Long COVID
Moderate → relapsedIll 5 years before improving or writingNeeds ongoing treatment
Long COVID with gut dysbiosis, POTS and tinnitus, improved then crashed; credits time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I've been recovering for the last 2.5 years from the same shiat
In context ↗ - At worst: Moderate
I went from a strong as an ox endurance athlete to wasting away with idiopathic elevated ANAs, gut issues galore
In context ↗ - Now: Relapsed
I recovered some in 2022 and did better in 2023 (hiked hard again) before crashing at the start of 2024 and now I have a baseline that won't budge
In context ↗ - Began after: a vaccination
all of this was triggered by the vaccine in 2021(I was highly athletic climbing mountains, cycling, running, etc. before the shot)
In context ↗
Read from 47 of their posts and comments; links to the 34 this page draws on
Summary
An endurance runner and mountaineer who developed long COVID after a 2021 vaccination, with gut dysbiosis, gastritis, POTS and tinnitus. They recovered somewhat by 2022 and were hiking hard again in 2023, then crashed at the start of 2024 and their baseline has not budged since. They credit time above all, say nothing has meaningfully changed their gut, and call themselves mostly functional yet not fully recovered.
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What they tried
Also tried
clean diet· Helpedibuprofen· HelpedMag 07· Helpedkefirlab kefir· Helped · wore offion gut support· No changequercetin· No changeslippery elm· No changedandelion· No changemagnesium· No changetaurine· No changeNAC· No changenattokinase· No changeozone· No changean antibiotic· WorseDAO· Worsediet restrictions· Worsehcl· Worsedigestive enzymes· Worsekpv/bpc combo· Worsekpv/bpc combo· Worseear insufflation· Worsekepos· Worsedexamethasone· Much worseH1 blockers· Not saidherbal protocol· Not saidantifungals· Not saidparasite protocol· Not saidlyme and EBV treatment· Not saidzinc supplementation· Not saidsodium butyrate· Not said
Their words about each treatment
- clean diet · Helped
already ate a clean diet/exercised religiously, which means I'm back to at least being active in the mountains
In context ↗ - ibuprofen · Helped
I took one ibuprofen and it never returned
In context ↗ - an antibiotic · Worse
I trialed an antibiotic for a couple days but that just have me major heartburn and temperature dysregulation
In context ↗ - dexamethasone · Much worse
that was horrible as my brain felt like it was buzzing and made me super anxious
In context ↗ - time · Helped
That's exactly what I've told all my past and current providers: only time has helped me.
In context ↗ - ion gut support · No change
I didn't get much effect from ion (regularity, change in digestion, stool, etc.)
In context ↗ - quercetin · No change
quercetin seems to do nothing no matter how much/good it is
In context ↗ - H1 blockers · Not said
H1 blockers do something but it's subtle and not necessarily helping me
In context ↗ - DAO · Worse
DAO ended up giving me bad heartburn after trying it for a couple weeks
In context ↗ - diet restrictions · Worse
more diet restrictions and fasting did nothing but make me worse over time with food limiting and stress
In context ↗ - fasting · Helped
At first it was the only thing that helped me, but doing it longterm destroyed my eating habits and messed up my hormones further.
In context ↗ - Mag 07 · Helped
I second Mag 07 and it's very effective.
In context ↗ - herbal protocol · Not said
It's happened to me as well with the herbal protocol I'm on currently
In context ↗ - antifungals · Not said
I didn't hardly herx at all until I brought in more antifungals to the mix.
In context ↗ - parasite protocol · Not said
just completed a two month parasite/lyme/candida protocol
In context ↗ - lyme and EBV treatment · Not said
being treated for lyme and ebv after testing along with potential parasites
In context ↗ - slippery elm · No change
natural remedies I've tried are not effective it seems including one's with slippery elm
In context ↗ - hcl · Worse
Trying to up fats and adding especially hcl is like throwing fuel on the fire
In context ↗ - digestive enzymes · Worse
I have mild chronic gastritis that doesn't care for betaine or digestive enzymes
In context ↗ - dandelion · No change
Dandelion has always been fine for me.
In context ↗ - zinc supplementation · Not said
my serum copper was fine but zinc was low even with good supplementation
In context ↗ - magnesium · No change
Magnesium and taurine by themselves have done nothing for my heart skips/flutters
In context ↗ - NAC · No change
I did fine with both as well and have used up to 6000fu consistently. Didn't seem to do much, but maybe I needed more.
In context ↗ - nattokinase · No change
He wanted me to take natto or a blood thinner to see if my symptoms would improve. I did not see a real improvement.
In context ↗ - kpv/bpc combo · Worse
I started getting subtle headaches and a lingering chest cold/cough after four days of taking it full strength
In context ↗ - ozone · No change
I have tried ozone. I went three times each with increased dose. I stopped after the third one as it was expensive and I wasn't sure it was doing anything.
