Debilitating long COVID, improved after psilocybin and cannabis, then relapsed
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 14 months
- Last post
- Jan 2024
In their words
- Condition: Long COVID
I have had long covid since January 2022
In context ↗ - At worst: Moderate
I had significant long COVID/POT/CFS symptoms
In context ↗ - Now: Relapsed
I haven't been taking as many vitamins lately and it seems to have gotten worse again with things like skin reddening and mild palpations
In context ↗ - Began after: COVID
Ever since I had covid I have had symptoms of Hyper PoTS
- Says they never had: Loss of smell or taste
my sense of smell seems fine
Read from 18 of their posts and comments; links to the 12 this page draws on
Summary
They developed long COVID in January 2022 with POTS-like symptoms, high blood pressure, chest pains, severe anxiety and gut and sleep problems they called debilitating. A reinfection in November 2022 sent them to the ER. From early 2023 they credited psilocybin microdoses, cannabis and a large supplement stack and were pretty much better by September 2023, though taking fewer supplements later brought back skin reddening, and by January 2024 their hair was falling out.
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What they tried
What they credit
Also tried
Their words about each treatment
- Lisinopril · Worse
Lisinopril & amlodipine made me feel like I was having a heart attack.
In context ↗ - metoprolol · No change
I take metoprolol now and it doesn't make me feel like I'm dying but it's also not controlling my blood pressure.
In context ↗ - supplements · Helped
I began taking a plethora of supplements. I can't tell u if that really helped or if it was just time
In context ↗ - psilocybin microdoses · Helped
I started microdosing and I've seen a lot of improvement in a lot of areas.
In context ↗ - arjuna bark · Helped
If I was to guess I would say arjuna bark, beet root, lumbrokinase, and psilocybin microdoses had the most positive effects on me personally
In context ↗ - cannabis · Helped
I started using microdose psilocybin and using cannabis regularly about 6 months ago and most of my symptoms are gone.
In context ↗
Approaches: Alternative therapies · Anticoagulants · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2022 | long COVID began after covidI have had long covid since January 2022 and as soon as I started getting betterIn context ↗ | Mild |
| 2022-10-11 | debilitating symptoms, doctors would not listenthese symptoms are DEBILITATING and no one will listen to meIn context ↗ | Moderate |
| 2022-11-18 | reinfection; ER with chest pains, tachycardia 141 BPM, BP 216/113I got reinfected 2 weeks ago and I ended up in the ER last night with chest pains, tachycardia (141 BPM), and BP 216/113In context ↗ | Moderate |
| 2023-02-20 | getting better, then worse againI seem to get better then worse again but it used to only be bad all the time.In context ↗ | Mild |
| 2023-03-06 | improvement in many areas after microdosingI started microdosing and I've seen a lot of improvement in a lot of areasIn context ↗ | Mild |
| 2023-09-03 | pretty much better, no problems for six monthsI am pretty much better now thank God. I haven't really had any problems in at least 6 months.In context ↗ | Near normal |
| 2023-10-25 | fewer vitamins; skin reddening and palpitations returned; cannot eatI haven't been taking as many vitamins lately and it seems to have gotten worse again with things like skin reddening and mild palpationsIn context ↗ | Mild |
| 2024-01-22 | managing symptoms with vitamins again; hair falling outI'm having to take a thousand vitamins again to manage symptoms. My hair is falling out in gobs right now.In context ↗ | Mild |
Adverse events
- Lisinopril (Zestril), Amlodipine (Norvasc)“Lisinopril & amlodipine made me feel like I was having a heart attack.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have had symptoms of Hyper PoTS, BUT I don't have the crazy high heart rate
In context ↗ - Heart symptoms & palpitations
I don't have chest pains as often anymore and when I do they aren't as scary or long lasting
In context ↗ - Mast cell (MCAS) & allergies
Constant dark red flushing under my chin, neck, and chest
In context ↗ - Sleep problems
Jolting/jerking myself awake when I'm trying to go to sleep
In context ↗ - Temperature regulation
Excessive sweating when it's not hot
In context ↗ - Tinnitus
The tinnitus has improved a whole lot
In context ↗ - Headaches & migraine
Sudden headaches that burn on sides of my head.
In context ↗ - Pain & fibromyalgia
I have pains in my wrists, arms, ankles, and legs also.
In context ↗ - Neuropathy & tingling
Random pinchy stabby pains through out my body
In context ↗ - Hair loss
My hair is falling out in gobs right now
In context ↗
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