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Long COVID Severe → somewhat betterIll 3 months before improving or writing

Mostly bedridden with long COVID, now somewhat better

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 months
Last post
May 2023
In their words
  • Condition: Long COVIDI still have a hard time accepting this is Long Covid In context ↗
  • At worst: SevereI went from working 60 hours a week to 95% bedridden in the blink of an eye. In context ↗
  • Now: Somewhat betterMy breathing issues and chest pressure are somewhat better but still horrible. In context ↗
  • Began after: COVIDI had Covid with strep the end of December.
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

After mild COVID and strep in December 2022, Breeze 21459 became severely ill on 17 February 2023, going from 60-hour work weeks to about 95% bedridden. They had chest pressure, breathlessness, throat tightness, limb heaviness, internal vibrations and blurred vision. Vitamins and saltwater gargling did not clearly help. By May 2023 they were still bedridden about 90% of the time, though chest pressure had eased slightly.

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What they tried

Also tried

vitamins· No changewarm saltwater gargling· Not saidgreen tea· Not said
Their words about each treatment
  • warm saltwater gargling · Not saidI've tried warm saltwater gargling and drinking green tea. It's slightly better than when it abruptly started 2 months ago but it's still extremely bothersome In context ↗
  • vitamins · No changeI'm taking alot of vitamins, but nothing is really helping. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
17 February 2023Abrupt severe long-COVID onset; bedridden, blood pressure crashed, took leave from workI was fine then in the snap of a finger so sick starting February 17th (literally in 2 mins time). In context ↗Severe
22 March 2023Slightly more self-aware and slightly better, still bedridden with chest pressureLuckily I feel a little more self aware now and slightly better, but I'm still having the worst most debilitating chest pressure In context ↗Severe
19 May 2023Still bedridden about 90% of the time; breathing and chest pressure somewhat betterI've been bedridden 90% of the time for the last 3 months In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Brain fogIt's almost a drugged feeling. In context ↗
  • POTS & dysautonomiaI've had POTS for three years (I have the hyper kind with high blood pressure) In context ↗
  • Gut problemsWent into a cold sweat, nausea and felt like I was going to die. In context ↗
  • BreathlessnessMy breathing issues and chest pressure are somewhat better but still horrible. In context ↗
  • Heart symptoms & palpitationsHeartrate shoots up to 135 or higher just standing In context ↗
  • Muscle weaknessmy legs and arms feel like concrete blocks are attached In context ↗
  • Neuropathy & tinglingburning sensation on the tops of hands and feet periodically In context ↗
  • Vision problemsdouble and blurry vision In context ↗

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