Long COVID
Moderate → somewhat betterIll 2 years before improving or writing
Long COVID left her unable to work, with slow partial improvement since
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Apr 2023
In their words
- Condition: Long COVID
Am a long covid patient (delta)
In context ↗ - At worst: Moderate
All I do is listening to audio books, sleep, walk n beach and simple housewife tasks. After which I am exhausted and goto sleep at 21.00.
In context ↗ - Now: Somewhat better
Still on road to recovery. Libido a bit better but nowhere where it used to be.
In context ↗ - Began after: COVID
Had delta in march 21, suffering from long covid.
Read from 23 of their posts and comments; links to the 13 this page draws on
Summary
Woman who caught COVID-19 in April 2021 and was left unable to work with nightly panic attacks, brain fog, fatigue, headaches and loss of smell and taste. Two Moderna boosters each made her ill for days to weeks. She reported slow partial improvement during 2022 and started light workouts, but still had to limit activity carefully to avoid crashes lasting a day to a week, and was still recovering in April 2023.
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What they tried
Also tried
Their words about each treatment
- moderna booster · Worse
both moderna boosters made me very sick, for about 4-6 weeks
In context ↗ - treatments · Helped
They helped for physical issues and brainfog improved a bit, but not memory loss and missing words and such.
In context ↗ - zinc · No change
didn't recover sense of smell or taste
In context ↗ - exercise · Worse
Even light workout sometimes puts me back 1-3 days.
In context ↗ - limiting activity · Not said
Need to limit my activity very carefully, even when feeling well, otherwise I crash for at least 24h, up to a week.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| April 2021 | COVID-19 (delta), very illI recovered from very bad covid in April 2021.In context ↗ |
| October 2021 | first Moderna booster made her illAfter 1st booster was sick for almost 10 days, with what felt like a milder version of covidIn context ↗ |
| December 2021 | nightly panic attacks, exhausted after a single task, not workingsometimes I manage to do 1 thing such as ironing and afterwards am completely exhausted and need to sleep.In context ↗ |
| May 2022 | slowly coming out of the cloud, though some days still blurryNow slowly coming out of my 'cloud ' but still some days life is blurry.....In context ↗ |
| May 2022 | second Moderna booster caused a relapse, two days in bedIt's day 3 after 2nd booster, again had a relapse , 2 full days in bed, pain, nighmares, cough, tight chest etc.In context ↗ |
| September 2022 | physically recovering better, started working out againAt least physically I am recovering better, just started working out again.In context ↗ |
| November 2022 | crashed for 1-3 days after light workoutsEven light workout sometimes puts me back 1-3 days.In context ↗ |
| April 2023 | still slowly recovering, libido a bit betterStill on road to recovery. Libido a bit better but nowhere where it used to be.In context ↗ |
Adverse events
- COVID vaccination as treatment“After 1st booster was sick for almost 10 days, with what felt like a milder version of covid ( I was really sick with lots of pain) ... both moderna boosters made me very sick, for about 4-6 weeks.” Made symptoms worse
- COVID vaccination as treatment“It's day 3 after 2nd booster, again had a relapse , 2 full days in bed, pain, nighmares, cough, tight chest etc.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessHair lossHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tastePain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
Need to limit my activity very carefully, even when feeling well, otherwise I crash for at least 24h, up to a week.
In context ↗ - Brain fog
Brain fog, difficulty to retrieve certain words, remember names etc.
In context ↗ - Pain & fibromyalgia
waking up with completely stiff neck, shoulders, upper back
In context ↗ - Headaches & migraine
They were bad, still have them from time to time but less.
In context ↗ - Breathlessness
Tight chest with decreased lung capacity.
In context ↗ - Heart symptoms & palpitations
Today am weak, sweaty, heart pounding
In context ↗ - Anxiety & low mood
Had very bad anxiety attacks, now less frequently but still at least 1 per week.
In context ↗ - Loss of smell or taste
Sense of smell: 0
In context ↗