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Long COVID Severe → somewhat betterIll 20 months before improving or writing

Barely functioning with long COVID, now about 50% better with psilocybin and light mat

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
20 months
Last post
Oct 2023
In their words
  • Condition: Long COVIDI have had long-term Covid for a year and a half now, in particular chronic fatigue syndrome In context ↗
  • At worst: SevereThe Adderall has only allowed me to shower, clean, and occasionally do some light work In context ↗
  • Now: Somewhat betterI’m 50% better after 20 months of suffering In context ↗
  • Began after: COVIDI have had long-term Covid for a year and a half now
Read from 11 of their posts and comments; links to the 6 this page draws on

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Summary

Nightjar 17379 got long COVID in early 2022 and was still barely functioning 18 months later; maximum-dose Adderall only let them shower, clean and do light work. Homeopathy, Modafinil and ivermectin did nothing, but psilocybin, approved by their psychiatrist, cleared brain fog and memory problems within a month and left them about 50% better, though fatigue remained. A near-infrared light mat also helped.

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What they tried

Their words about each treatment
  • Cymbalta · Not saidI take Cymbalta and have been for the past year and a half In context ↗
  • homeopathy · No changehas had me try several different rounds of homeopathy. None of them worked In context ↗
  • Ivermectin · No changeA very hi dose of Ivermectin, then Modafinal(narcolepsy meds) Nothing helped In context ↗
  • narcolepsy medication (Modafinil) · No changehe introduced narcolepsy medication that did not help either In context ↗
  • Adderall · HelpedThe Adderall has only allowed me to shower, clean, and occasionally do some light work In context ↗
  • psilocybin · Helped a lotPsilocybin has almost completely removed my brain fog and memory issues In context ↗
  • NIR red light mat · HelpedI have a mat I lay on every day it helps a lot In context ↗
  • meditation · Helpedif it wasn’t for meditation, I don’t know where I’d be right now In context ↗
  • supplements · Not saidAfter spending $$$ on endless suplementos, nutritionist, and Rx In context ↗

Approaches: Alternative therapies · Other drugs and medicines

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
2022COVID infection followed by long COVID with chronic fatigue, brain fog and memory issuesI have had long-term Covid for a year and a half now, in particular chronic fatigue syndrome, brain fog, memory issues In context ↗
2023-07-18Fatigue so strong that maximum-dose Adderall only allowed showering, cleaning and light workThe Adderall has only allowed me to shower, clean, and occasionally do some light work . In context ↗
2023-09-09Brain fog and memory issues cleared after a month of psilocybin; felt like themselves again, fatigue still presentIt’s been 1 month and I feel like myself again. In context ↗
2023-10-09About 50% better after 20 months; brain fog, shakes and memory problems gone, fatigue still limitingI’m 50% better after 20 months of suffering In context ↗

Symptoms mentioned

Their words about their symptoms
  • Brain fogPsilocybin has almost completely removed my brain fog and memory issues In context ↗
  • Sleep problemsI fall asleep often times within an hour of taking it during meditation In context ↗
  • Neuropathy & tinglingmy body would just vibrate and shake uncontrollably at certain times almost like an electrical shock for 10 seconds In context ↗
  • POTS & dysautonomiathat heavy feeling of fog dizziness zombie like that hangover feeling has dissipated by at least 50 to 75% In context ↗
  • Pain & fibromyalgiahelps with the chronic fatigue as well as pains aches In context ↗

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