Long COVID
Severe → much betterIll 3.5 years before improving or writingNeeds ongoing treatment
Long COVID with lung and brain damage, much better after physiotherapy and beta blockers
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Aug 2024
In their words
- Condition: Long COVID
My long Covid is quite different from other people as it is less virus related but more neurological related.
In context ↗ - At worst: Severe
I spent 9 weeks with respiratory assistance in the spring of 2021
In context ↗ - Now: Much better
I’ve resumed work since long but I’m working at my pace
In context ↗ - Began after: COVID
Lungs are now permanently damaged due to the virus.
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
After COVID in spring 2021, they spent nine weeks on respiratory assistance, leaving permanent lung damage and, as later concluded, brain damage from hypoxia. Physiotherapy, beta blockers and two years of antidepressants improved breathing, resting heart rate and brain fog, but noise sensitivity, memory problems and exhaustion after exertion persisted into 2024, when they had resumed work at their own pace.
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What they tried
Also tried
Their words about each treatment
- exercises with a physiotherapist · Helped
But doing exercises with a physiotherapist will help. I had one for 5 months, twice a week.
In context ↗ - vaccine (2 shots) · Helped
The only improvement I got from the vaccine (2 shots) is a lower heartbeat (From 100 to 80 at rest) and a slightly better breathing.
In context ↗ - beta blockers · Helped
Taking beta blockers since two years. If I forget, it starts again within 24h
In context ↗ - antidepressants · Helped
Brain fog. Much better after two years of antidepressants
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| spring of 2021 | COVID, then nine weeks on respiratory assistance in hospitalI stayed 9 weeks under respiratory assistance in April-May-June 2021.In context ↗ |
| fall 2021 | symptoms faded out of hospital; memory, focus, balance and sensitivity problems appearedWhen the symptoms slowly faded during fall, I started to notice that some things were going wrong (memory, focus, balance, sensitivity, etc…).In context ↗ |
| 2022-02-10 | physiotherapy twice a week for five months; still collapses after a few stairseven if I’m far from « fit » (I collapse after 4-5 stairs), I wouldn’t be where I am.In context ↗ |
| 2024-04-03 | lungs better, resumed work at own pace, three physiotherapistsI’ve resumed work since long but I’m working at my pace.In context ↗ |
| 2024-08-12 | brain fog better but noise sensitivity, memory problems and exhaustion after exertion remainOver sensitivity to noise with no improvement.. with tiredness, this is the main problem now as it affects my work and private life.In context ↗ |
Adverse events
- Graded rehab and self-made programmes“after leaving him I was going to bed for a few hours” In context ↗ Made symptoms worse
- COVID vaccination as treatment“since the vaccine, I have some skin sensitivity and pain in the forearms” In context ↗ Side effects
Symptoms mentioned
Brain fogBreathlessnessHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Brain fog
The biggest issues are brain fog, hyper tiredness and hyper sensitivity to noise.
In context ↗ - Sleep problems
I’m exhausted but can’t sleep with my legs shaking like I was on a trampoline in my bed
In context ↗ - Light & noise sensitivity
Over sensitivity to noise with no improvement.. with tiredness, this is the main problem now
In context ↗ - Breathlessness
I’ve lost the respiratory reflex. When doing an « exercise » I must THINK to breathe, otherwise I go in apnoea.
In context ↗ - Heart symptoms & palpitations
Heart issues like tachycardia and extrasystoles. Definitively under beta blockers.
In context ↗ - Headaches & migraine
One for headaches, one for the general cardio and lung situation
In context ↗ - Vision problems
I was behind the wheel and thought a car was parked while it was in fact moving. Thx ABS… this is better now.
In context ↗ - Pain & fibromyalgia
since the vaccine, I have some skin sensitivity and pain in the forearms
In context ↗