Bedridden with long COVID, now much better as spike antibodies fell
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Jul 2025
In their words
- Condition: Long COVID
I started believe I got long haulers from the vaccine.
In context ↗ - At worst: Severe
I was basically bedridden October/November 2022. That was the worst of the whole experience.
In context ↗ - Now: Much better
the pots syndrome/dysautonomia improved and is basically a non issue now ... Brain fog, exhaustion, still have head pains here and there
- Began after: a vaccination
I got dysautonomia and ndph after Pfizer shot.
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
After a second Pfizer dose in May 2021, this user developed a daily headache three months later, then dysautonomia, cardiac symptoms and 2.5 months of diarrhoea; they were bedridden by late 2021 and again, worse, in late 2022. Steroids made everything worse. They credit the slow fall in spike antibodies, monitored from 2021 to 2025, with the headache largely clearing by summer 2023 and dysautonomia improving within months, leaving brain fog, exhaustion, gut problems and blips.
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What they tried
What they credit
Also tried
Their words about each treatment
- midrin · No change
my migraine medicine, midrin, wasn't really helping
In context ↗ - Motrin · Not said
I had been taking Motrin after midrin didn't work
In context ↗ - b.r.a.t. diet · No change
not even the b.r.a.t. diet was helping
In context ↗ - ketalorac · Not said
They gave me ketalorac IV
In context ↗ - medrol dose pack · Much worse
THE MEDROL MADE EVERYTHING WORSE. ... by day two all my cardiac symptoms started
In context ↗ - zofran · Helped a lot
She gave me zofran which cured my nausea and dizziness ... Tylenol, zofran helped me the most
- extra strength Tylenol · Helped
I had found some minor relief with extra strength Tylenol ... Tylenol, zofran helped me the most
- nurtec · No change
We tried nurtec- did nothing.
In context ↗ - Ativan · Not said
I was still only using Tylenol extra strength, zofran, Ativan and ketalorac for emergencies only.
In context ↗ - stretching and bridge exercises · Helped
I was able to start stretching and discovered doing a bridge gave me relief
In context ↗ - strict diet and caffeine intake · Not said
I kept a strict diet and caffeine intake.
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021-08-17 | daily headache began three months after second Pfizer shotthe headache started unforgettably 8-17-21In context ↗ | Mild |
| October/November 2021 | bedridden with pain and cardiac symptoms after a Medrol dose packI was basically bedridden October/November 2022. That was the worst of the whole experience.In context ↗ | Severe |
| March 2022 | some relief; no longer bedridden; heart rate starting to normaliseI didn't start feeling any relief until march-ish 2022. ... I wasn't bedridden any longer.In context ↗ | Moderate |
| June 2022 | relapse with painI felt like I relapsed with pain in June 2022.In context ↗ | Moderate |
| summer 2023 | pain-free days and feeling normal as spike antibodies fellI finally started feeling normal with pain free days summer 2023.In context ↗ | Mild |
| 2025-07-15 | dysautonomia basically resolved; residual brain fog, exhaustion, gut problems and blipsI still have blips here and there and some things haven't been the same since... Like my memory and my digestion. But no pain.In context ↗ | Mild |
Adverse events
- Corticosteroid pulses“THE MEDROL MADE EVERYTHING WORSE.” In context ↗ Made symptoms worse
- Corticosteroid pulses“After taking medrol, by day two all my cardiac symptoms started. ... Well those cardiac symptoms would stay with me until march-ish 2022.” In context ↗ Heart rhythm problems
- Corticosteroid pulses“I was given medrol dose pack and that (kinda like ur issue with antibiotics) is what jumpstarted the dysautonomia. ... even after I discontinued the medrol and weeks went by, the pots symptoms worsened.” In context ↗ Made symptoms worse
- Corticosteroid pulses“Also steroids made my situation so much worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
still have head pains here and there
In context ↗ - Brain fog
I have weird stuff now like extreme brain fog and right watery eye.
In context ↗ - Gut problems
I have alternating diarrhea and constipation to this day.
In context ↗ - POTS & dysautonomia
I still have times where for ten seconds or so I feel like I'm blacking out when I stand
In context ↗ - Heart symptoms & palpitations
my hearts beating faster than it should standing/stair climbing/exercising
In context ↗ - Pain & fibromyalgia
extreme hip/back/leg joint/bone/muscle pains
In context ↗ - Neuropathy & tingling
electric zap pains internally in my brain
In context ↗ - Vision problems
I had visual disturbances with my head pain
In context ↗ - Light & noise sensitivity
cutaneous allodynia
In context ↗ - Temperature regulation
feeling feverish
In context ↗
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