Bedridden with ME/CFS, remission after antidepressants and life change, bedridden again
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 9.5 years
- Last post
- Oct 2023
In their words
- Condition: ME/CFS
I was sick in 2014 bedridden 21 months and 2.5 years more to go into remission
In context ↗ - At worst: Severe
bedridden 16 months and getting worse despite trying everything
In context ↗ - Now: Relapsed
crashed again end of 2017, meds again continued to affect but mask the issues, then bam! Protracted withdrawal had me crash and bedridden again
In context ↗
Summary
Cove 25442 fell ill in 2014 and was bedridden 21 months. High-dose antidepressants and a complete life change brought remission, but a crash at the end of 2017 and protracted withdrawal left them bedridden again. After about four years of a new life they crashed around mid-2022, and by October 2023 had been bedridden 16 months and were getting worse despite medications, supplements, diets, meditation, vagal nerve work and therapy.
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What they tried
What they credit
Also tried
Their words about each treatment
- mega high antidepressants · Helped a lot
I was sick in 2014 bedridden 21 months and 2.5 years more to go into remission - but it was with mega high antidepressants and a complete life change
In context ↗ - supplements · Not said
I’ve tried meds, supplements, showers, pushing, resting, diets, meditations, vagal nerve, therapy
In context ↗ - pushing · Worse
I keep trying to get moving and push through.. nope..
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2014 | Fell ill in 2014, bedriddenI was sick in 2014 bedridden 21 monthsIn context ↗ | Severe | |
| ~2017 | Went into remission2.5 years more to go into remission - but it was with mega high antidepressants and a complete life changeIn context ↗ | Near normal | Antidepressants (unspecified) |
| end of 2017 | Crashed again, protracted antidepressant withdrawalcrashed again end of 2017, meds again continued to affect but mask the issues, then bam! Protracted withdrawal had me crash and bedridden againIn context ↗ | Severe | |
| ~2018 | Four years into a new lifethis crash of 16 months is the most devastating yet as I was 4 years into a new life and doing great thingsIn context ↗ | Near normal | |
| ~mid 2022 | Crash after four good yearsthis crash of 16 months is the most devastating yetIn context ↗ | Severe | |
| 2023-10 | Still bedridden and getting worsebedridden 16 months and getting worse despite trying everythingIn context ↗ | Severe |
Adverse events
- Antidepressants (unspecified)“then bam! Protracted withdrawal had me crash and bedridden again.” In context ↗ Withdrawal problems
- Antidepressants (unspecified)“I tried and the body/brain just bucked and made me sicker.” In context ↗ Made symptoms worse
- Antidepressants (unspecified)“I’m so damaged now from them that my cognition is poor” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
cognition is poor and the fog is 1000 thoughts an hour
In context ↗ - Pain & fibromyalgia
pain beyond words
In context ↗ - Vision problems
vision loss and cognitive decline
In context ↗ - Sleep problems
Tv no, phone (more than I should), sleep no
In context ↗ - Light & noise sensitivity
Tv no, phone (more than I should)
In context ↗ - Neuropathy & tingling
neurological buzzing and burning
In context ↗ - Anxiety & low mood
it's a living psychosis - one I'm watching from the outside
In context ↗
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