ME/CFS with brain fog and fatigue, somewhat better after hormone therapy and supplements
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Nov 2022
In their words
- Condition: ME/CFS
some of my ME symptoms also improved once I started hrt
In context ↗ - Now: Somewhat better
I'm trans and starting HRT has definitely helped with some ME symptoms.
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Bramble 59865, who has ME/CFS, said starting gender-affirming hormone therapy was the best thing that ever happened to them, improving wellbeing, brain fog and some ME symptoms. Supplements including probiotics, fibre, electrolytes, CoQ10, alpha-lipoic acid and carnitine helped GI issues, POTS, fatigue, PEM and muscle pain; quercetin with bromelain, thiamin and nattokinase possibly helped histamine intolerance, fatigue and brain fog. Methylphenidate helped quite a bit.
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What they tried
What they credit
Also tried
Their words about each treatment
- HRT (hormone therapy) · Helped a lot
honestly, hormone therapy is the best thing that's ever happened to me, both for my general wellbeing and for my ME symptoms
In context ↗ - Probiotics · Helped
Probiotics: GI issues
In context ↗ - Fiber (2×700mg Psyllium husk) · Helped
Fiber (2×700mg Psyllium husk): GI issues
In context ↗ - Electrolytes (400mg Magnesium + increased salt intake) · Helped
Electrolytes (400mg Magnesium + increased salt intake): frequent urination and POTS
In context ↗ - CoQ10 · Helped
200mg CoQ10 + 500mg α-lipoic acid + 500mg L-carnitine: fatigue, PEM, brain fog and myalgia
In context ↗ - liposomal Quercetin + Bromelain · Helped
800mg liposomal Quercetin + 100mg Bromelain: histamine intolerance and fatigue
In context ↗ - Thiamin · Helped
250mg Thiamin: fatigue, myalgia and brain fog
In context ↗ - Niacin · Helped
250mg Niacin: fatigue and brain fog
In context ↗ - Nattokinase · Helped
2×100mg Nattokinase: fatigue and brain fog
In context ↗ - Methylphenidate · Helped
Methylphenidate has helped me quite a bit. I tolerate it much better than caffeine.
In context ↗ - caffeine · Not said
I tolerate it much better than caffeine.
In context ↗
Approaches: Amino acids and carnitine · Anticoagulants · Sex hormones · Stimulants · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | Living with ME symptomsI used to have plural identities, but all alters suffered equally from ME symptoms.In context ↗ | |
| 2022-02-09 | Started HRT; some ME symptoms improvedsome of my ME symptoms also improved once I started hrtIn context ↗ | Hormone replacement therapy (HRT) |
| 2022-06-25 | Credited hormone therapy for wellbeing and ME symptomshormone therapy is the best thing that's ever happened to me, both for my general wellbeing and for my ME symptomsIn context ↗ | Hormone replacement therapy (HRT) |
| 2022-09-11 | Supplement stack helped GI issues, POTS, fatigue, PEM, brain fog and myalgia200mg CoQ10 + 500mg α-lipoic acid + 500mg L-carnitine: fatigue, PEM, brain fog and myalgiaIn context ↗ | |
| 2022-11-25 | Methylphenidate helped quite a bitMethylphenidate has helped me quite a bit. I tolerate it much better than caffeine.In context ↗ | Methylphenidate (Ritalin, Concerta) |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
fatigue, PEM, brain fog and myalgia
In context ↗ - Brain fog
alleviated brain fog to some extent
In context ↗ - POTS & dysautonomia
frequent urination and POTS
In context ↗ - Gut problems
Probiotics: GI issues
In context ↗ - Mast cell (MCAS) & allergies
histamine intolerance and fatigue
In context ↗
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