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Long COVID Moderate → much better

Long COVID with arm paralysis and tremors, now much better with exercise and sleep

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
Not stated
Last post
May 2026
In their words
  • Condition: Long COVIDI was never this tired before covid In context ↗
  • At worst: ModerateTotal muscle paralysis of right peck, and right tricep ... And also always tired! No energy In context ↗
  • Now: Much betternow I am emerging from the cave. Sleep and gut health focussed now. It’s definitely helping. In context ↗
  • Began after: COVIDAll I know is it sucks and I was never this tired before covid In context ↗
Read from 8 of their posts and comments; links to the 7 this page draws on

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Summary

A man in south Wales developed long COVID with paralysis of his right chest and arm, constant tremors, anxiety, memory and speech problems and severe fatigue. Within about a year and a half the arm strength returned and he got back to cycling 15 miles to work, crediting exercise and sleep. A reinfection in early 2025 brought the nerve symptoms back; he was on T4 for Hashimoto's thyroiditis, and by May 2026 said he was emerging from the cave, now focusing on sleep and gut health.

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What they tried

Their words about each treatment
  • Exercise · HelpedExercise makes a huge difference. In context ↗
  • Sleep · HelpedSleep is the No1 healer. In context ↗
  • Iron supplements · HelpedI find iron supplements help with that In context ↗
  • ZMA make health · HelpedZMA make health (has b12, zinc, maganese etc) for energy really helps In context ↗
  • T4 replacement therapy · Not saidNow on T4 replacement therapy to try get the TSH down. In context ↗
  • Gut health focus · HelpedSleep and gut health focussed now. It’s definitely helping. In context ↗

Approaches: Exercise and activity · Radical rest

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetlong COVID after infectionAll I know is it sucks and I was never this tired before covid In context ↗Not stated
2023-01-21right arm and shoulder paralysis, constant tremors, no energyTotal muscle paralysis of right peck, and right tricep. 4 months ago. Heightened anxiety. And tremors everywhere all the time. In context ↗Moderate
2024-02-11arm strength back, cycling 15 miles to workMuscle on right arm has come back to pretty much normal now. ... Today I feel awesome, I’ve cycled to and from work 15 miles In context ↗Near normal
2025-01-02crashed after a covid reinfectionI've got covid again right now.. can feel all my nerves on red alert, twithcing like mad. ... I did get better before reinfection. In context ↗Mild
2026-05-17emerging, focusing on sleep and gut healthI have been like you, but now I am emerging from the cave. Sleep and gut health focussed now. It’s definitely helping. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessTotal muscle paralysis of right peck, and right tricep In context ↗
  • Neuropathy & tinglingStill have fasciculations everywhere In context ↗
  • Anxiety & low moodHeightened anxiety. In context ↗
  • Brain fogCognitive decline, nerve damage everywhere. Speech issues. Memory. In context ↗
  • Pain & fibromyalgiaI've had terrible calf muscle pains, really tender and sore. In context ↗
  • Gut problemsMy poop went completely white. In context ↗

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