Stuck in bed with long COVID, now much better after forcing a return to training
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Mar 2024
In their words
- Condition: Long COVID
My issues started 4 months after Covid
In context ↗ - At worst: Moderate
It was bad to the point I couldn’t go to the store
In context ↗ - Now: Much better
I pushed myself slowly until I got back to my normal routine ... I feel off 24/7
- Began after: COVID
My issues started 4 months after Covid
In context ↗ - Says they never had: Breathlessness
I never had respiratory issues, only neuro.
Read from 17 of their posts and comments; links to the 15 this page draws on
Summary
A person in their mid-thirties developed neurological long-COVID symptoms four months after Covid; they also had confirmed Lyme disease. They felt poisoned, could not motivate themselves and were stuck in bed. Sertraline, two SNRIs and guanfacine did not help. Forcing a return to training got them out of bed, and by March 2024 they trained weights three times weekly, still crashing the day after.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Doxy · Worse
I also felt terrible on Doxy but slowly got better in time.
In context ↗ - getting back to training · Helped a lot
I forced myself back on my training bike, then calisthenics, then back in the gym ... getting back to training was the one thing that got me out of my bed.
- Sertraline · No change
Tried Sertraline for 6 months and it did nothing for me.
In context ↗ - 2 SNRIs · No change
Thus far I’ve tried an SSRI and 2 SNRIs with very little to no discernible change.
In context ↗ - Guanfacine · No change
Didn’t do what I was hoping for at all ... Lowered my BP, didn’t change my mental symptoms for better or worse.
In context ↗ - forcing myself out more and more · Helped
I forced myself out more and more and it got a lot better
In context ↗ - sprint work · Worse
I’ve tried, and it’s debilitating afterward
In context ↗
Approaches: Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 4 months after Covid | Neurological symptoms began four months after CovidMy issues started 4 months after CovidIn context ↗ | Moderate | |
| 2022-01-02 | Slowly got better over time, but still not back to old selfI also felt terrible on Doxy but slowly got better in time. Still not my old self though.In context ↗ | Moderate | Doxycycline (Vibramycin) |
| 2022-12-31 | Forced themselves back on the training bike, then calisthenics, then the gym, which got them out of bedgetting back to training was the one thing that got me out of my bedIn context ↗ | Mild | Everyday exercise and activity |
| 2023-11-02 | Came out of the deep hole they were inCame out of the deep hole I was in but still don’t feel like I used to before itIn context ↗ | Mild | |
| 2024-03-22 | Back to a normal weight-training and aerobic cardio routine, still crashing the day after exertionI pushed myself slowly until I got back to my normal routine.In context ↗ | Mild |
Adverse events
- Doxycycline (Vibramycin)“I also felt terrible on Doxy but slowly got better in time.” In context ↗ Made symptoms worse
- Guanfacine“I actually tried a blood pressure med which reduced anxiety but gave me worse OCD, so I stopped that.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I have energy and much less brain fog
In context ↗ - POTS & dysautonomia
I get head tension, POTS like symptoms
In context ↗ - Anxiety & low mood
sensitive to external stimuli and very anxious and irritable
In context ↗ - Neuropathy & tingling
Burning in legs
In context ↗ - Pain & fibromyalgia
It’s a deep ache in my whole body.
In context ↗ - Headaches & migraine
I get an internal head pressure/fogginess
In context ↗ - Light & noise sensitivity
sensitive to external stimuli
In context ↗ - Tinnitus
I also have tinnitus.
In context ↗ - Vision problems
these anxiety, tunnel vision attacks are still bad when they hit
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID tremors and insomnia, improved on low-histamine diet, then relapsed after a cold
A person over 65 developed long COVID after a COVID infection in November 2020, with loss of smell, insomnia, tremors, myoclonus, burning mouth and severe alcohol and lanolin allergies. A low-histamine diet was the turning point, with mast cell stabilizers,…
-
Often bedbound with long COVID, now almost back to normal after diet and rowing regimen
Osprey 74759 fell ill with long COVID in October 2020 and after about 2.5 years was often bedbound, unable to walk 100 m without near-fainting. In 2023 a self-designed supplement, diet and rowing-machine regimen produced rapid gains: from bedridden to…
-
Long COVID with brain fog and gut problems, now recovered after HRT
A woman who got COVID in December 2021 at age 38 developed long COVID with brain fog, gut problems, SIBO, histamine reactions, hair loss, blood sugar crashes and blood pressure spikes. Fasting, a low-carb diet, supplements, guanfacine, DHEA and nicotine gum…
-
Long COVID with panic, gut problems and dysautonomia; somewhat better with rest and pacing
Prairie 75127 fell ill with long COVID in summer 2020 after a Covid infection in December 2019, with daily panic and anxiety, gut problems and dysautonomia, and could not keep working. They credited time, rest, pacing, meditation, quitting alcohol and…