Long COVID
Severe → relapsedIll 1 year before improving or writing
Long COVID improved to 80–90%, then reinfection left them bedbound with severe PEM
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Oct 2026
In their words
- Condition: Long COVID
long hauling since 2021 and was reinfected in febuary 2023
In context ↗ - At worst: Severe
the last 4 weeks I have progressively gotten worse fatigue wise to the point i am completely bed bound and can hardly feed myself
In context ↗ - Now: Relapsed
I was fully recovered for about 2 years until a reinfection. I'm about 8 months in to this round of long haul and much worse lol
In context ↗ - Began after: a vaccination
My long haul Symtoms we're braught on from the moderna vaccine
Read from 203 of their posts and comments; links to the 51 this page draws on
- Feb 2026
- Feb 2026
- Oct 2026
- Jun 2022
- Jun 2022
- Jun 2022
- Sep 2022
- Sep 2022
- Sep 2022
- Jul 2022
- May 2022
- Aug 2022
- Jan 2023
- Oct 2022
- Mar 2023
- Sep 2026
- Jun 2023
- Jun 2023
- Sep 2023
- Feb 2024
- Feb 2024
- May 2023
- Jan 2026
- Jan 2026
- May 2026
- Jan 2025
- Jun 2026
- Jul 2026
- Jul 2026
- Oct 2026
- Jul 2026
- Sep 2022
- Feb 2023
- May 2023
- Jun 2023
- Jul 2025
- Jan 2026
- Apr 2026
- Sep 2026
- Jun 2023
- Apr 2023
- Apr 2023
- Oct 2026
- May 2022
- Jun 2024
- Jun 2022
- Jun 2022
- Apr 2023
- Feb 2026
- May 2022
- Aug 2022
Summary
Long COVID began abruptly in November 2021 after a Moderna dose, with vertigo, palpitations and muscle twitches. They improved substantially over about a year, reaching roughly 80–90% by 14 months, then a February 2023 COVID reinfection set them back badly. It left them bedbound for months with severe PEM, fatigue and depression, and by April 2024 they were still only about 40% recovered.
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What they tried
What they credit
Also tried
Niacin (flushing kind)· Helped a lotBetahistine (betathistine / Serc)· Helped a lotCarnivore diet· Helped a lotMagnesium (citrate)· HelpedCoconut water, electrolyte powder and salt tablets· HelpedCoconut water, electrolyte powder and salt tablets· HelpedPotassium· HelpedAshwagandha· HelpedChamomile tea· HelpedFish oil· HelpedRed / infrared light therapy device· HelpedAntimicrobials· HelpedBaby aspirin· HelpedDaily antihistamine· HelpedDXM (dextromethorphan)· HelpedPEA-LUT· No changeStatin (pravastatin)· No changeValtrex· No changeLysine· No changeH2 antihistamine· No changeQuercetin and luteolin· No changeNatto-Serra· WorseNatto-Serra· WorseNAC· WorseLactoferrin· WorseVitamin B12 / B vitamins· WorseVitamin B12 / B vitamins· WorseLDN· WorseLumbrokinase· WorseHormone replacement therapy (HRT)· WorseOral antifungal· Much worseSpironolactone· Much worseEstradiol (estrogel)· Much worseEquimec horse paste (ivermectin)· Not saidRaw garlic· Not saidLemon balm and skullcap teas· Not saidLemon balm and skullcap teas· Not saidL-theanine and DLPA· Not saidL-theanine and DLPA· Not saidMucuna / L-Dopa· Not saidMucuna / L-Dopa· Not saidAHCC and medicinal mushrooms (reishi, shiitake, maitake)· Not said
Their words about each treatment
- Niacin (flushing kind) · Helped a lot
NIACIN the flushing kind completely lifted my fatigue within a week of taking in.
In context ↗ - Betahistine (betathistine / Serc) · Helped a lot
this completely cured my boat rocking vertigo and ear fullness/pressure/tinnitus in around 2 weeks
In context ↗ - Oral antifungal · Much worse
it ramped how everything and brought in severe brain fog, head pressure and insane pots within a few hours of taking it and that was months ago I’m still recovering from that
In context ↗ - Magnesium (citrate) · Helped
Magnesium got rid of about 90% of them, I get the Occassion twitch here and there
In context ↗ - Coconut water, electrolyte powder and salt tablets · Helped
I’ve been drinking coconut water every day recently and it has helped remarkably most days when I drink it, significantly reducing pots symptoms brain fog and fatigue
In context ↗ - Potassium · Helped
Introducing electrolytes and potassium supplements made them go away.
