Long COVID with joint instability and neuropathy, now somewhat better
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Jun 2022
In their words
- Condition: Long COVID
I’m only now realizing this might be Covid related.
In context ↗ - At worst: Mild
I only swim now for exercise.
In context ↗ - Now: Somewhat better
The crazy joint stuff has gotten much better but still flairs up from time to time.
In context ↗ - Began after: COVID
3 months after getting Covid all of this stuff started happening.
In context ↗ - Says they never had: Anxiety & low mood
I’m not really a hypochondriac nor do I struggle with depression/Anxiety.
Summary
A fit woman in her late 30s fell ill three months after Covid in 2020 with joint instability and pain; a second wave after her Pfizer vaccine brought vascular changes, neuropathy, blood-pressure swings, blurred vision and memory loss. Two years on, joint symptoms had much improved but still flared, while vascular symptoms and neuropathy drifted mildly downhill. She swam for exercise and ate a largely anti-inflammatory diet.
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What they tried
Also tried
Their words about each treatment
- swimming · Not said
I only swim now for exercise.
In context ↗ - 90% anti-inflammatory diet · Not said
I've been on an 90% anti-inflammatory diet.
In context ↗ - COVID vaccination as treatment · Worse
Started to get better then the second wave came 3 months after my Pfizer vaccine.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | Symptoms began three months after Covid3 months after getting Covid all of this stuff started happening.In context ↗ | Mild |
| — | Started to get betterStarted to get betterIn context ↗ | Mild |
| 2021 | Second wave of symptoms three months after Pfizer vaccinethe second wave came 3 months after my Pfizer vaccineIn context ↗ | Mild |
| June 2022 | Joint symptoms much better but flare; vascular and neuropathy slowly drifting downhillThe crazy joint stuff has gotten much better but still flairs up from time to time.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“Started to get better then the second wave came 3 months after my Pfizer vaccine.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Loose painful joints / Joint instability ALL OVER. Cracking, snapping, clicking and stabbing pain subluxations.
In context ↗ - POTS & dysautonomia
Blood pressure fluctuations from super high to super low
In context ↗ - Neuropathy & tingling
Neuropathy pain in my toes
In context ↗ - Temperature regulation
Sweaty cold clammy feet
In context ↗ - Vision problems
Blurry vision on and off in one eye
In context ↗ - Brain fog
Fatigue and memory loss
In context ↗