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Long COVID Moderate → near normalIll 18 months before improving or writingNeeds ongoing treatment

Long COVID at 30% of normal with gut problems, now near normal after a second Moderna dose

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
18 months
Last post
May 2023
In their words
  • Condition: Long COVIDI have been longhaul since January 2020. In context ↗
  • At worst: Moderateincreased from 80% to 99% much more rapidly than the journey from 30% to 80% In context ↗
  • Now: Near normalI am feeling around 95% and am still continuing to improve and follow low FODMAP. In context ↗
  • Began after: COVIDI have been longhaul since January 2020
Read from 10 of their posts and comments; links to the 8 this page draws on

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Summary

Gull 21192 developed long COVID in January 2020 and went from roughly 30% to 80% of normal over about 18 months, with gut problems and food allergies, and high-FODMAP foods triggering vertigo, palpitations and setbacks. In mid-2021 stamina returned, and a second Moderna dose, after a week of brain fog, took the user from 80% to 99%. By December 2021 the user felt about 95% and still improving; by May 2023 only an occasional antacid was needed.

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What they tried

Also tried

Protonix (proton pump inhibitors)· Helpeddaily stretching· Helpedposture and core strength exercise· Not saidoccasional antacid· Not said
Their words about each treatment
  • Protonix (proton pump inhibitors) · HelpedWas on protonix 40 MG for 3months then 20 MG for 3 months after that. In context ↗
  • elimination diet · Helpeda very bland and in my case allergen free diet (elimination diet) In context ↗
  • low FODMAP diet · Helped a lotSo needless to say I have stuck to a regiment. I am feeling around 95% and am still continuing to improve and follow low FODMAP. In context ↗
  • Moderna COVID vaccine · Helped a lotshortly after I increased from 80% to 99% much more rapidly than the journey from 30% to 80% In context ↗
  • daily stretching · HelpedI found a lot of relief in stretching daily. In context ↗
  • posture and core strength exercise · Not saidlastly exercise mainly in posture and core strength In context ↗
  • occasional antacid · Not saidI no longer take any meds for this except for the occasional antacid In context ↗

Approaches: Diet · Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
January 2020COVID-19; long COVID beganI had it in January of '20 ... the journey from 30% to 80%Moderate
mid-2021stamina and energy began to return, up to about 80%it's only been since last month that my stamina and energy started to come back In context ↗Mild
2021-10-08after a week of brain fog following the second Moderna dose, jumped from 80% to 99%For a week following I had brain fog and some instability, but shortly after I increased from 80% to 99% In context ↗Near normalCOVID vaccination as treatment
2021-12-02feeling around 95% and still improvingI am feeling around 95% and am still continuing to improve and follow low FODMAP In context ↗Near normal
2023-05-05off all medication apart from an occasional antacidI no longer take any meds for this except for the occasional antacid for when life kinda has its way In context ↗Near normal

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogFor a week following I had brain fog and some instability In context ↗
  • Gut problemsI used to get heart burn quite often and upset stomachs of all sorts In context ↗
  • Mast cell (MCAS) & allergiesfound out I have a gluten, egg and dairy allergy In context ↗
  • POTS & dysautonomiaI would start to get brain fog, vértigo, palpitations, aches, the whole 9 In context ↗
  • Pain & fibromyalgiaStarted to notice the happy side effects of bloodflow and ache relief In context ↗
  • BreathlessnessThese types of asthmatic symptoms were also something I dealt with along with labored breathing In context ↗
  • Anxiety & low moodHonestly started doing it for breathing control as to manage my anxiety In context ↗
  • Sleep problemsthroat and lung irritation and made my sleep for shit In context ↗

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