Bedridden 16 months with long COVID, now nearly back to normal with rest and pacing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2025
In their words
- Condition: Long COVID
I’m 3 years post-Covid and was diagnosed with both fibromyalgia and IBS during that time.
In context ↗ - At worst: Severe
from being bedridden for 16 months to running 5k twice a week
In context ↗ - Now: Near normal
from being bedridden for 16 months to running 5k twice a week, back to lifting weights and applying for phd this winter session ... ps: i still have pain. my pain levels are at minimum 2/10. Energy levels vary from day to day.
- Began after: COVID
Developed long covid after the infection and not after vaccination.
Read from 11 of their posts and comments; links to the 6 this page draws on
Summary
A man in his late twenties developed long COVID three years before writing, with widespread pain, fatigue, brain fog, poor sleep and IBS; he was bedridden for 16 months. Rest and pacing helped most; pain, fatigue and resting heart rate improved around 15-16 months, and slow gradual exercise improved sleep. A course of amoxicillin for a wisdom tooth extraction flared his pain and fatigue; by late 2025 he was running 5k twice a week.
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What they tried
What they credit
Also tried
Their words about each treatment
- Amoxicillin · Worse
Since starting it, I’ve noticed my fibro pain/long covid pain, has increased
In context ↗ - pacing · Helped
pacing and not pushing beyond my limits.
In context ↗ - Neurobion (Vitamin B complex with B12) · Helped
was given to my by my neuro. this really helped me with my over active bladder
In context ↗ - Magnesium · Helped
better sleep and muscle relaxation.
In context ↗ - massage mat · Helped
What’s helped me manage fibro + IBS: ... **Massage mat**
In context ↗ - Portable sauna · Helped
What’s helped me manage fibro + IBS: ... **Portable sauna**(at home)
In context ↗ - Exercise · Helped
this gradual introduction of exercise further improved my sleep quality
In context ↗ - Colospa Ret@rd · Helped
have helped improve my digestion and reduce bloating/pain
In context ↗ - taking rest · Helped a lot
Honestly, taking rest has helped the most.
In context ↗ - Domperidone · Helped
really reduces the headache intensity and i dont have to suffer for days
In context ↗ - Covid vaccine · Helped a lot
Covid vaccine saved my life. Developed long covid after the infection and not after vaccination.
In context ↗
Approaches: Alternative therapies · Antibiotics · Pacing · Physiotherapy and rehab · Radical rest · Supplements · Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | Long COVID after Covid infection; bedridden 16 monthsfrom being bedridden for 16 monthsIn context ↗ | Severe | |
| 15-16 months into long covid | fatigue and pain improved, resting heart rate down to the 70s; began walking in the house15-16 months into my long covid, there was improvement in my fatigue and pain levelsIn context ↗ | Moderate | Radical rest |
| after the 15-16 month mark | gradual walking and stationary bike; sleep quality improvedlater use my stationary bike at home. this gradual introduction of exercise further improved my sleep quality.In context ↗ | Mild | Graded rehab and self-made programmes |
| 2025-09-16 | flare of pain and fatigue after amoxicillin for a wisdom tooth extractionSince starting it, I’ve noticed my fibro pain/long covid pain, has increasedIn context ↗ | Mild | |
| 2025-10-06 | running 5k twice a week and lifting weightsfrom being bedridden for 16 months to running 5k twice a week, back to lifting weightsIn context ↗ | Near normal | Graded rehab and self-made programmes |
Adverse events
- Amoxicillin (Amoxil)“Since starting it, I’ve noticed my fibro pain/long covid pain, has increased — more fatigue, widespread aches, and just an overall flare feeling.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Widespread body pain ... i still have pain. my pain levels are at minimum 2/10.
- Sleep problems
Poor sleep quality
In context ↗ - Gut problems
Stomach pain, bloating, nausea from IBS
In context ↗ - Heart symptoms & palpitations
elevated resting heart rate
In context ↗ - Headaches & migraine
the migraines I started getting after Covid
In context ↗ - Tinnitus
ringing in my left ear
In context ↗
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