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Long COVID Severe → recoveredIll 15 months before improving or writing

Long COVID for a year, wiped out by a mailbox walk, now recovered after rest and shots

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
15 months
Last post
Mar 2022
In their words
  • Condition: Long COVIDI’m a long hauler since March 2020 In context ↗
  • At worst: Severenot being able to walk to the mailbox without getting wiped out for the next two days In context ↗
  • Now: Recoveredmade a full recovery to climbing mountains and running training at a high level In context ↗
  • Began after: COVIDI’m a long hauler since March 2020 In context ↗
Read from 10 of their posts and comments; links to the 7 this page draws on

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Summary

They caught COVID in March 2020 and long hauled for about a year, at worst unable to walk to the mailbox without being wiped out for two days, with severe PEM, breathing and heart problems, electric shocks, insomnia and hair loss. Near-total rest and low stress brought slow gains, and around their Moderna shots in early 2021 they felt back to 99-100% of themselves, running and playing basketball. A year later they still reported full recovery.

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What they tried

Their words about each treatment
  • doing nothing / resting · Helped a lotkey to my recovery was literally doing nothing and keeping my stressors low In context ↗
  • second moderna · Helped a lotIt cleared up the remainder of my yearlong long haul (which was miserable). In context ↗
  • avoiding early physical exertion · HelpedAND ESPECIALLY TRYING TO GET BACK TO PHYSICAL EXERTION AND TRAINING TOO EARLY In context ↗
  • low inflammation diet · Not saidI recommend looking into low inflammation diet as well In context ↗
  • probiotics · Not saidtaking probiotics and vitamin d In context ↗

Approaches: Pacing · Radical rest · Vaccination

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020became a COVID long haulerI’m a long hauler since March 2020 and got the second moderna. In context ↗Not stated
August 2020crash after five minutes of shooting a basketballI tried to shoot a basketball in flip flops for five minutes in August and literally thought I might have to go to the ER because I couldn’t breathe properly In context ↗Severe
January 2021slowly regaining strength after months of restDitto. 10 months and regaining strength In context ↗ModeratePacing and the energy envelope
March 2021back to 99-100% of their old self and exercising againFeeling back to 99-100% my regular self now. No long haul anymore. In context ↗Near normalCOVID vaccination as treatment
2022-03full recovery, climbing and training at a high levelLong hauled for about 15 months and made a full recovery to climbing mountains and running training at a high level. In context ↗Recovered

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisenot being able to walk a few blocks without intense PEM and being wiped out for 3-4 days In context ↗
  • Heart symptoms & palpitationsmy heart beat was thumping out of my brain In context ↗
  • BreathlessnessI couldn’t breathe properly In context ↗
  • Neuropathy & tinglingthe electric shocks through my extremities was causing insomnia and pain In context ↗
  • Hair lossand hair loss. Clumps of hair falling out. In context ↗

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