Bedbound with long COVID, now somewhat better with rest and vitamin IVs
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 23 months
- Last post
- May 2026
In their words
- Condition: Long COVID
one of my most inconvenient symptoms of LC..
In context ↗ - At worst: Severe
I was bedbound for months and got a little better but still I cant do anything.
In context ↗ - Now: Somewhat better
I have been getting a bit better. ... I’m still mostly housebound.
In context ↗ - Began after: COVID
I even had hope when I was diagnosed with covid few days after.
Read from 13 of their posts and comments; links to the 8 this page draws on
Summary
They woke in June 2024 severely ill, were diagnosed with COVID days later and spent months bedbound. Months on they could not leave the house without exhaustion, and by 2026 they were still mostly housebound, not working and applying for disability. They credit rest and not working for a slow, non-linear gain, with vitamin IVs and supplements helping a little. PEM, brain fog, orthostatic symptoms and anxiety persist.
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What they tried
What they credit
Also tried
Their words about each treatment
- therapy · Helped
For me it did a bit but there is no help if we longhaulers cant do anything.
In context ↗ - rest · Helped a lot
For me what is HUGE is rest - I was bedbound for a while so I didn’t work at all
In context ↗ - benzos · No change
I did and it didn’t help obviously.
In context ↗ - betablockers · Not said
they checked my heart and gave me betablockers
In context ↗ - pacing · Not said
I also though I could pace myself there but my PEM is so unpredictable
In context ↗ - vagus nerve exercises · Worse
its interesting that you mention vagus nerve exercises, i have a similar problem
In context ↗ - breathing exercises and deep breathing · Worse
i cant do breathing exercises and deep breathing, it does the opposite of calming me down and triggered panic attacks in the past.
In context ↗ - Anti nausea medication · Worse
Anti nausea medication - vision issue.
In context ↗ - Antidepressants · Much worse
Antidepressants - HELL. ON. EARTH.
In context ↗ - BC · Worse
BC - hair loss, tingling in legs, insomnia, nightmares, anxiety.
In context ↗ - Vitamin D · Worse
Vitamin D - feeling off, like horrible pem or pots, dizziness.
In context ↗ - Blood thinners · Worse
Blood thinners - anxiety, blood pooling leg pain (had me in tears).
In context ↗ - vitamin IV's · Helped
What I think helped a bit too - vitamin IV’s, trying to avoid reinfection, supplements.
In context ↗
Approaches: Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| June 2024 | woke up severely ill; diagnosed with COVID a few days laterI went to sleep one day in June 2024 and woke up like this.In context ↗ | Severe | |
| mid 2024 | bedbound for monthsI was bedbound for monthsIn context ↗ | Severe | |
| 2025-02-19 | a little better but cannot leave the house without exhaustionI was bedbound for months and got a little better but still I cant do anything. I cant go out of my house without feeling exhausted from every errand and interaction.In context ↗ | Moderate | Radical rest |
| 2026-05-20 | still mostly housebound, not working, applying for disabilityI just want to say that “getting better” is very non linear with huge downs and getting back up, and I’m still mostly housebound.In context ↗ | Moderate | Radical rest |
Adverse events
- Meditation, yoga, breathwork“i cant do breathing exercises and deep breathing, it does the opposite of calming me down and triggered panic attacks in the past.” In context ↗ Mood or psychiatric effects
- “Anti nausea medication - vision issue.” In context ↗ Side effects
- Hormonal birth control (unspecified)“BC - hair loss, tingling in legs, insomnia, nightmares, anxiety.” In context ↗ Side effects
- Vitamin D and sun exposure“Vitamin D - feeling off, like horrible pem or pots, dizziness.” In context ↗ Made symptoms worse
- “Blood thinners - anxiety, blood pooling leg pain (had me in tears)..” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my PEM is so unpredictable, one day I could walk over 5k steps and be fine and the other do some basic housework and crash
In context ↗ - Brain fog
blood pooling, brain fog, small fiber neuropathy, orthostatic intolerance
In context ↗ - Sleep problems
Yeah I can sleep better
In context ↗ - Headaches & migraine
vertigo, visual snow, headaches, eye fatigue, light intolerance
In context ↗ - Light & noise sensitivity
eye fatigue, light intolerance
In context ↗ - Breathlessness
orthostatic intolerance, air hunger
In context ↗ - Heart symptoms & palpitations
tachykardia episodes, heart palpitations
In context ↗ - Neuropathy & tingling
small fiber neuropathy
In context ↗ - Anxiety & low mood
anxiety, depression
In context ↗ - Vision problems
visual snow, headaches
In context ↗
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