Long COVID
Moderate → somewhat betterIll 19 months before improving or writing
Long COVID nerve pain and fatigue, somewhat better with probiotics and low-dose naltrexone
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 19 months
- Last post
- May 2025
In their words
- Condition: Long COVID
I also have long covid. Got covid in october 2023.
In context ↗ - At worst: Moderate
ive been resting a lot, avoided physical activities.
In context ↗ - Now: Somewhat better
despite the much better gut health, still heavily histamine intolerant
In context ↗ - Began after: COVID
an asymptomatic colleague pass me covid
Read from 17 of their posts and comments; links to the 15 this page draws on
Summary
A 43-year-old caught covid in October 2023 and developed headaches, fatigue, foamy urine and nerve pain over the following months, with a suspected Yersinia gut infection, a VZV reactivation and courses of antibiotics along the way. Probiotics greatly improved gut health and aspirin, garlic and low-dose naltrexone eased some symptoms. They remained heavily histamine intolerant with MCAS and their nerve pain was spreading.
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What they tried
What they credit
Also tried
antibiotics· Helpedcooling down the hand· Helpedxanax· Helpedquercetin· Helpedhesperidin, diosmin· Helpedspermidin· Helpedlysine· Helpedlactoferrine· Helpedmagnesium glicinate· Helpedzinc picolinate· HelpedLDN· Helpednatto· WorseNattokinase· Worsehot water with salt· Much worseresting a lot, avoided physical activities· Not saidvit d3· Not saidomega3· Not saidechinachea drops· Not saidmultivitamin· Not saidcut the dairy· Not said
Their words about each treatment
- probiotics · Helped a lot
yes i’m doing probiotics, that have helped me immensely
In context ↗ - resting a lot, avoided physical activities · Not said
ive been resting a lot, avoided physical activities.
In context ↗ - antibiotics · Helped
I have also taken doxycicline, which has helped me a lot, but i felt it wasnt curing anything
In context ↗ - vit d3 · Not said
I used to take vit d3, omega3, other stuff, but at some point i started to fear they were the problem and stopped everything.
In context ↗ - garlic · Helped
It did help. Adding a lot of it in food. not sure how, though.
In context ↗ - hot water with salt · Much worse
I try that and it makes me feel much much worse.
In context ↗ - cooling down the hand · Helped
cooling down that finger (and the whole hand) in fact makes me feel much better, and even takes away temporarily the urine foam.
In context ↗ - natto · Worse
I have been eating natto but i feel it actually makes me feel a bit worse
In context ↗ - aspirin · Helped
But aspirin helps. I take 100 mg before sleep and haven't had those issues since although it's far from peaceful sleep
In context ↗ - xanax · Helped
Plus one 100mg aspirin with some xanax in the evening that seem to help
In context ↗ - echinachea drops · Not said
Rn i am taking 100mg aspirin per day, some echinachea drops, xanax to sleep and 1 multivitamin.
In context ↗ - multivitamin · Not said
a few days ago i restarted 1x multivitamin per day
In context ↗ - cut the dairy · Not said
I currently cut the dairy as i was afraid calcium could cause problems.
In context ↗ - quercetin · Helped
it seems that my kidney status has slightly improved although it's too early to tell.
In context ↗ - LDN · Helped
And apparently LDN helps to turn the foam off, too. I have to find lower dose tho, because 0.5 is not making me sleep
In context ↗
Approaches: Anticoagulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023.10 | caught covid; fever, weight loss, slept and sweated a lot3.5 days later all of a sudden i got the fever etc. The heavy symptoms lasted one weekIn context ↗ | Moderate | |
| 2023.11 | headaches began, quickly worse with wififrom the 4th week after covid i started to suffer from headache that would get quickly worse with wifiIn context ↗ | Mild | |
| 2023.11 | two weeks off work and symptoms clearedsecond half of the month i take time off to recover. after 2 weeks i feel no more symptoms.In context ↗ | Near normal | |
| 2023.12.02 | GI infection left knee pain and changed stool smellGI infection after eating some food outside ... it leaves knees pain (never had before)In context ↗ | Mild | |
| 2023.12.29 | felt great for about a month after colonoscopy and probioticsafter the preparation i take probiotics, and for about a month i feel great, sleep great, smell gone all gone, i feel i recoveredIn context ↗ | Near normal | Probiotics and fermented foods |
| 2024.02 | new burning, needling pain between left shoulder blade and collar bonea somewhat superficial pain appears out of the blue between left shoulder blade and left collar boneIn context ↗ | Mild | |
| 2024.05.15 | a batch of new symptoms right after an eyelid infectionright after a trivial eyelit infection a bunch of symptoms start, like heavy day sweating, fatigue, malaise, headacheIn context ↗ | Mild | |
| 2024.06.03 | ten days of antibiotics cleared the breathing problemsI take 10 days of antibiotics, after which the only improvement is that breathing issues are gone, rest remains.In context ↗ | Mild | Antibiotics (unspecified) |
| 2024.07 | worse again at the end of July with night sweatsforth week things get worse again, including some night sweatsIn context ↗ | Mild | |
| 2024.09 | VZV reactivation; wifi sensitivity unbearable, thumb and back pain returnedI become again very sensitive to wifi, to the point of being unbearable.In context ↗ | Mild | |
| 2024.10 | month of low white cells, kidney pain, foamy urine, fatigue and headachefor approximately the whole month i suffer again from inversion of white blood cells formula, pain/discomfort at kidney level, foamy urine, fatigue, headacheIn context ↗ | Mild | |
| 2025.01 | cooling the hand eased the thumb pain and temporarily cleared the urine foami discover that cooling down that finger (and the whole hand) in fact makes me feel much better, and even takes away temporarily the urine foamIn context ↗ | Mild | |
| 2025-05-18 | gut much better on probiotics but still heavily histamine intolerant and on antibioticsdespite the much better gut health, still heavily histamine intolerantIn context ↗ | Mild | Probiotics and fermented foods |
Adverse events
- “for the thumb pain one doctor recommends me to try hot water with salt (and soak the finger in). I try that and it makes me feel much much worse” In context ↗ Made symptoms worse
- Nattokinase“I have been eating natto but i feel it actually makes me feel a bit worse” In context ↗ Made symptoms worse
- Antibiotics (unspecified)“although im now on antibiotics so likely undoing most of those improvements” In context ↗ Gut side effects
Symptoms mentioned
BreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Headaches & migraine
i started to suffer from headache that would get quickly worse with wifi
In context ↗ - Post-exertional malaise
while in mild PEM (when cpk also shoots over limit)
In context ↗ - Flu-like symptoms
heavy day sweating, fatigue, malaise, headache
In context ↗ - Pain & fibromyalgia
it leaves knees pain (never had before)
In context ↗ - Neuropathy & tingling
Needling pain, sometimes burning under the nail, sometimes tingling fingertip
In context ↗ - Temperature regulation
heavy day sweating ... some night sweats
In context ↗ - Sleep problems
i take 100 mg before sleep ... although it's far from peaceful sleep
In context ↗ - Mast cell (MCAS) & allergies
I have MCAS and even just mozzarella marketed with live probiotics cause me reaction
In context ↗ - Gut problems
nausea in case of effort
In context ↗ - Breathlessness
after which the only improvement is that breathing issues are gone
In context ↗ - Heart symptoms & palpitations
nerve problems on my arms that spans to the chest and gave me cardiac-like symptoms
In context ↗ - Loss of smell or taste
Slight change of taste the first couple of days only on some food (meat).
In context ↗
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