Long COVID with blood clots, heart failure and brain fog, no better after nine months
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 9 months
- Last post
- Jan 2022
In their words
- Condition: Long COVID
I have Covid 9 months ago. Now I have so many issues it’s insane.
In context ↗ - At worst: Moderate
I’m financially struggling on long term disability.
In context ↗ - Now: No benefit
No treatment is helping. ... it isn’t helping.
In context ↗ - Began after: COVID
I got sick April the 5th 21 so today makes 9 months 1 day.
In context ↗
Summary
A 38-year-old previously very fit man fell ill with COVID-19 in April 2021. He developed blood clots in his lungs, double pneumonia, heart failure, uncontrolled blood pressure, breathing problems, headaches, brain fog, insomnia, numb limbs and depression. Nine months on nothing was changing and no treatment, including cardiac and pulmonary therapy, had helped; he was on long-term disability and running out of money.
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What they tried
Also tried
Their words about each treatment
- heart meds · Not said
I’m on heart meds, eliquis for the clots and blood pressure medication.
In context ↗ - eliquis · Not said
eliquis for the clots
In context ↗ - cardiac/pulmonary therapy · No change
I have undergone cardiac/pulmonary therapy and it isn’t helping.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 9 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021-04-05 | fell ill with COVID-19I got sick April the 5th 21 so today makes 9 months 1 day.In context ↗ | Not stated |
| 2022-01-06 | heart failure, blood clots in lungs, breathing problems; nothing changingNo treatment is helping. I have undergone cardiac/pulmonary therapy and it isn’t helping.In context ↗ | Moderate |
| 2022-01-26 | still no improvement; depression set inDepression has set is I’m financially struggling on long term disability.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
extreme breathing complications
In context ↗ - Brain fog
headaches brain fog
In context ↗ - Headaches & migraine
Massive headaches
In context ↗ - Heart symptoms & palpitations
massive chest pains
In context ↗ - Neuropathy & tingling
odd issues with me feet and hands going numb
In context ↗ - Sleep problems
I also have insomnia
In context ↗ - Anxiety & low mood
Depression has set is
In context ↗