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ME/CFS Severe → no benefitIll for 8 months

ME/CFS crash: on the couch, barely walking, still resting, no treatment credited

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
8 months
Last post
Aug 2026
In their words
  • Condition: ME/CFSShe agreed that it definitely sounds like me/cfs In context ↗
  • At worst: Severecan barley walk (with crutches), can't shower, am in so much pain and basically can just exist In context ↗
  • Now: No benefitIn January I was running 3 times a week and exercising on 2 other days. ... Now I can't even shower or wash my hair. In context ↗
  • Began after: another virusI had an infection in December over Christmas, was sick for a week In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Meadow 70494, 25, fell ill after an infection in December 2025 and a small surgery in February 2026, never regaining her running or 4-hour workdays. By May 2026 she was in her worst crash, on the couch and able to walk only to the kitchen or bathroom; in June she was admitted to hospital unable to eat properly or shower, and barely able to walk even with crutches. By her August 2026 comment she was still resting during the day, with no treatment credited.

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What they tried

Also tried

heating pad· Helpedinfusion· No changepain killers· No changestronger meds· Not said
Their words about each treatment
  • infusion · No changeI got an infusion some time later, but it didn't improve anything. In context ↗
  • pain killers · No changethe pain management I had for home wasn't doing anything at all In context ↗
  • heating pad · HelpedI absolutely love my heating pad, helps with pain aswell. In context ↗
  • stronger meds · Not saidthey're finally giving me some stronger meds now in hospital In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
December 2025viral infection over ChristmasI had an infection in December over Christmas, was sick for a week In context ↗Not stated
February 2026small surgery; never got back to runningThen February came around and I had to have a small surgery and wasn't allowed to run for like a week. But I was never able to get back. In context ↗Mild
May 2026worst crash, bound to the couchThe only thing I can manage is like the walk to the kitchen or the bathroom and even that is hard. In context ↗Severe
June 2026admitted to hospital; could not eat, shower or walk unaidedSo with me not being able to drink or eat enough, can barley walk (with crutches), can't shower In context ↗Severe
August 2026still resting in bed during the daynow I often use it when I have to rest (but can't fall asleep) In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisewhenever I overdo it, I can't get off the couch one or two days later In context ↗
  • Brain fogI forget words and lose myself in sentences In context ↗
  • POTS & dysautonomiaI get dizzy whenever I stand up In context ↗
  • Pain & fibromyalgiamy neck started hurting one day and it hasn't stopped since In context ↗
  • Headaches & migraineI have a headache every single day In context ↗
  • Flu-like symptomsI get sore throats In context ↗
  • Sleep problemsI was a bit more tired than usual and needed more sleep In context ↗
  • Light & noise sensitivityI had a lot more sensory issues In context ↗
  • BreathlessnessI get so out of breath from sitting but then from chewing aswell In context ↗
  • Muscle weaknessIt feels like I've ran a marathon but I literally haven't done anything at all In context ↗
  • Vision problemseven like my vision takes so much effort In context ↗

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