Long COVID with dizziness and insomnia, somewhat better after antihistamines, no caffeine
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 6 months
- Last post
- Jul 2022
In their words
- Condition: Long COVID
Got omicron in Jan 22. Just over 3 months now of various evolving symptoms.
In context ↗ - At worst: Mild
I had to leave work 3 days in a row early ... In my 6 months of LC I have taken 4 trips for work, 8 total flights up to 4 hours.
- Now: Somewhat better
My fatigue got better around month 6. My main issue now is severe dizziness and vertigo. If I could actually do an activity without feeling like I’m going to pass out, the fatigue has about passed.
In context ↗ - Began after: COVID
Got omicron in Jan 22.
In context ↗
Read from 17 of their posts and comments; links to the 11 this page draws on
Summary
A 37-year-old man developed long COVID after omicron in January 2022; months three and four were the worst, with twitching, pins and needles, burning, insomnia, GI cramps, brain fog and dizziness. Symptoms eased greatly around month five, which he put down to getting outside, antihistamines and avoiding caffeine; a 48-hour water fast also helped a lot. By month six most other symptoms had got much better, but severe dizziness and vertigo, plus new seizure-like episodes, forced him to leave work early.
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What they tried
What they credit
Also tried
Their words about each treatment
- anxiety meds · Worse
They made me super dizzy and ended up creating more side effects that made things worse and then took months to ween off.
In context ↗ - 48 hour fast with water only · Helped a lot
I did a 48 hour fast with water only, it helped a lot. By hour 16 most of my daily symptoms were greatly reduced by hour 36 I had nothing.
In context ↗ - Anti histamines · Helped
I take it before I go to bed it makes me feel better when I wake up, especially in the joints ... What has helped the most is simply trying to get outside for a few hours a day. Avoiding caffeine. Anti histamines.
- getting outside / gardening · Helped
Going outside a few times a day really helps me.
In context ↗ - avoiding caffeine · Helped
Avoiding caffeine.
In context ↗ - B12 · Not said
Also am on B12, vitamin D, turmeric, but not sure if that helped with the fog, was taking them for other reasons.
In context ↗ - Blood Pressure medicine · Not said
my Blood Pressure medicine made me be the multiple bathroom trip person
In context ↗
Approaches: H1 antihistamines · Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2022 | caught COVID (omicron)Got omicron in Jan 22.In context ↗ | Not stated |
| April 2022 | worst of the symptoms (twitching, pins and needles, burning, poor sleep, GI cramps)Month 3&4 was the worst of it.In context ↗ | Mild |
| May 2022 | major decrease of all symptomsthe major decrease of all symptoms was around month 5In context ↗ | Mild |
| June 2022 | down to dizziness and brain fogI’m pretty much down to dizziness and brain fog in month 6.In context ↗ | Mild |
| June 2022 | extra bad dizziness and vertigo, left work early three daysthe dizziness and vertigo have been extra bad. I had to leave work 3 days in a row early.In context ↗ | Mild |
| 2022-06-20 | left mainly with severe dizziness and vertigoMy main issue now is severe dizziness and vertigo.In context ↗ | Mild |
Adverse events
- Extended water fasting (3+ days)“I did have hunger headaches for a bit, but it was nice not to have burning and twitching.” In context ↗ Side effects
- “other than my Blood Pressure medicine made me be the multiple bathroom trip person” In context ↗ Side effects
- Antidepressants (unspecified)“I got these what I call brain shivers when I started taking anxiety meds. So I stopped after 6 weeks, not for me.” In context ↗ Side effects
- Antidepressants (unspecified)“tried some meds. They made me super dizzy and ended up creating more side effects that made things worse” In context ↗ Side effects
- Antidepressants (unspecified)“ended up creating more side effects that made things worse and then took months to ween off” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I do still have burning sensations, twitches, leg weakness, and pins and needles, off and on, few times a week
In context ↗ - Muscle weakness
the next day my legs and arms felt really week and had some burning sensations again
In context ↗ - Brain fog
Down to one bad case of fog lasting an hour or two about once a week.
In context ↗ - POTS & dysautonomia
the dizziness and vertigo have been extra bad
In context ↗ - Sleep problems
It’s very hard to sleep more than 3-4 hours without being woken up.
In context ↗ - Headaches & migraine
Slight headaches and then last night my leg got very stiff
In context ↗ - Gut problems
Then I would have GI cramps, diarrhea, and it would go away.
In context ↗ - Anxiety & low mood
I never had anxiety before, I didn’t know how to deal with it at all
In context ↗ - Hair loss
Jan Covid, hair loss starting in April, seems like it’s slowing down in June.
In context ↗ - Pain & fibromyalgia
1 time beer and bourbon I had some joint pain I didn’t before
In context ↗
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