Long COVID, at one point unable to stand, much better on propranolol
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Jul 2023
In their words
- Condition: Long COVID
Was diagnosed with LC and have learned quite bit since then.
In context ↗ - At worst: Severe
Couldn’t even stand up.
In context ↗ - Now: Much better
It’s been 5 months and I’m doing much better now. Not back to normal by any means but definitely improving and can somewhat live my life again.
In context ↗ - Began after: COVID
Prior to covid I never had any major health issue.
Read from 9 of their posts and comments; links to the 6 this page draws on
Summary
Dove 12891 developed long COVID after COVID in 2021, with breathlessness, tachycardia on standing, gut problems and legs going numb when leaning forward. A third reinfection left their heart rate at 170 on standing; at one point they could not stand up. Propranolol 10 mg three times a day, started in February 2023, let them stand, cook and drive again, and by July 2023 they said they were much better though not back to normal.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- physical therapy · No change
Went to physical therapy and my body was severely out of alignment. Wasn’t able to correct it
In context ↗ - acid reducer · Worse
I was on an acid reducer for a month and it just jacked up my stomach.
In context ↗ - propranolol · Helped
I’m taking 10mg of propranolol 3 times a day. I can now stand up, make food for myself and I’ve even started driving a couple times.
In context ↗ - CBD oil (equalibria, mint flavour) · Helped
The one I use is called equalibria (the mint flavor). ... So that’s what I’ve found to be helpful for me with medication.
In context ↗ - melatonin gummies · Helped
Lastly I would take some melatonin gummies. See if that can help get you to sleep. ... So that’s what I’ve found to be helpful for me with medication.
In context ↗ - miralax · Helped
I also take miralax and famotadine to help with the stomach stuff. I’m not 100% sold those are exactly what my body needs but it’s helped somewhat.
In context ↗
Approaches: Beta-blockers
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | COVID infection; tachycardia diagnosedPrior to covid I never had any major health issue. It’s amazing how fast your life can be turned upside down.In context ↗ | Not stated | |
| 2022 | third reinfection; heart rate 170 on standing, could not stand upMy 3rd reinfection my symptoms we’re absolute hell. Heart rate to 170 anytime id stand.In context ↗ | Severe | |
| 2023-02-15 | could stand, make food and drive again on propranololI can now stand up, make food for myself and I’ve even started driving a couple times.In context ↗ | Moderate | Propranolol (Inderal) |
| 2023-07-11 | much better, still not back to normalIt’s been 5 months and I’m doing much better now. Not back to normal by any means but definitely improving and can somewhat live my life again.In context ↗ | Mild | Propranolol (Inderal) |
Adverse events
- “I was on an acid reducer for a month and it just jacked up my stomach. ... it took 8 months to get back to normal” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Breathlessness
Can’t get a full breath.
In context ↗ - POTS & dysautonomia
Elevated heart rate when I stand.
In context ↗ - Heart symptoms & palpitations
Was diagnosed with tachycardia in May of 2021.
In context ↗ - Gut problems
Constantly burping the entire day.
In context ↗ - Neuropathy & tingling
If I lean forward my legs go numb
In context ↗ - Sleep problems
when I would go to sleep I’d be suddenly woken up as I drifted off
In context ↗
Ask Miruvor AI
Similar stories
-
Housebound or bedbound with ME/CFS, improved then relapsed after propranolol and LDN
After several viruses in 2019 she worsened from mild to moderate-severe ME/CFS, with ADHD stimulants, work and social overexertion driving crashes. She stopped work in December 2025 and was housebound or bedbound for nine months. Propranolol 40 mg lifted her…
-
Mostly bedbound for years with ME/CFS, now much better after Abilify and propranolol
They fell ill in June 2020 after a post-operative infection and spent years mostly bedbound, leaving the house once every couple months. Starting high-dose Abilify for psychosis in 2025, then raising propranolol for POTS and adding buspirone and clonidine,…
-
Bedbound with severe ME/CFS, now moving toward moderate with pacing and LDN
Ill with ME/CFS since a viral infection at age 8 in 2012, they fluctuated between mild and moderate/severe for over a decade. A virus in early 2025 dropped them from near remission to severe and bedbound, with worse POTS and suspected MCAS. Low-dose…
-
Bed-bound then couch-bound with long COVID, now much better with pacing and therapy
A Dutch woman in her mid-30s developed ME/CFS-type long COVID after a reinfection; she spent January 2025 in bed and February couch-bound. Propranolol, which she takes for POTS-related tachycardia, made a huge difference in getting her upright rather than…