In context ↗ - Ashwagandha · Helped
Ashwuaghanda has helped heaps with the adrenal stuff
In context ↗ - Chamomile tea · Helped
drinking camomile tea every day in the morning or at night will help filter out that excess cortisol feeding those dumps
In context ↗ - Equimec horse paste (ivermectin) · Not said
I have tried it once or twice but not long enough to notice any changes but enough to know it isn’t causing any I’ll effects seems pretty harmless
In context ↗ - Raw garlic · Not said
I just ate two crushed raw cloves and I look pregnant with bloat haha
In context ↗ - Natto-Serra · Worse
when I take natto/serra I have an increase in symptoms not sure whether that is a herd reaction, or a histamine reaction to the fermentation of the natto!
In context ↗ - Fish oil · Helped
I did notice fish oil making some difference the other week
In context ↗ - NAC · Worse
nac always makes me feel super depressed and flat the following day, also gives me shortness of breath
In context ↗ - Lactoferrin · Worse
I tried lactoferrin a few days ago and it sent me into a massive flare of fatigue and light headedness within 24 hours.
In context ↗ - Nicotine patches · Helped
Nicotine patches and red light therapy helped
In context ↗ - Nicotine vape · Helped
using a vape does help Brian fog a little it’s so wierd
In context ↗ - Red / infrared light therapy device · Helped
I’m not sure if the red light is helping but it does seem to help me thing clearer and reduce the depression the following day after using
In context ↗ - PEA-LUT · No change
I got the supplement, it did shit all (no improvement)
In context ↗ - Vitamin B12 / B vitamins · Worse
I react pretty badly to b12 myself !
In context ↗ - LDN · Worse
I react really strongly to LDN it makes my body go ham
In context ↗ - Statin (pravastatin) · No change
just started a statin and LDN last week too not sure if they’re helping though
In context ↗ - Spironolactone · Much worse
i was taking 50-100mg for 2 and a half months and then BOOM. my pots exploded and now can't move from bed
In context ↗ - Estradiol (estrogel) · Much worse
I was pretty functional and took spironolactone and estrogel as a form of HRT and it made all of my POTS symptoms worse as well as MCAS
In context ↗ - Low-histamine / anti-inflammatory diet · Helped
It wasn’t until cleaning my diet and supplementing niacin that I steadily improved
In context ↗ - Kefir, pre- and probiotics · Helped a lot
i did do pro and prebiotics myself aswell as antimicrobials and kefir which i think helped more with anhedonia and depression post covid than anything else
In context ↗ - Carnivore diet · Helped a lot
Starting the carnivore diet really pushed the needle for me too!
In context ↗ - Lemon balm and skullcap teas · Not said
I use calming teas like cammomile and lemonbalm and scullcap to calm my nervous system
In context ↗ - L-theanine and DLPA · Not said
In terms of dopamine I took l-theanine, DLPA and did one month if dopa mucuna or L DOPA.
In context ↗ - Mucuna / L-Dopa · Not said
did one month if dopa mucuna or L DOPA
In context ↗ - Valtrex · No change
Valtrex + Lysine ... Safe to say none of the above are helping lol
In context ↗ - Baby aspirin · Helped
for me i toon a daily antihistamine, reduced histamine and inflammatory foods from my diet and daily baby aspirin.
In context ↗ - H2 antihistamine · No change
H1 & H2 antihistamines ... Safe to say none of the above are helping lol
In context ↗ - Quercetin and luteolin · No change
Natural mast cell stabalises querc + luetolin ... Safe to say none of the above are helping lol
In context ↗ - DXM (dextromethorphan) · Helped
I also found dxm really helped me personally with visual and auditory sensory issues
In context ↗ - Lumbrokinase · Worse
I have some lumbro though ! Makes me dizzy as helll
In context ↗ - AHCC and medicinal mushrooms (reishi, shiitake, maitake) · Not said
Lions mane gave me stabbing pains in my brain
In context ↗ - Hormone replacement therapy (HRT) · Worse
the following week i had an entire week of panic attacks and non stop fight or flight which landed me in hospital
In context ↗
Approaches: Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| November 17th 2021 | abrupt onset of boat rocking vertigo, heart palpitations, muscle aches and twitchesMy Symtoms started abruptly on November 17th 2021.In context ↗ | Mild |
| March 2022 | severe brain fog, head pressure and POTS within hours of an oral antifungalit ramped how everything and brought in severe brain fog, head pressure and insane pots within a few hours of taking itIn context ↗ | Moderate |
| November 2022 | functional enough to see friends and enjoy life againStarted November 2021 by November 2022 was functional enough to see friends and get enjoyment out of life againIn context ↗ | Mild |
| February 2023 | COVID reinfection, symptoms relapsed and back to bedreinfected this February after 14 months and about 80% recovery! Been slowly getting worse over the last month and back to being bed boundIn context ↗ | Severe |
| April 2023 | bed bound with PEM, extreme fatigue and depression after reinfectionUnfortunately it has added on PEM/extreme fatigue/depression.In context ↗ | Severe |
| 2024 | functional and happy again, full life through 2024 and 2025by 2024 i was on an upward trend and functional/happy againIn context ↗ | Near normal |
