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Long COVID Moderate → no benefitIll for 6 months

Long COVID breathlessness and severe anhedonia stopped them working, now no better

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
6 months
Last post
Oct 2024
In their words
  • Condition: Long COVIDsince my lc started ive just been trying to force myself to work In context ↗
  • At worst: Moderateive just been trying to force myself to work and kept bouncing until i admitted its not gonna work out until i have my old brain back. In context ↗
  • Now: No benefitI see no progress for 6 months so far In context ↗
  • Began after: COVIDbefore covid zoloft worked for me im pretty sure but covid made it have zero effect
Read from 41 of their posts and comments; links to the 18 this page draws on

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Summary

Vale 75250 developed long COVID in spring 2024, with breathlessness starting during a panic attack and severe anhedonia that stopped them working. Six months on they reported no progress: an asthma inhaler gave two days of relief, nicotine patches briefly lifted the anhedonia and pregabalin gave slight relief, and low-dose naltrexone felt slightly helpful, while six antidepressants, stimulants, antihistamines and NAC did nothing. A reinfection later set them back to the start.

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What they tried

Their words about each treatment
  • asthma inhaler · Helpedafter I breather that shit in 2 times, I finally saw improvement for the first time in 6 months In context ↗
  • snuffing tobacco · No changeit never worked so far and its been 3 months since yhe high started missing In context ↗
  • concerta · No changeNever felt any effect, even a tiny one... Even nothing changed when i stopped taking In context ↗
  • zoloft (sertraline) · No changeThey honestly did nothing at all at best (zoloft, wellbutrin) In context ↗
  • duloxetine · Worseits making my weirdo fatigue way worse and i cant take it anymore lol also it zeros my libido In context ↗
  • antihistamines · No changeAntihistamines have no effect on me and im finally stopping them after a month In context ↗
  • NAC · No changeFor me it did literally nothing. I was taking it along with bromelain. In context ↗
  • bromelain · Not saidI was taking it along with bromelain. In context ↗
  • nattokinase · Not saidi had good mood and less headaches a day after taking it, but the next day ive got headaches and no will to do anything again so maybe it was placebo In context ↗
  • nicotine patches · Helpedon day 2 of my patch i felt my anhedonia lift hardcore. But sadly it stopped working on day 4 and even another pack of patches never had any effect In context ↗
  • psilocybin mushrooms · No changeI took 5 grams along with a friend, and he tripped while I felt like i ate literally nothing In context ↗
  • pregabalin · HelpedIt FINALLY gave me slight relief on the second damn day! I took 150mg. In context ↗
  • coq10 · WorseIs coq10 supposed to make me extremely sleepy? It does In context ↗
  • LDN · HelpedIm on 1mg and after a week i think im starting to feel slightly more normal! In context ↗
  • starving myself · HelpedIt worked for me 2 months ago last time. Since then starving myself never ever improves my brain shit. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2024Long COVID after COVID; breathlessness began with a panic attackIt started with a panic attack (i never had obe before) randomly while i was shopping In context ↗Moderate
2024-06-06first relief from breathlessness with a different asthma inhalerI finally saw improvement for the first time in 6 months In context ↗Moderate
2024-09-21slight improvement on low-dose naltrexoneIm on 1mg and after a week i think im starting to feel slightly more normal! In context ↗ModerateLow-dose naltrexone
2024-10-29reinfected a month earlier and set back to the very start, no progressI see no progress for 6 months so far ... i got reinfected a month ago and was set back to the very start In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodI got anhedonia 2 months ago too In context ↗
  • BreathlessnessI have weird breathing like i can omly breath half the way in compared to before In context ↗
  • Brain foguntil i have my old brain back In context ↗
  • Headaches & migrainethe next day ive got headaches and no will to do anything again In context ↗

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