In context ↗ - ear insufflation · Worse
That gave me some type of dieoff and I didn't feel great for a while thereafter
In context ↗ - sodium butyrate · Not said
I have been taking sodium butyrate for a while and will continue that too see if UT helps
In context ↗ - kepos · Worse
I took some kepos for a while and think it made me worse (maybe the lactoferrin)
In context ↗ - kefirlab kefir · Helped
I can take kefir lab kefir (100trillion cfu) for example and it will make a big shift for about two days and then I'm back to the same digestion beforehand.
In context ↗
Approaches: Diet · Exercise and activity
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2021 | long COVID onset after vaccinationall of this was triggered by the vaccine in 2021(I was highly athletic climbing mountains, cycling, running, etc. before the shot)In context ↗ | |
| 2021 | adrenal crash after a dexamethasone trialthe following week was in a full on adrenal crash curled up in my bed barely able to function. The whole week!In context ↗ | |
| 2022 | recovered someI recovered some in 2022 and did better in 2023 (hiked hard again)In context ↗ | Time and spontaneous remission |
| 2023 | hiked hard againI'm back to at least being active in the mountains (although far from back to my athletic baseline)In context ↗ | Time and spontaneous remission |
| early 2024 | crashed at the start of 2024before crashing at the start of 2024 and now I have a baseline that won't budge with all the damn interventions and treatments I've triedIn context ↗ | |
| January 2024 | POTS came back after the holidaysmy pots came back with a vengeance in mid-January after the holidaysIn context ↗ | |
| 2026 | baseline unchanged despite many treatmentsNot my pre-vaccine baseline by any means, but mostly "functional".In context ↗ |
Adverse events
- Antibiotics (unspecified)“I trialed an antibiotic for a couple days but that just have me major heartburn and temperature dysregulation.” In context ↗ Gut side effects
- Corticosteroid pulses“Well that was horrible as my brain felt like it was buzzing and made me super anxious.” In context ↗ Mood or psychiatric effects
- Corticosteroid pulses“I stopped it after two days and then the following week was in a full on adrenal crash curled up in my bed barely able to function. The whole week!” In context ↗ Made symptoms worse
- Ozone therapy and EBOO“That gave me some type of dieoff and I didn't feel great for a while thereafter.” In context ↗ Herx / die-off reaction
- Herbal remedies (unspecified), Slippery elm, Dandelion (root, extract, juice)“It's happened to me as well with the herbal protocol I'm on currently ... The fungal management side gives me the worst symptoms similar to what you describe.” In context ↗ Herx / die-off reaction
- Elimination diets (other)“more diet restrictions and fasting did nothing but make me worse over time with food limiting and stress” In context ↗ Made symptoms worse
- Intermittent fasting“At first it was the only thing that helped me, but doing it longterm destroyed my eating habits and messed up my hormones further.” In context ↗ Other
- Probiotics and fermented foods“I definitely get delayed symptoms from higher/stronger probiotics (next day or after) and don't feel like losing my hearing each time I push the envelope sadly.” In context ↗ Made symptoms worse
- Betaine HCl“Trying to up fats and adding especially hcl is like throwing fuel on the fire.” In context ↗ Made symptoms worse
- DAO enzymes“DAO ended up giving me bad heartburn after trying it for a couple weeks.” In context ↗ Gut side effects
- KPV, BPC-157“I broke out in chills (couldn't get warm even under comforter), fast pounding heart rate, and pounding headache all night. My tinnitus was off the charts” In context ↗ Side effects
- KPV, BPC-157“I've been titrating a kpv/bpc combo supplement and it usually hits several days in where my liver gets overloaded.” In context ↗ Liver or kidney problems
- KPV, BPC-157“I've tried that before and just felt worse.” In context ↗ Made symptoms worse
- Lactoferrin and colostrum“I didn't get any benefits from it at all, so I stopped it. I think it actually put me into some type of flare as I crashed pretty hard as I got towards the end of the bottle.” In context ↗ Autoimmune or inflammatory flare
Symptoms mentioned
Gut problemsHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseTemperature regulationTinnitusVision problems
Their words about their symptoms
- Gut problems
I have longterm idiopathic chronic gastritis
In context ↗ - POTS & dysautonomia
my pots came back with a vengeance in mid-January after the holidays
In context ↗ - Tinnitus
constant ear pressure/blurry vision/tinnitus
In context ↗ - Vision problems
I have a lot of eye issues/dry right eye and vision blurriness along with ear fullness/ringing
In context ↗ - Heart symptoms & palpitations
Magnesium and taurine by themselves have done nothing for my heart skips/flutters
In context ↗ - Headaches & migraine
pounding headache all night
In context ↗ - Pain & fibromyalgia
muscle aches throughout my whole body that are sometimes pretty strong
In context ↗ - Temperature regulation
I broke out in chills (couldn't get warm even under comforter)
In context ↗ - Post-exertional malaise
I'm guessing I'm getting PEM
In context ↗ - Muscle weakness
periodic crashes where it feels like my whole body just loses all energy (heavy limbs
In context ↗ - Neuropathy & tingling
right side eye pain, skin numbess/heaviness, plugged ears/tinnitus, jaw pain
In context ↗ - Mast cell (MCAS) & allergies
I'm not diagnosed mcas, but believe I have it to some degree
In context ↗
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