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Long COVID Severe → near normalIll 2 years before improving or writingNeeds ongoing treatment

In bed much of the day with long COVID, now almost back to normal after famotidine

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 years
Last post
Jan 2024
In their words
  • Condition: Long COVIDI've had Covid in April, Pfizer in June, 2nd dose hit me hard with brain fog, fatigue, muscle twitches and chest pain. In context ↗
  • At worst: Severelost a year of my life being a living corpse In context ↗
  • Now: Near normalI am not the same but I can laugh again. The body is not the same, but I'm fine. In context ↗
  • Began after: COVIDI've had mild COVID-19 in April and I've had the first jab a month later
Read from 46 of their posts and comments; links to the 25 this page draws on

Request to remove this story

Summary

Glacier 34171 caught mild COVID-19 in spring 2020 and developed arrhythmia, fatigue, brain fog and stomach trouble, in bed much of the day. A reinfection in April 2021 and a second Pfizer dose in June left them exhausted and unable to do much. Famotidine helped their brain fog, though symptoms returned when they stopped it; by April 2022 they felt like themself with few heart issues; in January 2024 they said they could laugh again and were fine, though not the same as before.

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What they tried

Their words about each treatment
  • antibiotics (for h. pylori) · HelpedI was prescribed antibiotics and an h1 blocker, I felt better for the first time in months In context ↗
  • Pfizer vaccine · Much worseTwo weeks after the second jab(Pfizer) I got hit by fatigue, chest pain, muscle spasms, brain fog. In context ↗
  • Famotidine · Helped a lotFamotidine worked for me. It helped with the brain fog and overall condition. In context ↗
  • Vitamin C · No changeThe vitamins and minerals had no significant effect. In context ↗
  • diet changes (basic foods, smaller portions, vegan) · Helpedvegan seems to work for me In context ↗
  • giving up coffee · Helpedquitting coffee has helped me a lot In context ↗
  • noise cancelling headphones · HelpedNoise cancelling headphones help me In context ↗
  • grayscale screens · HelpedTurning my displays to grayscale helped as well. In context ↗
  • hot shower water on rash · HelpedRunning really hot water over it on my thighs felt good, like scratching an itch. In context ↗
  • rest and pacing · Not saidwhen it hits there's not much you can do but rest In context ↗
  • beta blocker · Helpedbeta blocker worked for me In context ↗

Approaches: H1 antihistamines · H2 blockers · Antibiotics · Diet

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
April 2020Mild COVID-19, then arrhythmia, fatigue, brain fog and stomach trouble; stayed in bed much of lockdownI went through some mild symptoms and thought it was a cold, but my mind couldn't focus so I've spend the lockdown binge watching Netflix and staying in bed In context ↗Moderate
—Antibiotics and an H1 blocker for H. pylori; first relief in months, travelled for a monthI was prescribed antibiotics and an h1 blocker, I felt better for the first time in months In context ↗Mild
Early 2021Recovering well enough to go skateboardingI got better at the beginning of 2021 and was scheduled for the vaccine In context ↗Mild
April 2021COVID reinfection with loss of taste, headaches, heart issues and hip painI got it again, I took the pcr test this time. It was mild and I manged to get away In context ↗Moderate
June 2021Second Pfizer dose; fatigue, chest pain, muscle spasms, brain fog, severe hip pain, ER visitI couldn't do anything, I just stood like a plant. My forehead would have a sticky, muddy sweat and I would be lifeless In context ↗Severe
July 2021Famotidine cleared their head, took twice a dayan ER doctor gave me Famotidine, I take it twice a day, it seems to work for me in clearing my head In context ↗ModerateFamotidine (Pepcid)
August 2021Stopped famotidine after yellow stools; could drink coffee againI feel better, I gave up Famotidine after yellow stools, can drink coffee In context ↗Mild
August 2021After stopping famotidine brain fog, fatigue and heart issues crept backI stopped taking famotidine two weeks ago and the brain fog, fatigue and heart issues are slowly back In context ↗Moderate
November 2021Able to think and do a few push-ups, one espresso a day toleratedIt gets much better with time, I can even think and do a few push-ups In context ↗MildFamotidine (Pepcid)
November 2021Heart went crazy after a few good weeks; six hours in bedHad a few good weeks, was feeling fine and today my hear went crazy again In context ↗Moderate
April 2022Feel like themselves again, very few heart issuesI can feel like myself, although I feel I am a bit different then before ... Very few heart issues nowadays In context ↗Mild
January 2024Can laugh again; beta blocker worked for themI am not the same but I can laugh again. The body is not the same, but I'm fine In context ↗Near normalBeta-blockers (unspecified)

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogThe fatigue and brain fog are debilitating In context ↗
  • Heart symptoms & palpitationswould have sudden chest pressure and arrhythmia and increased pulse out of the blue In context ↗
  • Gut problemsstill stomach issues, still fatigue but getting better In context ↗
  • Pain & fibromyalgiaThe hip pain was one of the worst I've felt in my life In context ↗
  • Loss of smell or tastehad mild covid, with loss of taste, headaches, heart issues and a new hip pain In context ↗
  • Muscle weaknessI do get chest pain at noon sometimes and brain fog, I feel lost sometimes and weak In context ↗
  • Headaches & migraineThe first days are awful, I have headaches but they go away In context ↗

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