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Long COVID Severe → much betterIll 4 years before improving or writing

Homebound with long COVID, now much better with a beta blocker and electrolytes

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4 years
Last post
Jul 2026
In their words
  • Condition: Long COVIDmost of my LC symptoms are POTS/dysautonomia related In context ↗
  • At worst: Severesome guy that can't walk to the bathroom without feeling like he ran a marathon, and blacking out In context ↗
  • Now: Much betterit flares up (I'm in the middle of a pretty nasty flare right now), but it's getting better over time In context ↗
  • Began after: COVIDI hadn't had covid for six months preceding that day. I suspect that might have been my issue.
Read from 15 of their posts and comments; links to the 10 this page draws on

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Summary

Owl 75940, a 6'7" former powerlifter, fell ill around 2022 aged 33, becoming homebound with dizziness, brain fog, palpitations and breathlessness, and at one point suicidal. A beta blocker, compression clothing, salt and electrolytes eased his POTS symptoms, and by late 2024 he walked 5,000 steps a day. Dizziness persisted; a November 2024 COVID reinfection worsened it, and by mid-2026 he still had flares but was slowly improving.

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What they tried

Their words about each treatment
  • CHOP Modified Dallas POTS Exercise Program · HelpedHas worked quite well for me, if you can stomach the exercise and don't have issues with PEM. In context ↗
  • Compression clothes, salt, fluids and electrolytes · Helped a lotthe real gamechanger for me has been compression clothes to help with blood pooling In context ↗
  • metoprolol (beta blocker) · HelpedThe beta blocker got the HR issue under control, and it felt 10 times better. In context ↗
  • OMAD style of food intake · Not saidmy symptoms flare super hard when I eat, and have kind of adopted an OMAD style of food intake In context ↗

Approaches: POTS medication · Beta-blockers · Physiotherapy and rehab

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022Symptoms began after a COVID infection: dizziness, brain fog, tachycardia, chest pain, fatiguemysterious symptoms that popped up on me. Extreme lightheadedness, dizziness, brain fog, tachycardia, chest pains and general extreme fatigue In context ↗Moderate
early 2023Homebound for months, could not walk to the bathroom without blacking out, could not work, and was suicidalsome guy that can't walk to the bathroom without feeling like he ran a marathon, and blacking out In context ↗Severe
2023-07-07Small day-by-day improvement; able to take the trash outI'm starting to feel a little better, day by day (I took my trash out the other day, which has been something beyond my reach for months) In context ↗Severe
2023-09-07Started the CHOP modified Dallas POTS exercise program, which he said worked quite wellHas worked quite well for me, if you can stomach the exercise and don't have issues with PEM. In context ↗Not statedGraded rehab and self-made programmes
2024-09-13Metoprolol brought the tachycardia and passing out under controlThe beta blocker got the HR issue under control, and it felt 10 times better. In context ↗ModerateMetoprolol (Lopressor, Toprol)
2024-11Almost able to return to work, walking 5,000 steps a day, up and about in the kitchenI was basically there, slowly inching up to my 2 year mark, almost capable of going back to work, walking at least 5k steps a day, I was able to be up and about in the kitchen. In context ↗MildMetoprolol (Lopressor, Toprol)
2024-11-19Worst POTS flare in two weeks, possibly picked up a coldI've had the WORST flare up of POTS symptoms over the last 2 weeks, and it's making me nervous. In context ↗Moderate
2025-02-10COVID reinfection: palpitations nearly gone but dizziness much worse, no longer able to drivesuddenly my heart palpitations that plagued my existence are nearly gone, but my daily dizziness has gone into super overdrive, to the point where I can't drive anymore In context ↗Moderate
2026-07-22Still flaring, but getting better over time on a beta blocker, electrolyte water and compression clothesIt flares up (I'm in the middle of a pretty nasty flare right now), but it's getting better over time. I use a beta blocker, a lot of electrolyte water, and compression clothes on bad days. In context ↗ModerateMetoprolol (Lopressor, Toprol)

Symptoms mentioned

Their words about their symptoms
  • Brain fogMy brain fog has let up a great deal In context ↗
  • POTS & dysautonomiaIt flares up (I'm in the middle of a pretty nasty flare right now), but it's getting better over time. In context ↗
  • Heart symptoms & palpitationssuddenly my heart palpitations that plagued my existence are nearly gone In context ↗
  • Breathlessnesswith my heart pounding and unable to catch a breath In context ↗
  • Anxiety & low moodif I didn't think my kids still needed to see their dad, I would have taken my own life a few months ago In context ↗

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