Long COVID for 3.5 years with brain fog, somewhat better after low-histamine diet and yoga
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- May 2026
In their words
- Condition: Long COVID
It sounds like long Covid to me. I had all those same symptoms and still do 3 1/2 years later.
In context ↗ - At worst: Moderate
I would be in deep rest every day at my worst because everyday was exhausting. ... still have been isolated and wonky going on 3 years. Like I have to see when I can feel good enough to go to grocery
- Now: Somewhat better
But some have gone like neuropathy in hands and feet but still get very cold. Chest pains are gone.
In context ↗ - Began after: COVID
It sounds like long Covid to me. I had all those same symptoms and still do 3 1/2 years later.
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Swan 65780 has had long COVID for about 3.5 years, beginning with digestive problems and 25 lb of weight loss that never resolved. At their worst they rested deeply every day, and they still cannot think clearly. A low-histamine diet helped in the first year and kundalini yoga and breathing exercises helped calm them. They still report brain fog, insomnia, gut and temperature problems and rarely leave home, and lately they have needed deep rest periods again.
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What they tried
What they credit
Also tried
Their words about each treatment
- deep rest periods · Helped
I would be in deep rest every day at my worst because everyday was exhausting. I’m glad it still works.
In context ↗ - Low histamine diet · Helped
Low histamine diet helped me in my first year. I couldn’t eat certain things without loosing my breath.
In context ↗ - histamine supplements · Helped
I took histamine supplements that got me though it.
In context ↗ - Joe Dispenza · Helped
Joe Dispenza was a big help when I first got sick. Listened every morning and deep breathing.
In context ↗ - kundalini yoga · Helped
Finally I calmed down when I did kundalini yoga but still have been isolated and wonky going on 3 years.
In context ↗ - antibiotics · Worse
I reluctantly started antibiotics this week for a sinus infection and went back into anxiety over drive. It’s scary.
In context ↗ - Seeking Health · Helped
Seeking health has one that I used which works.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 2.5 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | illness began with digestive problems and 25 lb weight lossAlso it started with digestive problems loss of 25 lbs. that has never gotten better.In context ↗ | Not stated | |
| — | deep rest every day, every day exhaustingI would be in deep rest every day at my worst because everyday was exhausting.In context ↗ | Moderate | |
| first year | low histamine diet helped, could eat more without losing breathLow histamine diet helped me in my first year. I couldn’t eat certain things without loosing my breath.In context ↗ | Not stated | Low-histamine diet |
| almost a year in | calmed down with kundalini yoga but stayed isolated and wonkyFinally I calmed down when I did kundalini yoga but still have been isolated and wonky going on 3 years.In context ↗ | Not stated | Meditation, yoga, breathwork |
| 2025-03-02 | needed deep rest periods again after life changes and newsI’ve had to start deep rest periods lately again. I’ve been so worked up lately with life changes and news.In context ↗ | Moderate | |
| 2025-07-01 | sinus infection and antibiotics sent them back into anxiety overdriveI reluctantly started antibiotics this week for a sinus infection and went back into anxiety over drive.In context ↗ | Moderate | |
| 2026-05-06 | still most symptoms 3.5 years on; neuropathy and chest pains goneI had all those same symptoms and still do 3 1/2 years later.In context ↗ | Moderate |
Adverse events
- Antibiotics (unspecified)“I reluctantly started antibiotics this week for a sinus infection and went back into anxiety over drive.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I still can’t think well though.
In context ↗ - Gut problems
it started with digestive problems loss of 25 lbs. that has never gotten better
In context ↗ - Temperature regulation
can’t regulate body temperature
In context ↗ - Sleep problems
Exhaustion insomnia can’t think right.
In context ↗ - Breathlessness
I couldn’t eat certain things without loosing my breath.
In context ↗ - Neuropathy & tingling
some have gone like neuropathy in hands and feet but still get very cold
In context ↗ - Heart symptoms & palpitations
Chest pains are gone.
In context ↗ - Anxiety & low mood
I reluctantly started antibiotics this week for a sinus infection and went back into anxiety over drive.
In context ↗ - Mast cell (MCAS) & allergies
I took histamine supplements that got me though it.
In context ↗
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