Long COVID with head pressure and cognitive symptoms, somewhat better off steroids
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Feb 2025
In their words
- Condition: Long COVID
when LC already depletes minerals, iron and everything else
In context ↗ - Now: Somewhat better
a lot of the symptoms stopped after stopping low dose glucocorticoids. It took almost 8 months however.
In context ↗ - Began after: COVID
I had the delta thought I was having perimenopause
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
An r/covidlonghaulers user who had a delta COVID infection had eye and head pressure, cognitive impairment, stomach pain and suspected MCAS, with symptoms returning at the end of the day or the following morning after overexertion. Most symptoms stopped only after they came off low-dose glucocorticoids, roughly eight months later, and probiotics and a gluten- and dairy-free diet helped. Head pressure had mostly eased but exertion still flared symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- low dose glucocorticoids · Worse
a lot of the symptoms stopped after stopping low dose glucocorticoids. It took almost 8 months however.
In context ↗ - histamine intolerant friendly probiotics and Yakult · Helped
I eat histamine intolerant friendly probiotics for breakfast and Yakult and that is also probiotic. I think they help a lot.
In context ↗ - not consuming gluten and dairy · Helped
I find not consuming gluten and dairy helps.
In context ↗ - h1 · Helped
I also make sure I take my h1&h2 when I consume very high histamine food.
In context ↗ - infant formula (Taurine, Lysine etc) · Worse
I tried infant formula once because it had Taurine, Lysine etc for brain development for the cognitive impairment but I had stomach pain a few hours later.
In context ↗ - unflavoured electrolytes · Not said
When drinking water I try to add unflavoured electrolytes - not Gatorade or anything like that.
In context ↗
Approaches: Diet · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | delta COVID infection, symptoms at first taken for perimenopauseI had the delta thought I was having perimenopauseIn context ↗ |
| 2025-02-10 | many symptoms stopped after coming off low-dose glucocorticoids, taking almost eight monthsa lot of the symptoms stopped after stopping low dose glucocorticoidsIn context ↗ |
| 2025-02-10 | eye and head pressure mostly cleared, jerking subsided, but symptoms return after overexertionEye pressure mostly gone away. Head pressure rarely come on.In context ↗ |
Adverse events
- Taurine, Lysine“I tried infant formula once because it had Taurine, Lysine etc for brain development for the cognitive impairment but I had stomach pain a few hours later.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I notice this return when I overexert. I only know I overexert because the symptoms come back at the end of the day or the following morning
In context ↗ - Brain fog
for brain development for the cognitive impairment
In context ↗ - Headaches & migraine
Head pressure rarely come on
In context ↗ - Gut problems
It used to be as soon as I consume milk I get stomach pain so that's an improvement
In context ↗ - Mast cell (MCAS) & allergies
I also make sure I take my h1&h2 when I consume very high histamine food
In context ↗ - Anxiety & low mood
In hindsight they occur when disassociation happen.
In context ↗ - Neuropathy & tingling
This has subsided a lot for me but I notice this return when I overexert
In context ↗
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