Unable to leave house with long COVID, almost normal after Allegra and low-histamine diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2.5 years
- Last post
- Oct 2023
In their words
- Condition: Long COVID
I essentially had LC without the COVID
In context ↗ - At worst: Moderate
I went from being on complete medical leave and unable to leave my house due to reactions to temperature change
In context ↗ - Now: Near normal
When I combine it with eating low-histamine, I’m almost normal again.
In context ↗ - Began after: injury or surgery
Having my neck adjusted ended up either causing a cervical disk herniation or making it more severe.
In context ↗
Read from 19 of their posts and comments; links to the 13 this page draws on
Summary
A software engineer who developed MCAS after a chiropractic neck adjustment caused or worsened a cervical disk herniation, with brain fog, migraine and reactions to temperature and food; they were on medical leave for months and unable to leave their house. A first COVID infection in March 2023 added twitching and cramps. Allegra and a low-histamine diet left them almost normal by August 2023, while electrolytes and sleep medication helped other symptoms, but they must keep them up.
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What they tried
What they credit
Also tried
Their words about each treatment
- ADHD medication · Worse
I used to take ADHD medication but since I developed these conditions, it makes symptoms completely go off the charts.
In context ↗ - chiropractor neck adjustment · Much worse
Having my neck adjusted ended up either causing a cervical disk herniation or making it more severe.
In context ↗ - Allegra (fexofenadine), 24-hour non-stimulant tablets · Helped a lot
I take 2x the regular amount of Allegra and that helps me a lot.
In context ↗ - cromolyn sodium · Helped
I take antihistamine and cromolyn sodium everyday, but I still have issues unless I also eat low-histamine.
In context ↗ - low-histamine diet · Helped a lot
When I combine it with eating low-histamine, I’m almost normal again.
In context ↗ - pain killers · No change
Costo often isn’t helped with pain killers, in my experience.
In context ↗ - Paxlovid · Not said
tested positive and started Paxlovid on 3/4. I tested negative 3/10 & 3/11, then positive again starting yesterday, 3/12.
In context ↗ - electrolytes / Gatorade Zero · Helped
I drink a ton of electrolytes and that helps a lot.
In context ↗ - Xanax · Helped
I take 0.25mg Xanax. It immediately made my sleep score shoot way up
In context ↗ - supplementing · Helped
So I started supplementing and being more strict with the diet that reduces my inflammation. Now these symptoms are basically gone.
In context ↗ - light muscle relaxer · Helped
I was prescribed some light muscle relaxer for some other issue that was happening and my tachycardia immediately went away, it was insane.
In context ↗ - high protein (with low histamine) diet · Helped
High protein (with low histamine) is great for me too!
In context ↗
Approaches: H1 antihistamines · Antihistamines & MCAS · Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | chiropractic neck adjustment caused a cervical disk herniation; brain fog, reactions to temperature, food and chemicalsHaving my neck adjusted ended up either causing a cervical disk herniation or making it more severe.In context ↗ | Moderate | |
| 2022 | on medical leave and housebound by reactions to temperature changeI went from being on complete medical leave and unable to leave my house due to reactions to temperature changeIn context ↗ | Moderate | |
| March 2023 | first COVID infection triggered twitching, muscle cramps and tremorsCOVID infection earlier this year triggered twitching in my body/face, muscle cramps, temors.In context ↗ | Mild | |
| April 2023 | well enough to travel and work from Europecurrently booking a flight to Europe so I can work from there for a few weeksIn context ↗ | Near normal | Fexofenadine (Allegra) |
| August 2023 | almost normal on double-dose Allegra and strict low-histamine dietSo I started supplementing and being more strict with the diet that reduces my inflammation. Now these symptoms are basically gone.In context ↗ | Near normal | Fexofenadine (Allegra) |
Adverse events
- Chiropractic“I went to a chiropractor, which I would never have done if I knew I had EDS. Having my neck adjusted ended up either causing a cervical disk herniation or making it more severe.” In context ↗ Made symptoms worse
- Stimulants (unspecified)“I used to take ADHD medication but since I developed these conditions, it makes symptoms completely go off the charts.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
and terrible brain fog
In context ↗ - Mast cell (MCAS) & allergies
Eating almost anything immediately triggered knots in my jaw, migraine, hives.
In context ↗ - Headaches & migraine
I will have constant migraine
In context ↗ - Neuropathy & tingling
getting “electric shock” feelings in my whole body sometimes
In context ↗ - Pain & fibromyalgia
weird muscle aches, knots in jaw, migraines
In context ↗ - Heart symptoms & palpitations
I had tachycardia for weeks after the surgery to fix my injury
In context ↗ - POTS & dysautonomia
since then I’ve also developed POTS symptoms
In context ↗ - Sleep problems
my watch showed I wasn’t getting restful sleep
In context ↗ - Anxiety & low mood
I got meds to help my anxiety so my body can heal more while I sleep
In context ↗ - Vision problems
my floaters get terrible
In context ↗
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