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Long COVID Severe → much betterIll 2 years before improving or writing

Bedbound at one point with long COVID, much better after ATP-cycle supplements

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 years
Last post
Oct 2025
In their words
  • Condition: Long COVIDI am also suffering from long covid symptoms In context ↗
  • At worst: SevereThere was a time I was bedbound In context ↗
  • Now: Much betterOverall, I am not 100% cured, but I’d estimate I'm at about 65-70% recovery. In context ↗
  • Began after: COVIDI believe I caught it on the ferry back in Aug of 2023.
Read from 22 of their posts and comments; links to the 13 this page draws on

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Summary

Kestrel 54491 caught COVID in August 2023 and had long COVID symptoms from late September 2023, and was bedbound at one point. They earlier credited a whole-food diet, sun exposure and rest for their good days, and credit ATP-cycle supplements, increased sun exposure and urolithin A for a slow climb from about 40% to 65-70% recovery. By September 2025 they were back at university, driving and walking around 6,000 steps a day, though PEM and flares still limited them.

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What they tried

Their words about each treatment
  • whole food diet · HelpedI attribute all of this to the whole food diet I am eating In context ↗
  • sun exposure · HelpedI attribute all of this to the whole food diet I am eating (single ingredient organic foods, no highly processed items!), sun exposure, rest and supplements In context ↗
  • rest · HelpedI attribute all of this to the whole food diet I am eating ... sun exposure, rest and supplements In context ↗
  • 5htp (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... 5htp (AM) In context ↗
  • Antihistamine (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... Antihistamine (AM) In context ↗
  • DHA and EPA (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... DHA and EPA (AM) In context ↗
  • N-Acetyl-L-Cysteine with glycine and selenium (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... N-Acetyl-L-Cysteine with glycine and selenium (AM) In context ↗
  • Nicotinamide mononucleotide (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... Nicotinamide mononucleotide (AM) In context ↗
  • Magnesium bisglycinate (PM) · HelpedHere are a list of supplements I have been taking which have helped so far ... Magnesium bisglycinate (PM) In context ↗
  • Melatonin + theanine + 5htp (PM) · HelpedHere are a list of supplements I have been taking which have helped so far ... Melatonin + theanine + 5htp (PM) In context ↗
  • Probiotic (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... Probiotic (AM) In context ↗
  • Turmeric, Protease, Stem bromelain, Quercetin (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... Turmeric, Protease, Stem bromelain, Quercetin (AM) In context ↗
  • Zinc (AM) · HelpedHere are a list of supplements I have been taking which have helped so far ... Zinc (AM) In context ↗
  • couch to 10km running program · Not saidCurrently I am completing a couch to 10km running program on my good days. In context ↗
  • morning walks · Helpedtrying to force myself to go for morning walks to help hasten it ... Then I feel better In context ↗
  • increasing electrolytes and salt · HelpedWhat finally helped me was increasing electrolytes and salt. In context ↗
  • red light mask · Helpedthe first day I used the red light mask (10mins), I felt great In context ↗
  • sauna, hot tub, hot baths · HelpedI've also noticed a difference when I get sunlight, use my red light mask on my chest, get heat (sauna, hot tub, bath etc..) In context ↗
  • creatine monohydrate · HelpedFor me, it worked! It boosted my energy levels somewhat that I'm considering taking a higher dose to see if it helps. In context ↗
  • eye yoga and breathwork · HelpedI found techniques such as eye yoga, breathwork, binaural beats, and pacing to be the most effective. In context ↗
  • physiotherapy (joyful movement) · HelpedI attended physiotherapy once a week for one hour, which focused on joyful movement. In context ↗
  • ALA · HelpedAfter starting supplements like ALA, CoQ10, and increasing my sun exposure and NAD+, I moved up to around 50% In context ↗
  • B complex · HelpedB complex, Magnesium bisglycinate, CoQ10 and precursor Ubiquonol, ALA, NMN, omega 3 and 6, creatine, resveratrol and NAC In context ↗
  • fasting · Not saidInitially, I tried various lifestyle changes to encourage mitophagy, such as fasting, cold exposure, taking antioxidants, and using hot baths to increase my heart rate to mimic aerobic activity. In context ↗
  • urolithin A · Helped a lotHowever, the real game-changer for me was urolithin A, a compound found in pomegranates that induces mitophagy. In context ↗
  • one-rep-at-a-time progression (swimming) · Helpedtry doing ONE rep literally one rep to start ... now I can swim 100m once a week and am almost ready for twice a week In context ↗

Approaches: H1 antihistamines · Diet · Mind-body practices · Pacing · Physiotherapy and rehab · Radical rest · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
late September 2023long COVID symptoms began after starting to run againI have been suffering from long covid symptoms since late Sept. In context ↗Mild
—bedbound at their lowestThere was a time I was bedbound In context ↗Severe
—housebound with one to two chores a day, then supplements for the ATP cycle moved them from about 40% to 50% recoveredAfter starting supplements like ALA, CoQ10, and increasing my sun exposure and NAD+, I moved up to around 50%. In context ↗Moderate
September 2025about two months of urolithin A; able to leave the house daily, back at university, drivingNow, after about two months of taking urolithin A, I can leave the house every day. In context ↗Mild
October 2025antihistamine protocol reduced overall symptoms; still has fibromyalgia, MCAS, ME/CFS, dysautonomia and POTSI’ve found it has reduced my overall symptoms In context ↗MildH1 antihistamines (unspecified)

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogI can read, write, and speak, but only in small doses. I still need breaks between activities In context ↗
  • Sleep problemscognitive disruptions such as brain fog and sleep disturbances In context ↗
  • POTS & dysautonomiaI have fibromyalgia, MCAS, ME/CFS, dysautonomia, and POTS In context ↗
  • Mast cell (MCAS) & allergiesAll of it was made worse by MCAS. In context ↗
  • Post-exertional malaiseI still experience post-exertional malaise (PEM) and occasional flares In context ↗
  • Muscle weaknessI’ve definitely lost muscle mass all over which I think contributes to the heaviness In context ↗
  • Heart symptoms & palpitationsheart rate hit 160 In context ↗
  • Gut problemsat the same time, I was so bloated In context ↗
  • Anxiety & low moodI considered it… everything was too much when I was in the depths of it. In context ↗

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