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Long COVID Mild → somewhat betterIll 2 years before improving or writing

Long COVID with joint instability and neuropathy, now somewhat better

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
2 years
Last post
Jun 2022
In their words
  • Condition: Long COVIDI’m only now realizing this might be Covid related. In context ↗
  • At worst: MildI only swim now for exercise. In context ↗
  • Now: Somewhat betterThe crazy joint stuff has gotten much better but still flairs up from time to time. In context ↗
  • Began after: COVID3 months after getting Covid all of this stuff started happening. In context ↗
  • Says they never had: Anxiety & low moodI’m not really a hypochondriac nor do I struggle with depression/Anxiety.
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A fit woman in her late 30s fell ill three months after Covid in 2020 with joint instability and pain; a second wave after her Pfizer vaccine brought vascular changes, neuropathy, blood-pressure swings, blurred vision and memory loss. Two years on, joint symptoms had much improved but still flared, while vascular symptoms and neuropathy drifted mildly downhill. She swam for exercise and ate a largely anti-inflammatory diet.

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What they tried

Also tried

COVID vaccination as treatment· Worseswimming· Not said90% anti-inflammatory diet· Not said
Their words about each treatment
  • swimming · Not saidI only swim now for exercise. In context ↗
  • 90% anti-inflammatory diet · Not saidI've been on an 90% anti-inflammatory diet. In context ↗
  • COVID vaccination as treatment · WorseStarted to get better then the second wave came 3 months after my Pfizer vaccine. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2020Symptoms began three months after Covid3 months after getting Covid all of this stuff started happening. In context ↗Mild
—Started to get betterStarted to get better In context ↗Mild
2021Second wave of symptoms three months after Pfizer vaccinethe second wave came 3 months after my Pfizer vaccine In context ↗Mild
June 2022Joint symptoms much better but flare; vascular and neuropathy slowly drifting downhillThe crazy joint stuff has gotten much better but still flairs up from time to time. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaLoose painful joints / Joint instability ALL OVER. Cracking, snapping, clicking and stabbing pain subluxations. In context ↗
  • POTS & dysautonomiaBlood pressure fluctuations from super high to super low In context ↗
  • Neuropathy & tinglingNeuropathy pain in my toes In context ↗
  • Temperature regulationSweaty cold clammy feet In context ↗
  • Vision problemsBlurry vision on and off in one eye In context ↗
  • Brain fogFatigue and memory loss In context ↗

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