Bedridden with long COVID, now close to normal after rest and short walks
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 months
- Last post
- May 2021
In their words
- Condition: Long COVID
When I realized I was a long hauler
In context ↗ - At worst: Severe
on Dec 24th I could barely lift a spoon of food into my mouth being bed ridden with zero energy
In context ↗ - Now: Near normal
Pretty much back to normal. I’m eating whatever I want, drinking, working out, traveling. I still don’t feel exactly how I use to
In context ↗ - Began after: COVID
I felt better when I tested positive on 11.21.20.
In context ↗
Read from 24 of their posts and comments; links to the 11 this page draws on
Summary
The user caught COVID-19 in November 2020 and was bedridden by Christmas, unable to lift a spoon, with rib and chest pain, breathlessness and dizziness. From January they rested in short blocks, ate an anti-inflammatory diet and took supplements, adding short walks. By May 2021 they were eating, drinking, working out and travelling again, describing themselves as close to normal.
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What they tried
What they credit
Also tried
Their words about each treatment
- steroids for inflammation · Worse
they put me on steroids for the inflammation and the steroids and I didn’t mix to well because I had insane heart pounding even at rest abs my anxiety went through the roof
In context ↗ - melatonin · No change
I’ve tried melatonin, cbd, Benadryl. You name it.
In context ↗ - sleeping pills from doctors · No change
I’ve tried sleeping pills my docotors gave me
In context ↗ - therapy · Not said
I decided to start seeing a therapist so I stay on top of it before it gets any worse
In context ↗ - thc gummy · Helped
last night finally had decent success with a very lose thc gummy
In context ↗ - resting in bed in short work batches · Helped
I have been doing work in 2 hour batches then resting in bed laying down for 2 hours even if I’m not sleeping.
In context ↗ - supplements · Helped
I started going really hard with the supplements and super clean anti inflammatory. Even just in one week I can feel the difference.
In context ↗ - anti-inflammatory diet · Helped
I’ve been really good about no sugar, anti-inflammatory diet, no caffeine, no alcohol, no carbs.
In context ↗ - short walks · Helped
most of the time I do feel better after I come back from a short walk
In context ↗ - compression socks and salt water · Not said
I did compression socks, some salt water, lots of rest, and made sure my electrolytes were in check.
In context ↗ - electrolytes · Not said
made sure my electrolytes were in check
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020-11-21 | COVID-19, tested positiveI felt better when I tested positive on 11.21.20.In context ↗ | Mild |
| 2020-11-26 | slammed on Thanksgiving day, weak and dizzyI felt weak to the point where I almost passed out. ... I could barely walk around my house without getting dizzy.In context ↗ | Moderate |
| 2020-12-08 | rib and back pain, chest pain, shortness of breath, ER visitWeek 3 was awful, I had a burning pain in my ribs and back, the chest pain sucked and I started having the SOB.In context ↗ | Severe |
| 2020-12-24 | bedridden, could barely lift a spoonon Dec 24th I could barely lift a spoon of food into my mouth being bed ridden with zero energy.In context ↗ | Severe |
| 2021-01-02 | started supplements and anti-inflammatory diet, felt difference within a weekI started going really hard with the supplements and super clean anti inflammatory. Even just in one week I can feel the difference.In context ↗ | Moderate |
| 2021-01-20 | back to design work, short walks, showeringI’m back to working my design job, going on short 15 min walks, showering and getting ready and improving.In context ↗ | Mild |
| 2021-05-05 | eating, drinking, working out, travelling again, close to normalPretty much back to normal. I’m eating whatever I want, drinking, working out, traveling. I still don’t feel exactly how I use to but for the most part I’m really really closeIn context ↗ | Near normal |
Adverse events
- Corticosteroid pulses“the steroids and I didn’t mix to well because I had insane heart pounding even at rest abs my anxiety went through the roof” In context ↗ Heart rhythm problems
- Corticosteroid pulses“the steroids and I didn’t mix to well because I had insane heart pounding even at rest abs my anxiety went through the roof” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I do too much ... this general unwell gassed out feeling
In context ↗ - Sleep problems
Yeah it’s been really hard for me to sleep.
In context ↗ - POTS & dysautonomia
I could barely walk around my house without getting dizzy.
In context ↗ - Heart symptoms & palpitations
I had insane heart pounding even at rest
In context ↗ - Breathlessness
Shortness of breath is annoying but it’s manageable
In context ↗ - Pain & fibromyalgia
I had a burning pain in my ribs and back
In context ↗ - Muscle weakness
I just feel this insane heaviness to my body that nothing can cure
In context ↗ - Anxiety & low mood
my anxiety went through the roof
In context ↗ - Brain fog
I felt so out of it.
In context ↗ - Temperature regulation
a low grade fever for half a day
In context ↗ - Flu-like symptoms
super gnarly sore throat
In context ↗ - Headaches & migraine
everything hurt. Ribs, chest, feet, head, you name it.
In context ↗
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