ME/CFS with PEM and neuro issues, now recovered after antibiotics and hydroxychloroquine
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2024
In their words
- Condition: ME/CFS
In my case, it was Lyme Disease. While I never reached a moderate/severe CFS level, I had consistently experienced PEM after rigorous cardio
In context ↗ - At worst: Mild
While I never reached a moderate/severe CFS level, I had consistently experienced PEM after rigorous cardio
In context ↗ - Now: Recovered
an extraordinary ID doctor in Boston put me in a dual antibiotic protocol that brought me back
In context ↗ - Began after: a bacterial or tick-borne infection
In my case, it was Lyme Disease.
Summary
They reported a CFS-level illness with consistent PEM after vigorous cardio and neurological issues, never moderate or severe. A Boston infectious disease doctor diagnosed Lyme disease and started long-term oral antibiotics with hydroxychloroquine. Symptoms worsened over the first few weeks, then they improved gradually over a year and credited the protocol with bringing them back.
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What they tried
What they credit
Their words about each treatment
- long-term oral antibiotics · Helped a lot
So I took the treatment and gradually became better over a year.
In context ↗ - Hydroxychloroquine · Helped
Hydroxychloroquine raises the intracellular PH level, which makes the Clarithromycin much more effective
In context ↗ - Lyme / co-infection protocols · Worse
The first few weeks or so my symptoms actually worsened before turning around.
In context ↗
Approaches: Antibiotics
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | CFS-level illness with PEM after vigorous cardio and neurological issuesWhile I never reached a moderate/severe CFS level, I had consistently experienced PEM after rigorous cardio and had a host of other neurological issues.In context ↗ | Mild |
| first few weeks of antibiotic treatment | symptoms worsened at the start of the antibiotics before turning aroundThe first few weeks or so my symptoms actually worsened before turning around.In context ↗ | Mild |
| over a year on treatment | gradually improved over a year on long-term oral antibiotics for LymeSo I took the treatment and gradually became better over a year.In context ↗ | Mild |
| 2024-08-20 | says the dual antibiotic protocol from a Boston ID doctor brought them backThankfully an extraordinary ID doctor in Boston put me in a dual antibiotic protocol that brought me back.In context ↗ | Recovered |
Adverse events
- Lyme / co-infection protocols“The first few weeks or so my symptoms actually worsened before turning around.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I had consistently experienced PEM after rigorous cardio
In context ↗
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