Long COVID with POTS, fainting and fatigue, now hiking, dancing and working again
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2.5 years
- Last post
- Mar 2026
In their words
- Condition: Long COVID
i have had long covid for 2.5 years
In context ↗ - Now: Recovered
i'm hiking, dancing, been on unforgettable holidays, working again
In context ↗ - Began after: COVID
i have covid four times, the tinnitus stuck with me from the second
Read from 18 of their posts and comments; links to the 13 this page draws on
Summary
Falcon 52988 had long COVID for 2.5 years with POTS, fainting, palpitations, insomnia, extreme fatigue, rashes and tinnitus. Three months before November 2024 they began a self-made plan: Alan Gordon's The Way Out, somatic therapy, sleep CBT, new exercise forms and propranolol. Fatigue eased within two weeks; they walked 17,000 steps that November and by January 2026 were hiking, dancing and working again, though not fully recovered; a break-up on NYE 2024 had triggered an extreme emotional and adrenaline reaction.
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What they tried
What they credit
Also tried
Their words about each treatment
- white noise track ('white noise baby sleep') · Helped
spotify has an 8 hour track called ‘white noise baby sleep’ - that’s what got me through :)
In context ↗ - Alan Gordon's 'The Way Out' techniques / corrective experiences · Helped a lot
once i applied his techniques i was able to exercise even with fatigue and i stopped getting PEM
In context ↗ - somatic therapist · Helped
seeing a somatic therapist who does in depth sessions where i listen to my body ‘bottom up’
In context ↗ - craniosacral therapy · Helped
3 craniosacral sessions with a very experienced therapist also got me off to a really good start
In context ↗ - insomnia specific CBT with sleep prioritisation · Not said
insomnia specific CBT and putting sleep as my absolute priority
In context ↗ - omega 3 · Not said
which has left me only taking omega 3, iron and multivitamins
In context ↗ - iteratively expanding exercise with new forms · Helped
I had to iteratively expand my comfort zone with exercise
In context ↗ - propranolol · Helped a lot
taking propranolol as part of my journey super helped with the whole adrenalin thing
In context ↗ - diet change (slow release foods, no processed sugar or alcohol) · Helped
Diet change - focus on slow release foods, cut out processed sugar and alcohol
In context ↗ - deliberately under-stimulating life · Helped
Under stimulation - curating a life that is DELIBERATELY under stimulating.
In context ↗ - moving to a rural part of the UK · Not said
i now live in a completely different part of the UK, as I realised that this more rural location was the right path for me
In context ↗
Approaches: CBT & mindset · Alternative therapies · Beta-blockers · Brain retraining · Physiotherapy and rehab
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.2 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID after repeated COVID infectionsi have had long covid for 2.5 yearsIn context ↗ | Not stated | |
| June/July 2024 | lowest point, barely able to walkin june/july of this year i could barely walk a kmIn context ↗ | Moderate | |
| around August/September 2024 | fatigue began easing two weeks into recovery plani’d say about 2 weeks i noticed that there fatigue was less, then it’s been an upwards trajectory since thenIn context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
| 2024-11-09 | first hike, 17,000 stepstoday i managed 17,000 steps through gorgeous woodlandIn context ↗ | Mild | Sarno / TMS / somatic tracking / JournalSpeak |
| NYE 2024/2025 | extreme emotional reaction after break-up on NYEi experienced a break up on NYE of a long term relationship and my embodied reaction this was definitely EXTREMEIn context ↗ | Mild | |
| 2026-01-18 | hiking, dancing, holidays, working again, gym circuitsi’m hiking, dancing, been on unforgettable holidays, working againIn context ↗ | Recovered |
Adverse events
- Propranolol (Inderal)“only side effects were me is it can make you a bit cold in your extremities, makes the inside of your nose smell a bit funky, and i get some phlegm when i’m on it” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Tinnitus
now it only happens when i’m REALLLLLY tired or highly anxious
In context ↗ - POTS & dysautonomia
i used to have pots yes, it has dramatically improved now!
In context ↗ - Post-exertional malaise
once i applied his techniques i was able to exercise even with fatigue and i stopped getting PEM
In context ↗ - Sleep problems
i did used to get POTS, PEM, also seizures, insomnia, extreme fatigue, body rashes
In context ↗ - Heart symptoms & palpitations
i got palpitations upon standing where it was so loud
In context ↗ - Breathlessness
i do not get breathless doing physical activity
In context ↗ - Anxiety & low mood
couple of anxiety spikes occurred and i lay down on trees and rode the wave
In context ↗
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