| January 2026 | panic attacks and adrenal dumps after HRT, hospitalisedthe following week i had an entire week of panic attacks and non stop fight or flight which landed me in hospitalIn context ↗ | Severe |
| February 2026 | progressively worsening fatigue, completely bed boundthe last 4 weeks I have progressively gotten worse fatigue wise to the point i am completely bed bound and can hardly feed myselfIn context ↗ | Severe |
| October 2026 | still deeply ill, mostly bed and couch bound with severe PEM and fatigueI'm mostly bed and couch bound ... I'm still very deep in it | Severe |
Adverse events
- Antifungals (unspecified)“I took an oral anti fungal that is super toxic to the liver and heart and it ramped how everything and brought in severe brain fog, head pressure and insane pots within a few hours of taking it” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“I flare taking NAC and that gives me shortness of breath and I get crazy detox side effects” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“nac always makes me feel super depressed and flat the following day, also gives me shortness of breath” In context ↗ Mood or psychiatric effects
- Nattokinase, Serrapeptase“when I take natto/serra I have an increase in symptoms not sure whether that is a herd reaction, or a histamine reaction to the fermentation of the natto” In context ↗ Made symptoms worse
- Spironolactone“I tried taking a low dose 25mg and even that flawed me I could barely move until I went off it” In context ↗ Made symptoms worse
- Lactoferrin and colostrum“I tried lactoferrin a few days ago and it sent me into a massive flare of fatigue and light headedness within 24 hours” In context ↗ Made symptoms worse
- AHCC and medicinal mushrooms (reishi, shiitake, maitake)“Lions mane gave me stabbing pains in my brain” In context ↗ Side effects
- Magnesium“For me too much magnesium gives me heart flutters and potassium eliminates it” In context ↗ Heart rhythm problems
- Vitamin B12“I react pretty badly to b12 myself !” In context ↗ Side effects
- Low-dose naltrexone“I react really strongly to LDN it makes my body go ham ... it would still send me into a crash” In context ↗ Made symptoms worse
- Estrogen (estradiol)“I had been on hrt (combination of spiro/estradiol and had to come off them as I couldn’t tolerate them (or any mediation) at the start of my long Covid” In context ↗ Side effects
- Spironolactone“i was taking 50-100mg for 2 and a half months and then BOOM. my pots exploded and now can't move from bed and constantly short of breath and having adrenal dumps and fatigue” In context ↗ Made symptoms worse
- Salt, electrolytes and fluids“i'm finding i'm having palpitations or little heart flutters / addrebal dumps shortly after taking mixed electroyltes” In context ↗ Heart rhythm problems
- Estrogen (estradiol)“took spironolactone and estrogel as a form of HRT and it made all of my POTS symptoms worse as well as MCAS ... i've bed bed ridden for most most of january” In context ↗ Made symptoms worse
- Hormone replacement therapy (HRT)“the following week i had an entire week of panic attacks and non stop fight or flight which landed me in hospital” In context ↗ ER visit
- Low-dose naltrexone“i'm trying it again now too and can hardly lift my arms it's made me so weak and heavy” In context ↗ Made symptoms worse
- Nattokinase, Lumbrokinase“Natto hasn't agreed with me in the past I have some lumbro though ! Makes me dizzy as helll” In context ↗ Made symptoms worse
- Low-dose naltrexone“LDN for my will causes crashes and trigger my vertigo to resurge” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityMast cell (MCAS) & allergiesMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTinnitusVision problems
Their words about their symptoms
- Post-exertional malaise
since reinfection I now have cfs and severe pem crashes
In context ↗ - Brain fog
the Anhedonia and no emotions has come back as well as some brain fog
In context ↗ - POTS & dysautonomia
my symptoms are dysautonomia, POTS, heat palps, adrenal dumps
In context ↗ - Mast cell (MCAS) & allergies
all of my POTS symptoms worse as well as MCAS
In context ↗ - Sleep problems
waking me up but only as I was drifting to sleep
In context ↗ - Pain & fibromyalgia
muscle aches and muscle twitches
In context ↗ - Headaches & migraine
It has been replaced with head pressure and brain fog/light headed drunk feeling
In context ↗ - Gut problems
I had a crazy candida bloom post Covid
In context ↗ - Light & noise sensitivity
wearing ear plugs and putting on sunglasses helped a lot to calm down all the information coming in
In context ↗ - Breathlessness
air hunger(not enough oxygen to brain)
In context ↗ - Heart symptoms & palpitations
What started of as boat rocking vertigo and heart palpitations
In context ↗ - Muscle weakness
flat mood anxiety, muscle weakness and fatigue
In context ↗ - Anxiety & low mood
by jan i was struck with non stop panic and anxiety
In context ↗ - Tinnitus
The tinitus did return shortly after stopping but it goes away when I start taking the betathistine again.
In context ↗ - Vision problems
dizziness, air hunger(not enough oxygen to brain) dark eye floaters
In context ↗ - Hair loss
why am I pulling clumps of hair out when I shower?
In context ↗
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