Long COVID
Mild → no benefit
Air hunger and worsening fatigue from long COVID, still no improvement after LDN and rest
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Feb 2025
In their words
- Condition: Long COVID
I got diagnosed with LC and worried it's ALS.
In context ↗ - At worst: Mild
I have significantly decreased my activity left the hospital job and work mostly at a desk now and don’t workout anymore
In context ↗ - Now: No benefit
I still have the 24/7 air hunger. Worsened fatigue as well as time has gone on.
In context ↗ - Began after: COVID
Developed all of the sudden 24/7 air hunger in April 2023 about 3 months after COVID.
Read from 18 of their posts and comments; links to the 15 this page draws on
Summary
Bluebell 23984, a 27-year-old nurse, developed constant air hunger in April 2023, about three months after a COVID infection, and was diagnosed with long COVID. Her fatigue worsened over time; low-dose naltrexone brought muscle twitches and arm heaviness that persisted after she stopped it. She cut her activity, left a hospital job for a school nurse post and rested more, but still had the air hunger and fatigue.
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What they tried
Also tried
resting· Helpedinhaler· No changebreathing treatment· No changeinhaled corticosteroids· No changemassage· No changeantihistamines· No changediet· No changesupplements· No changelow dose naltrexone· Worseexercise attempts (treadmill walk, light gym workout, jumping)· Worse
Their words about each treatment
- inhaler · No change
my lungs were above capacity. And the inhaler didn’t help
In context ↗ - breathing treatment · No change
my lung function was normal and no breathing treatment helped
In context ↗ - inhaled corticosteroids · No change
I’ve tried inhaled corticosteroids and they didn’t do anything
In context ↗ - low dose naltrexone · Worse
recently tried out low dose naltrexone and developed muscle twitches and then right arm heaviness. So I stopped LDN
In context ↗ - massage · No change
The massage didn’t seem to help long term tho since I just had it
In context ↗ - exercise attempts (treadmill walk, light gym workout, jumping) · Worse
I also made a mistake of going to the gym and doing a light workout Saturday and maybe I’m just doing a bit worse right now
In context ↗ - antihistamines · No change
I don’t notice a difference
In context ↗ - diet · No change
Notice that diet and supplements don’t help me really
In context ↗ - resting · Helped
I don’t workout anymore like I did and rest a lot ... when that’s truly when I feel the best
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| April 2023 | 24/7 air hunger began about 3 months after COVID; diagnosed with long COVIDDeveloped all of the sudden 24/7 air hunger in April 2023 about 3 months after COVID. I got diagnosed with LCIn context ↗ | Mild | |
| 2024-11-30 | fatigue worsened over time; muscle twitches and right arm heaviness after low-dose naltrexoneI still have the 24/7 air hunger. Worsened fatigue as well as time has gone on. And then recently tried out low dose naltrexone and developed muscle twitches and then right arm heaviness.In context ↗ | Mild | Low-dose naltrexone |
| 2024-12-14 | left hospital job for a desk job and stopped working out, symptoms unchangedI have significantly decreased my activity left the hospital job and work mostly at a desk now and don’t workout anymore and STILL experiencing these symptoms.In context ↗ | Mild | |
| 2025-01-21 | felt worse than usual after a light gym workoutI also made a mistake of going to the gym and doing a light workout Saturday and maybe I’m just doing a bit worse right now bc I feel terrible and worse than usual.In context ↗ | Mild | |
| 2025-02-01 | working as a school nurse; air hunger and fatigue ongoingYes! I left the hospital after I got Long COVID. Now work as a school nurse. Much happier.In context ↗ | Mild |
Adverse events
- Low-dose naltrexone“recently tried out low dose naltrexone and developed muscle twitches and then right arm heaviness. So I stopped LDN and the muscle twitches and right arm heaviness stayed.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Breathlessness
I still have the 24/7 air hunger.
In context ↗ - Post-exertional malaise
maybe I’m just doing a bit worse right now bc I feel terrible and worse than usual
In context ↗ - Muscle weakness
my one leg felt like heavy
In context ↗ - Neuropathy & tingling
I stopped LDN and the muscle twitches and right arm heaviness stayed.
In context ↗ - Pain & fibromyalgia
It feels like just achy and when I rest it gets better.
In context ↗ - Anxiety & low mood
I try and not let myself spiral but I often do.
In context ↗ - POTS & dysautonomia
My heart rate sometimes does jump up that high but sometimes it’s normal.
In context ↗