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ME/CFS Somewhat betterNeeds ongoing treatment

Extreme fatigue with ME/CFS, somewhat better after clinic visits and meds

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Jun 2026
In their words
  • Condition: ME/CFSYes! The description was literally me. In context ↗
  • Now: Somewhat betterI'm on the right meds now and the beta blocker helps me do stuff even when not taking sleep meds. In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

A Reddit user in an ME/CFS forum described a moderate flu, extreme fatigue and random exhaustion, and mentioned IH and vitamin D deficiency, with one fixed and the other not. They said an eye issue went away after eye surgery. After three visits to a clinic in Mexico they felt much better and less pain, and later said they were on the right meds and a beta blocker helped them do things even when not taking sleep meds, while their doctors suspected an up-and-down cycle.

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What they tried

Also tried

eye surgery· Helped a lotmedica sur· Helped a lotvit D· Not saidsleep meds· Not said
Their words about each treatment
  • eye surgery · Helped a lotI had this and got eye surgery and it went away! In context ↗
  • vit D · Not saidI got IH and vit D defi. ... Fixed one, haven't fixed the other, still randomly exhausted. In context ↗
  • medica sur · Helped a lotI recommend medica sur in Mexico. 3 visits and I'm feeling so much better. In context ↗
  • beta blocker · HelpedI'm on the right meds now and the beta blocker helps me do stuff even when not taking sleep meds. In context ↗
  • sleep meds · Not saidthe beta blocker helps me do stuff even when not taking sleep meds In context ↗

Approaches: Beta-blockers

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
—Early illness felt like a moderate fluit was like a moderate flu for me I was miserable. In context ↗Not stated
2022-06-18Eye surgery resolved eye pain and trouble looking at screensI had this and got eye surgery and it went away! In context ↗Not stated
2026-02-16Three visits to Medica Sur clinic; felt much better and less pain3 visits and I'm feeling so much better. I want to cry actually. I'm being careful but things aren't hurting as much In context ↗Not stated
2026-06-29On right medications and beta blocker; still an up-and-down cycleI'm on the right meds now and the beta blocker helps me do stuff even when not taking sleep meds. In context ↗MildBeta-blockers (unspecified)

Symptoms mentioned

Their words about their symptoms
  • Vision problemsI had this and got eye surgery and it went away! In context ↗
  • Sleep problemssleep issues+hyper mobility+ drug interactions causing this up and down cycle In context ↗
  • Flu-like symptomsit was like a moderate flu for me I was miserable. In context ↗
  • Pain & fibromyalgiathings aren't hurting as much In context ↗
  • POTS & dysautonomiaYes! The description was literally me. I felt exactly like this In context ↗

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