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Long COVID Mild → somewhat betterIll 18 months before improving or writingNeeds ongoing treatment

Long COVID with chest pain and brain fog, somewhat better after time and diet

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
18 months
Last post
Apr 2025
In their words
  • Condition: Long COVIDI've been LC since 9 months ago In context ↗
  • At worst: MildWorked full time , but honestly I wouldn’t recommend that to anyone going through this. It had made this process so much harder and longer. In context ↗
  • Now: Somewhat betterA year out and I feel like 65% better!! In context ↗
  • Began after: COVIDI caught covid Jan. of this year. 2 weeks later I starting getting symptoms In context ↗
  • Says they never had: Post-exertional malaiseAnd no I don’t think I had pem.
Read from 23 of their posts and comments; links to the 16 this page draws on

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Summary

Trail 69923, then 20, caught COVID at her daycare job in January 2024 and developed long COVID two weeks later. The first three months were the worst, with near-constant chest pain, breathlessness, brain fog and dissociation. She credited time, a Biomesight gut test and an anti-inflammatory, gluten- and dairy-free diet, and called herself 80% recovered at nine months. She later reported a worsening around 10.5 months and only 65% better at a year; by 18 months chest pain was milder, while dissociation had still interfered at one year.

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What they tried

Also tried

staying positive and focusing on mental health· Helpeddrinking lots of water· No changeibuprofen· No changeNyQuil· Not said
Their words about each treatment
  • mediterranean diet · Helped a loti tried a mediterranean diet and felt like a brand new person all that week, i fell off after that but i need to stick to it because i saw so many improvements In context ↗
  • time · HelpedI can’t give definite answers because I’m not entirely sure, but time!!! In context ↗
  • staying positive and focusing on mental health · Helpedstaying positive (I know people don’t like to hear that but a negative mindset definitely makes this thing worse.) In context ↗
  • avoiding gluten and dairy, anti-inflammatory foods · Helpedstarting prioritizing food I needed, lots of anti inflammatory foods. tried to avoid gluten and dairy as much as possible In context ↗
  • NyQuil · Not saidI will not be taking it again! I only took it while I was sick hoping I’d feel better In context ↗
  • drinking lots of water · No changeI usually drink lots of water and it doesn’t seem to help unfortunately In context ↗
  • ibuprofen · No changeI think I only did the ibuprofen thing for about two weeks and I can’t remember if it made much of a difference so I’m assuming it didn’t In context ↗

Approaches: Diet

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
Jan 2024COVID infection; long COVID symptoms began two weeks later, first three months the worstI caught covid Jan. of this year. 2 weeks later I starting getting symptoms In context ↗Mild
June 2024lots of improvement over the past 3 months; breathlessness, dissociation and gut problems lingeringI’ve been LH for almost 6 months, seen lots of improvement in the past 3 months. In context ↗Mild
2024-06-27bad chest pain after walking half a mile and running a minuteI walked about .5 mile and only ran for a minute tops but out of nowhere I got bad chest pain and had to go back and rest immediately. In context ↗Mild
2024-08-29improved greatly, self-rated 80% recovered while working full timeI have improved greatly over that time. The first 3 months were the worst and I started feeling better after that. In context ↗MildTime and spontaneous remission
2024-10-31worst week: spacing out, pains at back of skull, breathlessness returningBut this past week has been the WORST. In context ↗Mild
2024-12-09chest pain much less frequent and less noticeable; breathlessness goneOver time my chest pain did improve, It only happens once in awhile and it’s much less noticeable now and the sob is completely gone. In context ↗Mild
2025-01-09felt 65% better a year outA year out and I feel like 65% better!! In context ↗Mild
2025-04-23chest pain about once a day but not as intense; dissociation still interferesI’m almost exactly a year and half LC now and I only get chest pains about once a day and not as intense. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogbrain fog, tiredness/ exhaustion, cement in head feeling In context ↗
  • Breathlessnesschest pain and SOB were the biggest In context ↗
  • Heart symptoms & palpitationsI only get chest pains about once a day and not as intense In context ↗
  • Anxiety & low moodBut definitely made worse by certain foods (I’m dairy and oxalate intolerant) and stress/anxiety. In context ↗
  • Sleep problemsbarely slept due to the fear I was having a heart attack In context ↗
  • Headaches & migraineI feel so much head pressure it’s torture In context ↗
  • Gut problemsOnly symptoms ms that still linger are SOB, dpdr, and gut problems In context ↗
  • Pain & fibromyalgiaFeels like a soreness but I’ve had it since the very beginning. In context ↗

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