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Long COVID Severe → somewhat betterIll 2.5 years before improving or writing

Long COVID with brain fog, still ill but somewhat better with fasting and ice baths

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2.5 years
Last post
Aug 2022
In their words
  • Condition: Long COVIDI developed my first symptoms months before the vaccine became available and after I had very mild Covid In context ↗
  • At worst: SevereThen I lay down in bed and wouldn't eat, would hardly speak even, for about five or six weeks. In context ↗
  • Now: Somewhat betterI have seen my condition improve. Mental function is coming back, less brain fog, fewer spells of falling and weakness In context ↗
  • Began after: COVIDI developed my first symptoms months before the vaccine became available and after I had very mild Covid, with a low fever, diarrhea, a sniffle and sore throat. In context ↗
Read from 15 of their posts and comments; links to the 10 this page draws on

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Summary

They fell ill with long COVID after a mild infection, with brain fog, headaches, joint pain, tinnitus, hearing loss and months of anxiety and terror. A train trip across Texas left them much worse, with rheumatoid arthritis and memory loss. Arthritis pills relieved the joint pain and propranolol ended the terror; fasting and ice baths brought some improvement. Two and a half years on they were still ill and undiagnosed.

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What they tried

Their words about each treatment
  • dawn to dusk fasting · Helpedfasting after my morning biscotti and espresso until sunset every day In context ↗
  • ice baths · HelpedTaking ice baths and dawn to dusk fasting seems to help slightly. In context ↗
  • propranolol · Helped a lotI asked my psychiatrist for it. It works immediately and is very effective. In context ↗
  • multivitamin · HelpedLately I started to take a multivitamin and have seen the numb hands thing decrease In context ↗

Approaches: Alternative therapies · Diet

Their path

Very severeSevereModerateMildNear normalRecovered18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 15 months after onset: the story doesn’t say how ill they were before that. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetlong COVID began after a mild COVID infection, before vaccines existedI developed my first symptoms months before the vaccine became available and after I had very mild Covid, with a low fever, diarrhea, a sniffle and sore throat. In context ↗Not stated
2021much worse after a train trip across Texas; agonising arthritis and memory impairmentmy condition worsened substantially after a train trip across Texas when suddenly a lot of people getting on were coughing a lot. In context ↗Moderate
early 2022five or six weeks in bed, barely eating or speaking, after arthritis and worsening symptomsThen I lay down in bed and wouldn't eat, would hardly speak even, for about five or six weeks. In context ↗Severe
2022arthritis medication made the hand and joint pain 95-100% gonethe pills make it feel 95-100% gone In context ↗Moderate
mid-2022propranolol ended months of anxiety and terror; fear still gone three months laterMy psychiatrist prescribed it to me for the anxiety and it alleviated it. After that, the terror went away and she took me off of it. In context ↗ModeratePropranolol (Inderal)
August 2022some improvement with fasting, ice baths and masking; still ill and undiagnosed after two and a half yearsI have seen my condition improve. Mental function is coming back, less brain fog, fewer spells of falling and weakness In context ↗ModerateIntermittent fasting

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineI've seen the headaches, joint pain, fatigue and brain fog come back for the last week In context ↗
  • Pain & fibromyalgiaAgonizing arthritis and more neurological damage with memory impairment. In context ↗
  • Tinnitusincluding tinnitus in one ear with some hearing loss In context ↗
  • Anxiety & low moodI had increasing anxiety and terror for about five months. Then it stopped. In context ↗
  • Muscle weaknessfewer spells of falling and weakness In context ↗
  • Neuropathy & tinglinghave seen the numb hands thing decrease In context ↗
  • POTS & dysautonomiaI have all the symptoms of some sort of autoimmune disorder that causes autonomic neuropathy In context ↗

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