CFS with weekly migraines and PEM; improved with CoQ10 and NAD+, then relapsed
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2025
In their words
- Condition: ME/CFS
I thought I was invincible to my CFS this week
In context ↗ - At worst: Moderate
it was helping me build my tolerance and I actually could do shit around the house
In context ↗ - Now: Relapsed
The brain fog, fatigue, head pressure, everything is back to the way it was before
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
The user had CFS with weekly migraines and major PEM after overdoing things. From November they took CoQ10, crediting it with preventing PEM, and in early 2025 added NAD+ capsules; within two weeks they could do chores around the house again. After a cyclone, their supplement supplier was still closed, and four days without NAD+ brought back brain fog, fatigue and head pressure.
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What they tried
What they credit
Also tried
Their words about each treatment
- regular painkillers · Helped
find quick relief with regular painkillers and a heat pack
In context ↗ - codeine · Not said
took two codeine tablets 20 minutes ago
In context ↗ - ginger gummies · Not said
I’ve been eating ginger gummies since that apparently helps
In context ↗ - EMDR · Helped a lot
EMDR helped me an insane amount ... i owe my life to it
In context ↗ - covid vax · Much worse
how debilitating the covid vax is
In context ↗ - Q10 capsule supplements · Helped
has helped immensely with preventing PEM
In context ↗ - NAD+ · Helped
it was helping me build my tolerance and I actually could do shit around the house
In context ↗
Approaches: Supplements · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | onset of CFS, trigger not statedI thought I was invincible to my CFS this weekIn context ↗ | Not stated | |
| 2024-06-18 | major PEM crash with migraine after overdoing it and not sleepingI thought I was invincible to my CFS this week and got major PEM + didn’t sleep last nightIn context ↗ | Not stated | |
| — | debilitating reaction to the COVID vaccinewhenever i try and explain to someone how debilitating the covid vax isIn context ↗ | Not stated | |
| November | started CoQ10, which prevented PEMBeen taking Q10 capsule supplements since November, it hasn’t persay ‘improved my fatigue’ but instead has helped immensely with preventing PEMIn context ↗ | Moderate | CoQ10 / ubiquinol |
| early 2025 | added NAD+ and could do chores around the houseit was helping me build my tolerance and I actually could do shit around the houseIn context ↗ | Moderate | NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP) |
| March 2025 | crashed after running out of NAD+ when cyclone cut off supplement supplyit’s been about 4 days without my NAD+ and lord am I starting to crashIn context ↗ | Moderate | |
| 2025-03-16 | back to pre-supplement baseline with brain fog, fatigue and head pressureThe brain fog, fatigue, head pressure, everything is back to the way it was beforeIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
got major PEM + didn’t sleep last night
In context ↗ - Headaches & migraine
I get migraines maybe once a week
In context ↗ - Brain fog
The brain fog, fatigue, head pressure, everything is back to the way it was before
In context ↗ - Sleep problems
didn’t sleep last night like an idiot
In context ↗
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