Long COVID with brain fog, better on low-carb diet then relapsed after reinfection
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2025
In their words
- At worst: Mild
previously I had to work from home for periods
In context ↗ - Now: Relapsed
Keep digging my way out of the black hole that is LC only to be pulled back in with every reinfection
In context ↗ - Began after: COVID
LC since 21
In context ↗
Read from 20 of their posts and comments; links to the 14 this page draws on
Summary
Fox 70387 has had ME/CFS since 2013 and long COVID since a 2021 infection, with further reinfections in 2023 and three more in late 2025. Symptoms included unrefreshing sleep, palpitations, blood pooling, tinnitus, brain fog, gut problems and erectile dysfunction. They kept working full time, said niacin, lumbrokinase and resveratrol helped their night-time waking and famotidine their burning skin, and credited a low-carb diet for gains, but relapsed after each reinfection.
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What they tried
What they credit
Also tried
Their words about each treatment
- pancreatic enzymes · Helped
Took enzymes to help and it eventually sorted itself out.
In context ↗ - flush niacin · Helped a lot
Flush niacin helped massively with this symptom. Haven't had it on my second long haul thankfully.
In context ↗ - Tollovid · Helped a lot
Tried it on my first round of LC and worked a treat, got rid of my dizziness and bulging veins etc.
In context ↗ - blood pressure supplement that increases NO (Numan or similar) · Helped
a blood pressure supplement that increases NO (camt remember the name)
In context ↗ - lumbrokinase · Helped
Things that helped were niacin and a blood pressure supplement that increases NO (camt remember the name) , lumbrokinase and reservatrol.
In context ↗ - probiotics · Helped
Gut is much better than initial infection but I am still taking a shit ton of herbs and probiotics from my recovery so that is probably why.
In context ↗ - low carb diet · Helped a lot
have found low carb diets to be amazing
In context ↗ - CPAP · Worse
I was having my worst sleeps ever on Cpap, diagnosed with mild sleep apnea after sleep study for LC.
In context ↗ - famotidine · Helped
Burning skin was off the charts the last couple of weeks but seems to be calming down on famatodine again.
In context ↗ - BPC 157 · Not said
I have just started BPC 157 to try and address the leaky gut
In context ↗ - yoga nidra · Helped
Also found yoga nidra helped, 10 minute session before bed helped calm nervous system down.
In context ↗ - Paxlovid · No change
5 day course after my second acute infection did bugger all to stop my second bout of LC.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 8 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2013 | came down with ME/CFSas have ME/CFS since 2013In context ↗ | Not stated |
| 2021 | COVID infection led to first long COVID; ED visits and spells working from homemy first long haul though which saw me in ED a few timesIn context ↗ | Mild |
| February 2023 | reinfection triggered second long haulnow on my second after reinfection in FebIn context ↗ | Mild |
| December 2023 | long haul returned after November infectioninfected in November was fine after acute phase then just before Christmas bang long haul back with a bangIn context ↗ | Mild |
| December 2024 | improved blood flow and sleeping well on blood-flow supplements including daily niacinWithin a few days I noticed improved blood flow.In context ↗ | Mild |
| December 2025 | three more infections since August; still long hauling with low T cellsI have had it 3 times since August, LC since 21.In context ↗ | Mild |
Adverse events
- CPAP and sleep apnoea treatment“I was having my worst sleeps ever on Cpap ... as was waking up every night and tearing the mask off.” In context ↗ Insomnia from treatment
- Meditation, yoga, breathwork“When I first start that my body couldn't relax at all, was twitching and jumping as I lay there, after about a week noticed it was more relaxed.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Would wake up as soon as I started to fall asleep with body in fight or flight mode
In context ↗ - Brain fog
Small bit of brain fog.
In context ↗ - Tinnitus
some minor palpitations, tinnitus, floaters
In context ↗ - Breathlessness
small bit of SOB
In context ↗ - Heart symptoms & palpitations
some minor palpitations
In context ↗ - POTS & dysautonomia
Blood pooling in hands and feet is same as initial infection.
In context ↗ - Neuropathy & tingling
Burning skin was off the charts the last couple of weeks
In context ↗
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