ME/CFS
Moderate → relapsedIll 20 years before improving or writing
ME/CFS for over two decades with POTS, improved in pregnancy then relapsed after birth
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 20 years
- Last post
- Feb 2026
In their words
- Condition: ME/CFS
For me the ME really hit and my symptoms came back at three months pp.
In context ↗ - At worst: Moderate
the only way I’m coping is with so so much support. It would be impossible without.
In context ↗ - Now: Relapsed
I actually felt wonderful once I got over the morning sickness during pregnancy, but everything hit me again at three months post partum.
In context ↗
Read from 19 of their posts and comments; links to the 17 this page draws on
Summary
Tide 79807 had ME/CFS for more than two decades, with POTS and food intolerances, and paced herself to limit crashes while taking low-dose naltrexone, Florinef for POTS, electrolytes and a mushroom blend. Pregnant with twins in 2023, she felt wonderful once past severe morning sickness, but symptoms returned three months after the birth. Parenting twins stayed harder for her than for someone well, though she did not regret it.
Ask Miruvor AI
What they tried
Also tried
F*ck it diet / intuitive eating· HelpedApple Watch· HelpedFlorinef· Helpedextra salt and electrolytes· Helpedpacing· Helpedivabradine· HelpedKeto· No changeIntermittent fasting· Worsepushing myself to my limit· WorseOsteopathy· WorseAcupuncture· Worsemushroom herbal blend (Superfeast brand)· Not saidNo gluten and minimal dairy· Not saidNo gluten and minimal dairy· Not saidLDN· Not saidHRV4Training· Not saidTrioral· Not said
Their words about each treatment
- mushroom herbal blend (Superfeast brand) · Not said
I’m taking a mushroom herbal blend (Superfeast brand) and I like it. Not sure it is doing a lot but I’ll try most things and see what ends up sticking.
In context ↗ - F*ck it diet / intuitive eating · Helped
I love the F*ck it diet and use it too. Eating intuitively is the only thing that stops me from going bonkers.
In context ↗ - Intermittent fasting · Worse
Intermittent fasting just makes me hungry and stressed my body out and in fact I think it retains food because it panics.
In context ↗ - pushing myself to my limit · Worse
I also push myself to my limit, but I also stop and don’t push when I’ve gone too far ... It only ever makes me worse and the crash longer…
In context ↗ - Keto · No change
I did Keto years ago but it didn’t really do anything for me.
In context ↗ - No gluten and minimal dairy · Not said
No gluten and minimal dairy (have intolerance to both) and pretty clean aside from that.
In context ↗ - Apple Watch · Helped
I have an Apple Watch and I agree. It takes guess work out of whether I am overdoing it so much, I love the safeguard
In context ↗ - LDN · Not said
I take LDN in the morning specifically because I have such vivid dreams on it.
In context ↗ - HRV4Training · Not said
I like HRV4Trainint and do a reading every morning o keep track of my stats.
In context ↗ - Trioral · Not said
I use Trioral. It has only as much glucose as is needed for absorption and is close to the WHO recommendations.
In context ↗ - Osteopathy · Worse
Sure do (after osteo and acupuncture). I find it’s because the treatment releases toxins .
In context ↗ - Acupuncture · Worse
Sure do (after osteo and acupuncture).
In context ↗ - Florinef · Helped
Florinef , prescribed for me for POTS (which came after and is often a co morbid) helped me with this because it helps your cells retain the fluids.
In context ↗ - extra salt and electrolytes · Helped
That and extra salt and electrolytes (for me this is part of the POTS issue though as opposed to those who don’t find it helps above)
In context ↗ - pacing · Helped
I knew how to pace myself and really understood my body beforehand and it’s made the exhaustion a bit easier to get my head around.
In context ↗ - ivabradine · Helped
Yes. ... My side effects include crawling scalp, weird vision with lights and a bit of reynauds.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | onset of ME/CFS, over two decades before 2024I’ve been sick for over two decades.In context ↗ | Not stated |
| 2023 | pregnancy with twins; felt wonderful after morning sickness passedI actually felt wonderful once I got over the morning sickness during pregnancyIn context ↗ | Mild |
| three months post partum, 2024 | ME symptoms returned three months after the birthFor me the ME really hit and my symptoms came back at three months pp.In context ↗ | Moderate |
| 2025-05-31 | surviving parenting twins with lots of support; harder than for someone wellThe hormones and increased blood volume were wonderful and tbh I am surviving parenting okay.In context ↗ | Mild |
Adverse events
- Intermittent fasting“Intermittent fasting just makes me hungry and stressed my body out and in fact I think it retains food because it panics.” In context ↗ Side effects
- Low-dose naltrexone“I find the dreams so exhausting and distressing” In context ↗ Insomnia from treatment
- Osteopathy, Acupuncture“Sure do (after osteo and acupuncture) ... the release can be exhausting.” In context ↗ Made symptoms worse
- Ivabradine“My side effects include crawling scalp, weird vision with lights and a bit of reynauds.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I don’t keep going because it has never worked. It only ever makes me worse and the crash longer…
In context ↗ - POTS & dysautonomia
Florinef , prescribed for me for POTS (which came after and is often a co morbid)
In context ↗ - Pain & fibromyalgia
I had horrendous pain levels until then.
In context ↗ - Vision problems
My side effects include crawling scalp, weird vision with lights and a bit of reynauds.
In context ↗