Moderate ME/CFS after long COVID, now somewhat better with gabapentin and low-dose Abilify
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
I've got moderate ME/CFS from long COVID
In context ↗ - At worst: Moderate
I've got moderate ME/CFS from long COVID ... Take a nap
In context ↗ - Now: Somewhat better
Low dose abilify helps a lot with my fatigue ... I've got moderate ME/CFS from long COVID
- Began after: COVID
I've got moderate ME/CFS from long COVID
In context ↗
Read from 12 of their posts and comments; links to the 7 this page draws on
Summary
They had moderate ME/CFS after long COVID, living without working after federal disability was refused, with a routine of light chores, reading and a daily nap. Stellate ganglion blocks, right side only, eased roving body pain but it returned every three months; gabapentin fully stopped the nerve pain. Low-dose Abilify helped fatigue a lot, and they also took LDN, modafinil and Prozac.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- therapy · Helped
I graduated from therapy. I found that I had built up enough mental tools to be accepting of my cfs.
In context ↗ - stellate ganglion blocks · Helped
The random pain is diminished by stellate ganglion blocks, but recurs about every 3 months.
In context ↗ - rest and pacing · Helped
Part of it was having my husband nag me about rest and pacing. That helped me feel less bad about slowing down.
In context ↗ - LDN · Helped
LDN was also instrumental ... low dose naltrexone (for inflammation)
- low dose abilify · Helped
Low dose abilify helps a lot with my fatigue ... low dose apiprazole (for fatigue)
- Gabapentin · Helped a lot
Gabapentin completely eliminated the nerve pain.
In context ↗ - modafinil · Helped
also had good results with modafinil ... Modafinil (for brain fog)
- Prozac · Not said
I take Prozac (for anxiety and depression, which are comorbid with ADHD)
In context ↗ - Wellbutrin · Not said
Wellbutrin (for being able to get up and do anything)
In context ↗
Approaches: CBT & mindset · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS following long COVIDI've got moderate ME/CFS from long COVIDIn context ↗ | Moderate | |
| 2024-09 | stellate ganglion block eased roving body pain, which returns about every 3 monthsThe random pain is diminished by stellate ganglion blocks, but recurs about every 3 months.In context ↗ | Moderate | Stellate ganglion block |
| 2024-09 | gabapentin eliminated nerve painGabapentin completely eliminated the nerve pain.In context ↗ | Moderate | |
| 2024-10-15 | still moderate; rests between chores, uses energy-saving kitchen aids, not workingI use these to prep ingredients ahead of time so I can rest before actually cooking.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Brain fog
my stellate ganglion block did not affect my CFS symptoms or my brain fog
In context ↗ - Pain & fibromyalgia
I've got moderate ME/CFS from long COVID, with additional random pain coming from LC.
In context ↗ - Neuropathy & tingling
I had this and was told I had nerve pain.
In context ↗ - Anxiety & low mood
I take Prozac (for anxiety and depression, which are comorbid with ADHD)
In context ↗
Ask Miruvor AI
Similar stories
-
Mostly bedbound with ME/CFS and daily POTS fainting, now much better with pacing
They developed ME/CFS after a COVID infection and were severe, mostly bedbound and fainting daily from POTS, for about two and a half years. Low-dose naltrexone, POTS medication, creatine and strict pacing helped them reach moderate, around Bell 40, but they…
-
Debilitated by long COVID with PEM and brain fog, now much better; clonidine helped
A man in his fifties with ME/CFS after COVID in July 2022 had four rough months before a booster brought full recovery, then cycles of relapse and partial recovery. A September 2023 sickness left him debilitated and forced early retirement. PEM, fatigue and…
-
Fatigue and brain fog with ME/CFS, somewhat better with low-dose naltrexone and pacing
Harbor 73697 fell ill in January 2023 with fatigue, brain fog and insomnia after an EBV infection at college, dropping out by April; POTS was diagnosed that summer. A COVID-like illness in late 2023 left her worse. Low-dose naltrexone and pacing were the…
-
Not enough detail to draw a path
Mostly housebound with ME/CFS, now much better with pacing and low-dose naltrexone
Rain 87212 developed ME/CFS in 2016 after glandular fever in 2012 and became moderate and mostly housebound while studying, at times severe. They got back to mild by 2021, were set back by COVID in 2021 and again in January 2025, then improved slowly while…