Long COVID, barely able to walk to the mailbox, now close to normal after FLOW therapy
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Sep 2025
In their words
- Condition: Long COVID
I was finally diagnosed with long covid after 2 years of worsening symptoms.
In context ↗ - At worst: Severe
I went from barely being able to walk to the mailbox, and crashing doing dishes
In context ↗ - Now: Near normal
I am functioning back at baseline with rare PEM occurances and drastically reduced brain fog
In context ↗ - Began after: COVID
Symptoms just escalated and required more treatment after I had COVID.
Read from 20 of their posts and comments; links to the 14 this page draws on
Summary
Tide 21807 developed long COVID after a COVID infection in about 2020, diagnosed after two years of worsening symptoms that left them barely able to walk to the mailbox. An AIP diet, then vitamins, supplements and careful eating brought partial gains. Six weeks of FLOW (EECP) therapy, which they credited as the game changer, left them functioning at baseline with rare PEM and reduced brain fog.
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What they tried
What they credit
Also tried
Their words about each treatment
- Anti-inflammatory / AIP diet · Helped a lot
I applied it to this instance as well, and started the diet again. The last two months have seen my brain fog, pain, and fatigue life.
In context ↗ - Lions Mane · Helped
Doctor recommended Lions Mane for me. (It’s in the medical mushroom family) and I have it in liquid form. A couple drops under my tongue daily.
In context ↗ - Cocurcumin · Helped
Between that, Cocurcumin, increased D, B, Vit C and Zinc, and watching my diet, my symptoms have decreased dramatically.
In context ↗ - Vitamin D · Helped
increased D, B, Vit C and Zinc ... my symptoms have decreased dramatically
In context ↗ - CoQ10 · Helped
I can feel the fig creeping back in on days when I accidentally miss taking one.
In context ↗ - Super Omega with EPA & DHA · Helped
Between that, supplementation (things like COQ10, Omegas, etc) and being strict with my diet
In context ↗ - Bariatric Multivitamin · Not said
Bariatric Multivitamin
In context ↗ - Calcium & Magnesium Citrate · Not said
Calcium & Magnesium Citrate
In context ↗ - Natural Iron (Blood Builder) · Not said
Natural Iron (called Blood Builder)
In context ↗ - Alpha Lipoic Acid · Not said
Alpha Lipoic Acid
In context ↗ - A Pre/Probiotic Combo · Not said
A Pre/Probiotic Combo
In context ↗ - Health & Her Perimenopause Supplement · Not said
Health & Her Perimenopause Supplement
In context ↗ - Synthroid · Not said
Synthroid (for Hashimotos)
In context ↗ - Zyrtec · Helped
Zyrtec (helps with occasional hives - note, I do not have MCAS)
In context ↗ - Valtrex · Not said
I have been on Valtrex day for quite some time for EBV and HSV1. My last bout with COVID induced Shingles, and we had to increase my dose for a while, but now I’m back to maintenance.
In context ↗ - Electrolytes · Not said
As Needed during Flares or PEM * Electrolytes
In context ↗ - Anti-Nausea Meds · Not said
As Needed during Flares or PEM ... Anti-Nausea Meds
In context ↗ - Standard Tylenol · Not said
As Needed during Flares or PEM ... Standard Tylenol
In context ↗ - FLOW / EECP Therapy · Helped a lot
It was a six week treatment, and the thing that I credit getting me back to baseline.
In context ↗ - Mediterranean diet · Helped
I’ve had wonderful improvement on the Mediterranean diet.
In context ↗ - GABA · Worse
gaba, taurine, beet root, and melatonin cause me some wicked migraines!
In context ↗ - Glutathione · Worse
Glutathione did bad things to my liver.
In context ↗ - Stopping alcohol · Helped
No amount of alcohol is worth a flare. I stopped drinking after I found it caused mine.
In context ↗
Approaches: Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 13 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 (about) | Long COVID after a first COVID infectionThis is now almost 2 years from my first bout of COVIDIn context ↗ | Not stated |
| 2021-10-28 | brain fog, pain and fatigue improving on an AIP dietThe last two months have seen my brain fog, pain, and fatigue life. I’m starting to feel like myself.In context ↗ | Moderate |
| 2022-05-03 | vitamins and careful diet; breakthrough days far milder than early onI have had great sucess increasing my vitamin intake throughout the day and really being careful with my diet. I have bad breakthrough days, but not nearly as bad as it was those first few months.In context ↗ | Moderate |
| 2022-08-29 | second round of COVID three months earlier; episodes continued but fewerI still have episodes, but few and fsr between. This is now almost 2 years from my first bout of COVID, and approx 3 months since my second round.In context ↗ | Mild |
| early 2024 | barely able to walk to the mailbox and crashing doing dishesI went from barely being able to walk to the mailbox, and crashing doing dishesIn context ↗ | Severe |
| 2024 (after six weeks of FLOW) | active again after FLOW/EECP therapyIn Six Weeks I was back to baseline.In context ↗ | Mild |
| 2025-09-03 | functioning at baseline with rare PEM and reduced brain fog; over 20,000 steps a day on holidayI am functioning back at baseline with rare PEM occurances and drastically reduced brain fogIn context ↗ | Near normal |
Adverse events
- GABA supplement (PharmaGABA)“gaba, taurine, beet root, and melatonin cause me some wicked migraines!” In context ↗ Side effects
- Nitric-oxide boosters (beetroot, arginine, citrulline)“gaba, taurine, beet root, and melatonin cause me some wicked migraines!” In context ↗ Side effects
- Melatonin“gaba, taurine, beet root, and melatonin cause me some wicked migraines!” In context ↗ Side effects
- Glutathione“Glutathione did bad things to my liver.” In context ↗ Liver or kidney problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
rare PEM occurances and drastically reduced brain fog
In context ↗ - Brain fog
drastically reduced brain fog
In context ↗ - POTS & dysautonomia
Blood Pressure Drops combined with Severe Tachycardia
In context ↗ - Flu-like symptoms
flu like body aches
In context ↗ - Pain & fibromyalgia
my brain fog, pain, and fatigue
In context ↗ - Mast cell (MCAS) & allergies
Zyrtec (helps with occasional hives
In context ↗
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