
In context ↗ - Neuropathy & tingling
numbness and tingling
In context ↗ - Light & noise sensitivity
can’t stand loud noise or light
In context ↗ - Loss of smell or taste
it took over a year to gain my taste/smell back
In context ↗