Mostly bedbound with long COVID, now somewhat better after leaving a stressful home
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- Condition: Long COVID
Yes and yes. For myself it really helped with brain fog, cognitive energy and alertness.
In context ↗ - At worst: Very severe
I spent nearly the last year and a half mostly bedbound, very severe.
In context ↗ - Now: Somewhat better
suddenly my symptoms are improving and ive been able to slowly work my activity level up to be able to maintain my own minimal home chores
In context ↗
Read from 10 of their posts and comments; links to the 9 this page draws on
Summary
A Canadian long COVID patient was mostly bedbound and very severe for about a year and a half, depressed, unable to work, with brain fog, standing heart-rate increases and daily hemiplegic migraines. Folate and B12 ended the migraines and Ethylene Blue helped with brain fog while they took it. Their symptoms began improving after they left a ten-year relationship and a stressful home in 2026, though the gains were small.
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What they tried
What they credit
Also tried
Their words about each treatment
- Ethylene Blue · Helped
For myself it really helped with brain fog, cognitive energy and alertness. Only lasted as long as I was taking it.
In context ↗ - folate and b12 · Helped
started taking folate and b12 ... it basically got rid of my daily hemiplegic migraines
In context ↗ - ibuprofen · Helped
Yep, also took too much for too long and injured my kidneys.
In context ↗ - Naproxen · Not said
I am still able to use Naproxen because its an NSAID processed in the liver (i use the non liquigel tablets), but I definitely use it sparingly because of that experience.
In context ↗ - Liposomal glutathione · Helped
Liposomal glutathione really helps me cognitively. Ill take one of the gelcaps on days where I know i need to use brain power.
In context ↗ - vivoactive5 · Helped
I tend to have less symptoms after. Not a lot less, but I'll take it.
In context ↗ - fexofenadine or Allegra · Helped a lot
For mine it is fexofenadine or Allegra. It has been working wonders for me.
In context ↗ - had to leave our home · Helped
I had to leave our home for my own peace and suddenly my symptoms are improving and ive been able to slowly work my activity level up
In context ↗ - flu and covid shots · Worse
I flare for 3-5 days after getting them, but it seems to be pretty much the same each time
In context ↗
Approaches: Mould avoidance
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2025 | mostly bedbound, very severe and depressed for about 18 monthsI spent nearly the last year and a half mostly bedbound, very severe.In context ↗ | Very severe | |
| 2026-10 | left a stressful ten-year relationship and home; symptoms slowly improvingsuddenly my symptoms are improving and ive been able to slowly work my activity level up to be able to maintain my own minimal home choresIn context ↗ | Severe | Relocation and environmental change |
Adverse events
- Ibuprofen (Advil, Nurofen, Motrin)“Yep, also took too much for too long and injured my kidneys. Oof.” In context ↗ Liver or kidney problems
- Flu vaccine“I flare for 3-5 days after getting them, but it seems to be pretty much the same each time” In context ↗ Autoimmune or inflammatory flare
Symptoms mentioned
Their words about their symptoms
- Brain fog
the brain fog and cognitive impairments are at their worst
In context ↗ - Headaches & migraine
it basically got rid of my daily hemiplegic migraines
In context ↗ - POTS & dysautonomia
Sometimes when I stand my hr is not increasing at the speed it was
In context ↗ - Mast cell (MCAS) & allergies
I havent had seasonal/environmental allergies this bad for decades
In context ↗ - Anxiety & low mood
Very depressed.
In context ↗
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