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Condition not stated Mild → no benefitIll for 3 years

Three years of fatigue, brain fog and leg pain; CPAP brought no improvement

Condition
Condition not stated
At worst
Mild (working or studying, with limits)
Ill for
3 years
Last post
Feb 2023
In their words
  • Condition: Condition not statedI am not diagnosed with CFS. In context ↗
  • At worst: MildMy exhaustion is so bad that I have a very hard time even working part time. In context ↗
  • Now: No benefitmy fatigue got tremendously worse and has been that way since In context ↗
  • Began after: nothing they could nameMy issues started a little over 3 years ago. I started experiencing EXTREME anxiety and panic attacks. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Not diagnosed with CFS, the user described three years of illness starting with extreme anxiety and panic attacks and fatigue that dominated after family losses and a breakup in January 2022. A COVID-negative febrile illness in June 2022 made the exhaustion far worse, with constant leg pain, brain fog, unrefreshing sleep and dizziness on standing. Mild sleep apnoea was found, but two weeks of CPAP brought no improvement.

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What they tried

Also tried

Their words about each treatment
  • cpap · No changeI have been on a cpap now for a little over 2 weeks with no improvement. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
a little over 3 years agoextreme anxiety and panic attacks began; unable to hold a jobMy issues started a little over 3 years ago. I started experiencing EXTREME anxiety and panic attacks. In context ↗Mild
January of 2022fatigue became a major issue after life events; brain fog after eating and exercisingThis is when my fatigue started really becoming an issue. In context ↗Mild
June of 2022feverish illness, COVID negative; fatigue much worse sinceWell after getting sick my fatigue got tremendously worse and has been that way since In context ↗Mild
2023-02-18still exhausted, working part-time in a restaurantI currently work part time (32hrs a week) and I don’t really notice a correlation from time at work and the severity of my fatigue. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodI started experiencing EXTREME anxiety and panic attacks. In context ↗
  • Brain fogIt started with bad mental fogginess after eating and exercising. In context ↗
  • Sleep problemsI could easily sleep for 12 hours and it would take quite a few hours after waking up to feel like a human being. In context ↗
  • Pain & fibromyalgiathe leg pain is pretty constant In context ↗
  • Neuropathy & tinglingpins and needles in feet when I step out of bed In context ↗
  • POTS & dysautonomiaheart races and I feel faint when I stand up, especially when anxious. In context ↗
  • Post-exertional malaisea couple of days afterward my fatigue was so bad that I couldn’t do anything but lay there for the whole day In context ↗
  • Temperature regulationcold fingertips and toes In context ↗

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